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I have MM (2years). I had a SCT on 9/15, was in remission ( no M spike for 9 months) but now have an m spike .32.
I was on a clinical trial (at Dana Farber, Boston, MA) with Dex., revlimid, and carfilzamib for 16 months. My wbc and neutrofil levels have been so low I have had IVIG and many neupogin shots. Right now I am in transition before going on a Rev maitenance program (5mg) for 21 days off 7 days.
I recently went to a naturalpathic oncologist and he recommends changes to my diet>>no fruit , starches, dairy, no processed foods, no sugar. Eating veg. and plant protein and a lot of very expensive supplements. One is melatonin which is very controversial for MM. I am so confused right now as there is so much conflicting information out there. I also have the high risk gene from the FISH test. Can you help????
Hi Carolyn-
I am sorry for your MM diagnosis and I understand how MM can be so confusing. Yes, there is lots of conflicting info out there. I have to be honest and admit that I admire many of the MM docs at Dana-Farber. I’ve met with and have been following Ken Anderson for years now. I think he is a great guy. We do disagree on many aspects of MM treatment however. We just see the world of MM from very different perspectives.
My approach to MM is based on my own experience and years of research. I think that MM is complicated and aggressive enough (especially with genetic abnormalities) that the best of both conventional (Dana-Farber) and evidence-based, non-conventional therapies must be used to manage MM for the long-term.
Low-dose Revlimid maintenance therapy is a good example. The MM Cancer Coaching program that I admin. with clients enhances this conventional therapy with MM starving nutrition, supplementation, bone health, lifestyle and mind-body therapies. All based on research.
I will email you the MM CC program Introduction after I send this reply. Please let me know if you have any questions.
Hang in there,
David Emerson
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