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Hi David, I would like to know is this the way of things regarding pain. I was diagnosed with monoclonal gammopathy of undetermined significance (MGUS) in 2012 for the last 2 years I have been experiencing bouts of neuropathic nerve pain. First starting in my shoulder blades then into arms, hands and now on the one side of my face, legs and feet. Sometimes the pain feels like an aching, lightening pain, quick and sharp, especially in the palms of my hands and face.
I was told that I have neuralgia and fibromyalgia as well as raised SHBG levels I’m also allergic to many foods and I have been for many years. I’ve now requested a follow up for my blood testing to be done, hopefully, my MGUS has not progressed further.
Dear MGUS Patient-
You have been diagnosed with several possibly overlapping issues all of which may be contributing to your pain. I will address as many possibilities as I can.
Regarding nerve pain and MGUS. As you know, MGUS is supposed to be “asymptomatic” aka you are not supposed to experience nerve pain. However, pain can be an MGUS symptom and is well documented. Further, nerve pain is well documented for fibromyalgia as well. Also as you probably know, conventional oncology considers MGUS to be a “blood disorder” and therefore can offer no therapies.
My experience is for pre-MM patients (single plasmacytoma, MGUS, and SMM) to pursue evidence-based, non-toxic therapies. Several of the therapies I take as a long-term MM survivor overlaps with supplements that I have read about helping fibromyalgia- an example would be vitamin D3- I take this for bone health and balance and I will link a study below about fibromyalgia.
Please consider the pre- MM cancer coaching program. The information provided has been shown to reduce your risk of progressing to MM. I have worked with pre-MM patients who tell me that they have slowly reduced their m-spike.
To get a sense of the Pre-MM cancer coaching program and the various evidence-based protocols that you can start today, please watch the short video below:
Let me know if you have any questions.
Hang in there,