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My daughter DeborahSchindler has MM and is undergoing chemo right now. I would like to hear your story and of the number of individuals who have success. I Am desperate to Help Her.
Her treatment is being administered through Baptist Health-Floyd in New Albany, In.
Hi Carole-
I am sorry to learn of your daughter’s MM diagnosis. The best way for me to help any newly diagnosed MM patient is to understand their diagnosis, stage, symptoms, goals, etc. Just reciting statistics won’t help in my experience.
Most importantly it’s important to understand that conventional oncology has gotten very good at stabilizing the newly diagnosed MM patient. Frankly, there is little that I can do for your daughter at this stage aka in the beginning.
Once your daughter has stabilized we can talk about evidence-based anti-MM nutrition, supplementation, lifestyle therapies, etc.
Take a deep breath and try to let your daughter’s oncologists do their thing.
Hang in there,
David Emerson
Reply[…] Burzynski, Antineoplastons, Multiple Myeloma and The Burzynski Breakthrough […]
ReplyHi, my grandmother got diagnosed with cancer recently. She has problems with her kidney functions, has diabetes, and has high blood pressure. We are currently located in Jordan, but we are willing to do anything to save her. We still didn’t tell her that they supposedly found out that it was stage 3.
ReplyHi Deya-
I am sorry to learn of your grandmother’s cancer diagnosis. Why type of cancer was your grandmother diagnosed with?
Hang in there,
David Emerson
ReplyCan you help my friend? Here are the details: Case of liver cancer stage 4, diagnosed last July, 2020 and had metastasized in my right and left hipbones. Have undergone chemo and radiation beads liver embolism, took chemo pills, hip surgery and immunotherapy. With the liver cancer cells acting up again, I will undergo intervention radiation again. I would appreciate your help. I truly believe that radiation is making his case worst. Would appreciate your soonest reply.. Thank you so much. God bless us all…
ReplyHi Vince-
I am sorry to read of your liver cancer. Unfortunately, I have little experience with liver cancer. I can say however, that my blood cancer, multiple myeloma, was advanced as well. And I have gone through similar aggressive therapies as you have. And Antineoplaston therapy put me in complete remission.
Good luck,
David Emerson
ReplyMy aunt is going through chemo for pancreatic cancer. Is there anything that can help her?
ReplyHi Fletcher-
Though much depends on the stage of your aunt’s pancreatic cancer, I encourage you to download the free pancreatic cancer guides. As for the BRI, I would have to research if ANP has any success with pancreatic cancer.
https://peoplebeatingcancer.org/pancreatic-cancer-diagnosis-stage-4-aka-metastatic-disease/
David Emerson
ReplyI had a complete response to my stem cell transplant in the fall of 2019. I did not do conventional maintenance due to Covid, but did 8g curcumin daily along w/other supplements. My labs/scans all stable and then w/in a month I had a tumor start pressing on my spinal cord which had now left me w/paralysis from abdomen down. I am in rehab hoping that the radiation I received will have helped restore function in my lower body. I would like to know how I can get a treatment protocol that would help me restore remission considering my particular “type” of MM. what has seemed to work for those with similar MM. I did order your coaching course. Or has anyone been through this too? Where to start?? I do have a top MM specialist oncologist at Northwestern Memorial in Chicago.
ReplyHi Christine-
Good to read of your complete response to your ASCT. Not sure if the “tumor” you refer to is related to your MM. A couple of issues. May be just words but oncology doesn’t use the word “tumor” when talking about MM. A collection of MM plasma cells is called a “lesion.” My point in asking is to figure out of this tumor is related to your complete response of MM or not.
Secondly, local radiation should have eliminated your mm lesion. Monoclonal plasma cells, according to research, respond well to local radiation. Yes, radiation can cause nerve damage. But it sounds like the damage to your motor skills resulted from your tumor, not from local radiation?
I do not mean to confuse the situation. In response to your question “where do I start?” I have asked several questions below.
1) Have you formally “relapsed” from your induction therapy and ASCT? I ask because being told your labs indicate complete response only to develop a tumor a month later raises questions regarding your MM. Your diagnostic testing results will indicate your current status- remission, relapse, etc.
2) What is the status of your tumor? Is it MM? Has it responded to the local radiation (shrunk, disappeared?).
3) Depending on the answers to the above questions, we can figure out the situation with your MM.
You have a lot going on with your health and MM right now Christine. I would not be surprised if all of these questions cause anxiety, distress, etc. All I can offer is to take things one issue at a time in your effort to solve the puzzle of your situation.
I hope that makes sense. Let me know if you have any other questions.
Hang in there,
David Emerson
Reply[…] Burzynski, Antineoplastons, Multiple Myeloma and The Burzynski Breakthrough […]
ReplyHi David,
My husband and I had a consultation with you about a month and a half ago. His doctor wants to do a stem cell transplant, but even after the transplant will put him on low dose chemo. To me that’s doesn’t seem to be the answer. Do you think we would have better results if we went to the Burzynski clinic. He has very little protein in his blood, like .1, but staying on chemo forever just doesn’t sit well with me. I know you said some respond and some don’t, but with your knowledge what would you do? Thanks in advance!
Desiree Spinney
Hi Desiree,
Low-dose maintwnnce therapy has been shown to increase overall survival for MMers but yes, ongoing chemotherapy causes side effects and can reduce the patient’s quality of life.
Let’s take a step back. Is Norman (is that correct?) currently in the process of induction therapy? Meaning is he undergoing a chemo regimen like RVd (Revlimid, Velcade, Dex.)? Or has he recently finished his chemo?
If so, how is/has he responded? Do you know his current blood markers such as his m-spike? If you are saying that his “total serum protein” is .1, then it seems as though he has responded well to his induction chemotherapy. Do you know what his serum protein was when he was diagnosed with MM?
Studies show that there is no overall survival benefit (patients don’t live longer) by having an Autologous Stem Cell transplant early or later in the process. Meaning, your husband may want to hold off his ASCT for now.
Can you email me his current blood work- protein, m-spike, etc?
Let me know, thanks.
David Emerson
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