PeopleBeatingCancer and the demystification of cancer- part I
A cancer diagnosis is overwhelming. Trying to learn about your cancer diagnosis, therapies, side effects, etc. is a huge challenge. Conventional or traditional cancer therapy is expensive, fraught with negative side effects and conventional therapy may or may not be curative. The rise of e-health and e-patients has given cancer patients, survivors and caregivers the ability to learn, make better decisions and manage their cancer better.
PeopleBeatingCancer is a free, online cancer community fortified by evidence-based research and moderation.
As the saying goes "knowledge is power," especially when the subject is cancer. The challenge is to identify the key issues that pertain to you and your situation and ask the right questions. Whether you want a different kind of "second opinion," you are newly diagnosed, have just finished induction-therapy, have just come out of remission, want to learn about palliative or hospice care, you may want to talk to a long-term cancer survivor who has been researching cancer issues since 1997. I am a patient advocate working exclusively with cancer patients and caregivers. I am a patient opinion leader moderating all PeopleBeatingCancer online forums and leading the PBC cancer coaching efforts.
Your oncologist is an important source of information. But you may have questions and want to talk to someone who has been managing his incurable cancer since 1994. Two articles explaining what a patient advocate does are linked below. PeopleBeatingCancer is a non-profit with a mission to demystify cancer.
Click the link below, get the information you need, get the research you deserve.
To read my story click here- David Emerson
"Results-The overall contribution of curative and adjuvant cytotoxic chemotherapy to 5-year survival in adults was estimated to be 2.3% in Australia and 2.1% in the USA.
Conclusion-As the 5-year relative survival rate for cancer in Australia is now over 60%, it is clear that cytotoxic chemotherapy only makes a minor contribution to cancer survival. To justify the continued funding and availability of drugs used in cytotoxic chemotherapy, a rigorous evaluation of the cost-effectiveness and impact on quality of life is urgently required."
After a Diagnosis, Someone to Help Point the Way
"WHEN Kathleen Henry’s uncle was told he had bladder cancer in May, she knew she needed help. Even though Ms. Henry has a nursing degree, she worried about deciphering treatment options and picking the best hospital for her uncle’s care."
Ahead of the Curve: Patient Advocate-A guiding light through the fog of the American healthcare system-
"Patient Advocate. Even Christopher Columbus would have had a tough time navigating the tricky waters of the U.S. healthcare system, and most people, especially when ill, aren't the best navigators. Enter patient advocates. They help ensure that the patient gets to see the right specialist. They do Internet research so the patient is better informed when talking to the doctor."
"For the paper, the researchers analyzed data from three prior studies related to diagnosis and follow-up visits. One of the studies examined the rates of misdiagnosis in primary care settings, while two of the studies looked at the rates of colorectal and lung cancer screenings and subsequent diagnoses..."
Here are four of the most important issues for cancer patients and caregivers to identify and understand.
"Having a cancer diagnosis is very expensive even for those with insurance. For those who are underinsured or uninsured, the cost of care can be a strong deterrent to accessing treatment. For patients with a chronic disease, such as multiple myeloma, the cost of annual deductibles, office visit co-pays, and prescription drug co-pays can quickly mount up. Many of the newer drugs used in treating multiple myeloma are available only through specialty pharmacies, which require preauthorization processes to access medications.
Patients eligible for transplant face additional financial, logistical, and psychosocial issues, for example, having to travel significant distance to a transplant center for care, which adds the cost of transportation, lodging for caregivers, and being away from home into the mix..."
If you would like to learn more about cancer coaching contact me with your questions or comments.