I also practice Reiki and have many prayerful friends. I do not own this disease ( God is my physician) but follow Dr’s orders and have armed myself with as much as I can to bring about God’s miracle. I am a retired RN. I belong to no support group but gather info here and there. Thought I would share my story…..feeling very blessed. Glad you are there to help people from your experience.
Your story mentioned several important issues that I thought I would highlight.
1) “Picked up by my PCP with an elevated Protein, she ran with it. and recommended the oncologist I see.”
95% of MM is diagnosed at stage II or III. MM is difficult to identify if you are not experiencing symptoms such as bone pain, nerve pain or kidney failure. As the linked and excerpted information below states, your five year survival rate increased when your PCP “ran with it.” Please give your PCP a pat on the back for me…
2) “ I am careful with my diet lots of fruits/veg, almonds and use many supplements including IP-6 and tumeric, B12, B complex Vit C, D3, Krill Oil. I do not drink and never smoked…”
Your diet, supplements and lifestyle will lengthen and deepen your remission. Not to mention helping you heal after your induction chemotherapy.
I will attach the MM CC supplement guide and the nutrition guide below.
3) “ I have not had a stem cell transplant and have felt well throughout treatment.”
Consider harvesting and storing your stem cells. You may never use your stem cells but because you reached complete remission, your stem cells haven’t been this clean for awhile. Plus, I think its always a benefit to have therapy options/choices.
Also consider not having an autologous stem cell transplant…ever. A growing number of studies confirm that high-dose, aggressive chemotherapy from an ASCT will increase your risk of short, long-term and late stage side effects and will NOT increase your OS (overall survival aka length of life).
4) “I also practice Reiki and have many prayerful friends. I do not own this disease ( God is my physician) but follow Dr’s orders and have armed myself with as much as I can to bring about God’s miracle.”
Increased energy work and spirituality are proven mind-body therapy shown to increase OS for newly diagnosed multiple myeloma patients.
5) “Thought I would share my story…..feeling very blessed. Glad you are there to help people from your experience.”
Thank you very much.
“For the 5% of people who are diagnosed at an early stage, the 5-year survival rate is almost 74%. If the cancer has spread to a distant part of the body, the 5-year survival rate is 51%. Approximately 95% of cases are diagnosed at this stage…”
” We retrospectively reviewed the outcome of MM patients who received novel agent based induction treatment and received first ASCT within 12 months of diagnosis (early ASCT, N = 102), or at a later date (late ASCT, N = 65).
Median time to ASCT was 7.9 months vs. 17.7 months in the early vs. late ASCT. The 3 and 5 yr overall Survival (OS) from diagnosis was 90 and 63% versus 82 and 63% in early and late ASCT respectively (P=0.45). Forty-one and 36 patients in the early and late ASCT have relapsed or progressed with median time to relapse of 28 and 23 mos (p=0.055). On multivariable analysis, factors predictive of increased risk for progression were ISS stage III (p=0.007), and < VGPR post-ASCT (p<0.001). Factor predictive of worst outcomes for OS was being on hemodialysis (p=0.037). No superiority of one agent was seen.
In summary, early or late ASCT is a viable option for MM patients receiving induction treatment with novel targeted therapies…