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I am 8 years myeloma “free” post induction therapy with RVD and Revlimid maintenance after 6 months. I started on a low glycemic “index” diet but maintaining a 20-25% protein, most carbohydrates are for higher fiber. All the rest to keep my 13% body fat and weight at 178 ( BMI =23). My personal research has allowed me to “live out” what you have predicted so far as myeloma control. I have no abnormal protein and no new bone lesions and have normalized my bone density study. Diet influences all these diseases a great deal… more at the truth is that our adopted western diet is a silent killer.
ReplyI have multiple myeloma and , I have read Dr Li”s book eating to beat disease and pretty much eat a plant based diet. The Angiogenesis is a bit confusing to me because the book does not really talk about Myeloma . could use some guidelines, and I also do chemo
ReplyHi
I’ve recently been diagnosed with myeloma which was devastating in itself, however I’ve now been diagnosed with Amyloidosis in addition. I would be so grateful for any information or advice you could offer.
Many thanks
Julie
Hi Julie-
I am sorry to learn of your MM/amyloidosis diagnosis. Yes, this must have be devastating. I will say however, that, based on my own MM experiences, there is more to your management that what is offered by conventional oncology.
Having said that, I encourage a second opinion and I encourage you to see a specialist.
The challenge is, at 15% of all MM diagnoses, amyloidosis is relatively rare. I don’t study this condition because I focus on other MM issues. As a result, I am relatively ignorant about the types and stages of amyloidosis.
I wish I could offer information to you. I am sorry.
David Emerson
ReplyI have MM sense 2018, I have gained about 20 lbs. I have also been diagnosed with steroid induced diabetes. What foods can help with weight loss , and what should I avoid.Thank you.
ReplyHi Rosa- I replied to your post directly via your email.
Let me know if you have any questions.
David Emerson
ReplyHi I am a 16 year survior had two stem cell transplants in 2004. Nine years later on Revlimd dex .Then went on the Revlimid darzalex dex. Till I year ago switched prednisone for dex. After 44 months didn’t work anymore so I am started on Kyprolis polyimist and dex again. I am 5,9 “ and 211 pounds I really want to lose weight to about 179. If you have good ideas I would appreciate it more than you know. I exercise 2 Mike walk every day. I am also diabetic but am in pretty good control. aIC. Was recently 7. Thank you
ReplyAn add on question. I haven’t started chemo yet because of covid. I thought it would cause problems with my immune systems ability to fight it off.
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ReplyHi, I was diagnosed with mgus two years ago,was told I was low risk,even though it was found while investigating anaemia which they have told me could be unrelated?Just over 3 months ago in my routine tests my m spike has gone up a little & I have Bence Jones protein in urine,am still waiting to discuss with hematologist,they have said I’m still mgus,but from my research it looks like I’m more likely to progress to mm,I am trying to lose some weight as I know this helps,also taking Curcumin 8 grams a day,can’t help worrying constantly,I hate this watching & waiting.
ReplyHi Beverly-
Yes, watching and waiting to progress to full-blown MM is difficult. Though conventional oncology considers MGUS to be asymptomatic, yes, anemia is a common symptom. As an aside, you would fortunate to have been anemic as this probably tipped off your doctor that something was wrong with your blood. You may be able to remain pre-MM for a very long time.
https://cancercompass.com/message-board/message/all,56647,0.htm
There are many evidence-based therapies cited to reduce the risk of progressing to MM. Yes, losing weight is one. Curcumin is another though be sure to use one of the formulas that are more “bioavailable” aka absorbable.
Search a blog called Margaret’s Corner. Margaret has been living pre-MM for more than 15 years.
Click the link below to go to the Pre-MM Cancer Coaching Products page-
https://peoplebeatingcancer.org/pre-myeloma-coaching-products/
Let me know if you have any questions. Good luck.
David Emerson
ReplySuperb website you have here but I was wondering if you knew
of any user discussion forums that cover the same topics
talked about here? I’d really love to be a part of group where I can get
opinions from other experienced people that share the same interest.
If you have any recommendations, please let me know. Thank you!
I was put on a drug that caused me to gain over 30 pounds. I’m off the drug but have found it difficult to lose weight. Every time I do it returns with more weight. How can I lose the excess and keep it off? Before hand I was 5 ft 3 and 75 kg, now I’m 90 kg and have a diagnosis of MGUS. I will try a vegetable, nut diet and stick to this. Looking forward to watching the webinar. Thank you for sharing your findings.
ReplyI was put on a drug that caused me to gain over 30 pounds. I’m off the drug but have found it difficult to lose weight. Every time I do it returns with more weight. How can I lose the excess and keep it off? Before hand I was 5 ft 3 and 75 kg, now I’m 90 kg and have a diagnosis of MGUS. I will try a vegetable, nut diet and stick to this. Looking forward to watching the webinar. Thank you for sharing your findings.
ReplyHi Jacquie-
I am sorry to learn of your MGUS diagnosis. Increased body weight means that your body is undergoing inflammation. It is this increase in inflammation that may have caused your MGUS diagnosis.
The same lifestyle changes that can help you loose weight are the same changes that reduce your risk of your MGUS becoming a full blown diagnosis of multiple myeloma. BTW, a common chemotherapy for MM is dexamethasone. I gained 30 pounds when I was on Dex.
Your challenge is to make lifestyle changes that are permanent. In other words, the foods, supplements and non-toxic therapies such as moderate daily exercise are not temporary. The good news is that you are changing your lifestyle to permanently reduce your risk of MM. Not temporarily. The webinar that you watched was for a Multiple Myeloma Cancer Coaching Program. If you are interested I can tailor the MM CC for you, the MGUS patient.
Let me know and hang in there,
David Emerson
MM Survivor
MM Coach
Director PeopleBeatingCancer