Recently Diagnosed or Relapsed? Stop Looking For a Miracle Cure, and Use Evidence-Based Therapies To Enhance Your Treatment and Prolong Your Remission
Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Research and personal experience have taught me that the best outcome for MM patients is to take an integrative approach- combine Dana-Farber, BRI, Block and even complementary therapies from Utopia.
Hi David- Thank you so much for all the helpful information. I totally agree with your philosophy that integrative therapy combining non—toxic therapies (Block, BRI, Utopia) with Dana-Farber is the way to go.
Can you recommend an integrative center that can help us combine the two? Someone that deals with MM patients would be so helpful. We are willing to travel anywhere to be able to get these type of therapies and we want the best. I believe since Allen is high risk with the genetic abnormalities we really need to be in the best program possible.
We spoke to Dr. Anderson at Dana-Farber yesterday. The plan is one more round of Krypolis without Revlimid. Hopefully this will get numbers down a bit more and then we will harvest cells. At that point we will have a long discussion with Dr. Anderson as to how to proceed- an autologous stem cell transplant now or later.
I know you talk a lot about Antineoplastons and this is something we would be willing to do down the road. I am not sure at what point this would be the most helpful?
Also, I read about a new MM center in Austin Texas, Dr. Matsui. I found out this on Myeloma Crowd Radio episodes. It seems very interesting, bus also sponsored by Celgene!
One the compete opposite end of the spectrum, we spoke to Dr. Garcia at Utopia Wellness center. They are all holistic and not open to combining the conventional and non-conversational.
We just want to create the best team possible!
I really appreciate your knowledge and time. I am happy to sign up for more coaching time! Karen
I will excerpt your questions below and reply to each as best I can.
1) “Can you recommend an integrative center that can help us combine the two? Someone that deals with MM patients would be so helpful.”
As you have indicated most centers are either conventional (Dana-Farber, Mayo, etc.) or holistic aka non-conventional like Dr. Garcia’s organization. The one truly integrative cancer organization that I know of is called the Block Center for Integrative Treatment. I have no personal experience with Dr. Block but I’ve read his book “Life Over Cancer” and I agree with everything he says. I have read the studies and have posted many of the same studies on PeopleBeatingCancer over the years.
You will have to contact the Block Center to ask them about integrative MM therapies, the MM experiences, etc.
2) “I know you talk a lot about Antineoplastons and this is something we would be willing to do down the road. I am not sure at what point this would be the most helpful?”
We can discuss ANP, MM and the BRI anytime you would like to of course but I guess my recommendation for when to talk would be when I myself began to learn about the BRI. And that was after I had pursued every conventional MM therapy I could. Or I should say that I knew that I was in the final months of my conventional MM therapies and that I should start looking for other therapies.
I’ve heard of Dr. Matsui in general, over the years but I don’t know anything about a new medical center. Unless you’re talking about the Dell Medical Center.
4) “One the compete opposite end of the spectrum, we spoke to Dr. Garcia at Utopia Wellness center. They are all holistic and not open to combining the conventional and non-conversational.”
I don’t know much about the Utopia Wellness Center other than to say that I believe in many of the therapies provided at alternative clinics like Utopia. I don’t believe that complementary therapies like detox or nutrition can cure MM but I do believe that these therapies must be a component of MM therapy plans. As you know from the MM CC guides, I don’t believe that MM must be either conventional or non-conventional but both.
Let me know if you have any other questions Karen.