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Hi I’m smouldering at the moment. I got diagnosed in feb 2020. I would like to know what I could take. I am taking blackseed capsules. Curcumin. Vitamin d and c. I got no bone involvement.
ReplyHi David.
Noting age of this article I do hope this message finds you well?
I’ve just turned 50 and was diagnosed with MM just a year ago.
I’m now recovering from a tandem stem cell end of 2020 following 5 cycles of velcade, Dex and thalidomide .. oh and dose of COVID last March.. that was scary… thankfully I’m a fit guy!
I’m now waiting to start on Lenalidomide the maintenance drug. As somebody with a higher risk MM this is seen as the best option for a longer remission.
Not having consumed any alcohol last year I was allowed a glass of champagne at Christmas and have taken comfort from your article! . I would previously enjoy the occasional glass of fine wine or rum and will again. I have recently been surprised by the academic papers, primarily US, with positive associations between moderate alcohol intake and reduced MM risk.
I’m very lucky to have Dr Matthew Jenner as my consultant, a world leader in Myeloma and cancer treatment, based at the University Hospital Southampton. Like any good doctor he suggests being very conservative with alcohol consumption.
All the best.
Adrian
ReplyHi Adrian,
I agree with Dr. Jenner about moderate alcohol consumption. My reason for writing the post was to say that resveratrol in red wine is a positive and we MM survivors, living with and incurable cancer, must relax on occasion.
Good luck,
David Emerson
Reply[…] Can Multiple Myeloma Survivors Drink Red Wine??? […]
Reply[…] Can Multiple Myeloma Survivors Drink Red Wine??? […]
Reply1. Diagnosed MM in : November 2017.
2. Treatment : Started in Dec2017.
The suggested treatment was 6 cycles of Chemotherapy and there after Bone Marrow Transplant (Autologous BMT). Each cycle of 28 days of chemotherapy includes Lenalidomide 25mg for 21 days and 7 days off (28 days), Bortezomib 2mg & Dexamethasone 40mg ,both, once in a week for 4 weeks (28 days)., and Zoldronic acid 4mg, once in a month. With the treatment of Steroid, Now I am diabetic.
3. After 6 Chemo cycles, the report was suggestive of CR.
It was planned to undergo Autologous Bone Marrow Transplantation (PBSCT), at RCC Thiruvavanthapuram. But delayed due to excess rush at RCC.
Hence, Bortezomib 2mg & Dexamethasone 40mg (both, once in a week) and Zoldronic acid 4mg, (once in a month) are continued …..
4. In Dec 2018, the report was suggestive of VGPR.
5. In April 2019, I was admitted for HDCT and PBSCT. GCSF was given for 5 days. Two sessions of aphaeresis were also done with stem cell yield of 3.8×106/ kg. But bleeding was started from catheter sites. The HDCT and PBSCT were abandoned. Further investigation was suggestive of Factor-VIII and vWF deficiency (mild disorder). I have never faced such bleeding disorder till then. No such cases were reported in my family also.
6. After that, Bortezomib 2mg & Dexamethasone 40mg (both, once in a week) and Zoldronic acid 4mg, (once in a month) are continuing.
7. The latest report as on 14/9/2019 is also suggestive of VGPR.
8. Factor-VIII and vWF again tested on 11/10/2019. It shows that Factor-VIII is now changed into moderate disorder.
Is it advisable to take red wine? What quantity is beneficial. I was taking one or two peg of Smrinnoff once in a month or so. Is it advisable to take?
Reply[…] Can Multiple Myeloma Survivors Drink Red Wine??? […]
ReplyI am so pleased to have stumbled onto your website. Looking forward to your newsletter, for which I have signed up.
The pain and woes associated with FM are getting to me … Flare Up’s becoming more aggresive and regular. I am however concerned that I may well have something more sinister lurking … ie MM. Thank you for your contribution …
Hi Moira-
Thank you for signing up for our newsletter. I am sorry to read of your pain and woes. To confirm “FM” stands for fibromyalgia? But you are concerned that your pain may be caused by multiple myeloma? If I am correct you should see an oncologist to ask him or her to run blood tests.
Hang in there
David Emerson
ReplyI am on a regimen of Venetoclax, Velcade and 20mg Dex. I take 800 mg Venetoclax (8 pills) each night. My numbers have miraculously come back into normal range, m-spike .02, IGG 700, still working on raising Platelet count from critical 10 to 71 and incredibly
My severe hip pain is gone and my back pain better. WBC 8, RBC 4.
I have blurry vision and a bit of neuropathy by Saturday after Dex and Velcade on Thursday’s.
Any suggestions? I do want to sign up for your coaching and pay of course.
Thank you. Joan
Hi Joan-
I am going to reply to you via your email address.
David
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