Chemo does NOT help Smoldering Myeloma

[…] Early Chemotherapy does NOT help Smoldering Multiple Myeloma […]

[…] Early Chemotherapy does NOT help Smoldering Multiple Myeloma […]

[…] Early Chemotherapy does NOT help Smoldering Multiple Myeloma […]

Rob….recently diagnosed with smm but originally was told I was Stage II with suspect lesions in my skull. Was scheduled for treatment in 5 days. My second opinion doctor at Vanderbilt decided he wanted MRIs of head, spine and pelvis. Diagnose changed to smm and no treatment and thankful of it!!! At first testing in 2/2015, IgG was 3758. June 9th was 3778. They are not concerned and I will have blood work every 3 months, 24 hr. urine collection at 6 mos. and other tests as required. I was told turmeric is good to take and people have said the IgG come down…they say. I exercise, eat right, do not smoke or drink. My husband passed 12-13-14 of pancreatic cancer and I was his caregiver. Have had a lot of stress since 2/2015 but have it under control now. Who is best source to talk about natural products, etc. in regards to smm and trying to control it? I am on no cancer medications. Thank you for any information you can give me.

Hi David,

I’ve been enjoying reading your newsletter and many of the links. Very helpful.

Im still almost symptom free after 6 years from diagnosis of mm. Yes rest, exercise, and the three items you mentioned are part of my regime (green tea, curcumin, and wobenzyme – recently started the latter after your advice). Bisphosphonate has been part ofv the intake since diagnosis.

You mentioned: “On a related note, I am a mmer who was diagnosed in ’94. I am happy to provide you evidence-based studies and articles that cite anti-myeloma therapies- both conventional, non-conventional. Also, I have studied and written about the importance of surgical methods for mmers (usually spine related issues) as well as bone building therapies- again surgery, or bisphonates as well as bone strengthening vitamins and supplements.”

Could I take you up on that offer please? Evidence based studies and articles and info on surgery etc would be helpful, and Im planning to review my regime and see if I can cut back on the number of pills and liquids Im taking (about 31 items now!).

Thanks for your help,

Rob

Dear David,

Many thanks for your email, and the information of the things you are taking.

I take a whole bunch of stuff daily, which includes green tea and Tumeric (curcuma), but wobenzym is new to me. When I finally get to stay in my home base awhile, I’ll rationalise my regime, and include wobenzym.

But you might check Inositol and Ip6. I take both daily and have from diagnosis. I think it is helpful : http://www.ncbi.nlm.nih.gov/pubmed/14608114

Im encouraged by your view that you might make it through to die of old age, despite smm. I have viewed it as a slippery slope and I could tip over the edge anytime. But I am not bothered by that unduly, we all have to pass on sometime. Be nice to see my Grandkids grow up tho.

Kind regards,

Rob

Dear David,

Thank you for your courteous response. And no I am not offended, and perhaps my nitpicking was unnecessary, and gratuitous. Just that with over 500 types of cancer, advancing a strong position, which I took your newsletter to propose, that surgery was best for cancer (all cancer?), could lead to some people seeking that option inappropriately. Not many people would have you span of awareness I suspect. So I would have something in the lead sentence to the effect that “Surgery is still the best option for many cancers where it can be applied….” Or somesuch.

I was attempting to be jocular in saying “all generalisations are false including this one”, referring to that very statement. I was not referring to your statement/s. Though there is an element of common truth in my silly statement.

David I am an Australian, aged 73, and was diagnosed with mm at the smoldering stage six years ago. So far, thank God, it has been stable at that level. I am writing to you from Pakistan, a somewhat dangerous place with millions of very poor farmers scratching out a living from the desert. I have been doing this kind of work for most of my life and have also been involved in academia.

When I was diagnosed, I read widely on mm and as a result have been hitting myself with a cocktail of things. I take a weekly dose of Bisphosphonate (recommended by my Oncologist in Brisbane, Australia (my home, sometimes). As well as various suppliments, I take a daily dose of a liquid that is made up by my Naturopath, which he calls Oxybeedone D. It contains ozone bubbled though an aqueous suspension of vitamins D and B. In addition I take a daily high dosage of Dr Rath’s cellular health formula (I take the capsules, 4 x 3 time /d). See http://www4.dr-rath-foundation.org/pdf-files/cancerresearch.pdf, and other material by Dr Rath.

I also take Inositol hexaphosphate (at about 3 am when my stomach is presumably empty). I believe these things are at least part of the reason that my mm appears to be kept at bay. I also exercise daily, and get enough rest.

David, thank you for your kind offer of some material on research regarding mm etc. I would be most interested to read same. I am certainly not aware of surgical procedures pertaining to mm apart from the ubiquitous marrow transplant and stem cell work. Perhaps spinal repair is after vertebra damage/collapse is what you’re referring to?

David I appreciate the time you have taken, and the motives of your excellent work. I apologise for the somewhat curt tone in my brief message. Perhaps Im too conditioned by criitcal peer reviews of my written stuff!

Kind regards,

Rob

David,

Apropos of your latest newsletter, as you know, all generalisations are false including this one (Ed.Note- referring to surgery to debulk tumors). I have Multiple Myeloma, invariably fatal, incurable. I wish I could have a lumpectomy, but surgery, even marrow replacement, is only a deferment of the inevitable.

And since Im in my 70’s even that option is not available. Can you be a bit less general about what works in future please?

Rob