Dear Cancer Coach:
I just read your story and want to thank you for sharing.
I am 47 and was diagnosed with Multiple Myeloma in August 2014. I started chemo, had a great response and went into remission very quickly. I had tandem stem cell transplants. The first one was in January and the second was in April. I did well above average with both and I feel amazing.
I saw my doctor today who is suggesting that I go on revlimid for maintenance therapy and I have to say that I really don’t want to. I’ve been extremely optimistic throughout this and am looking for suggestions, ideas or anything that might be helpful moving forward. I am a vegetarian and generally eat pretty healthy and I recently started exercising again.
I look forward to hearing more from you.
Thank you so much,
I am sorry to read of your mm diagnosis. However you seem to be doing well. It is great to read that you are feeling well after your tandem transplants.
To answer your question:
” I saw my doctor today who is suggesting that I go on revlimid for maintenance therapy and I have to say that I really don’t want to. I’ve been extremely optimistic throughout this and am looking for suggestions, ideas or anything that might be helpful moving forward…”
I belong to several mm forums and the issue of maintenance therapy, 5 mg or 10mg of revilmid daily, is frequently debated. Many mmers are being encouraged to go on maintenance therapy. I have read that studies exist that say mmers live longer, on average, with maint. therapy. I have not read any study to this effect. I believe that toxicity should be avoided, especially after induction therapy and a tandem stem cell transplant.
Reanne, you are in charge of your mm and your therapies. People like me or your onc. can only make recommendations. I believe that evidence-based nutritional supplementation reduces the risk of mm relapse without the toxicity. I will link the studies about mm and curcumin, resveritrol, omega 3 fatty acids and green tea extract below.
I supplement with each of these daily- I am happy to link what I take-
Let me know if you have any questions.