Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Hi David. What are some of the factors that have contributed to your survival? I am four years out from a diagnosis of multiple myeloma, remain in complete response, am treated at Penn Medicine in Philadelphia, and would like to learn everything that I can from you.
Thanks, and happy Thanksgiving. Lawrence
My MM experiences are complicated. The most comprehensive way to learn about my history is to read the info linked below. Keep in mind that during the time period of the events in the linked info below, I had little idea about managing my MM.
I credit basic outside the box thinking as the main factor in helping me live this long. By this I mean that I would be the first person to credit conventional oncology, conventional therapies such as my surgery and local radiation in stabilizing my MM, however, conventional MM oncology is only a small piece of the MM puzzle. I had to figure this out the hard way.
To answer your question, “What are some of the factors that have contributed to your survival?” I will say two basic concepts that MM patients, survivors and caregivers need to understand in order to manage their MM successfully.
The first concept is that
are the key to managing MM for the long term.
The second concept is that conventional MM oncology is short-term thinking. While your oncologist is great at stabilizing MM (95% of all MM is diagnosed at stage 2,3- most people need to be stabilized ASAP), by stabilizing your MM, on average, you undergo too much chemo, undergo too much toxicity to live beyond the 5-7 year published average.
I will link the blog post that explains this thinking.
Let me know, thanks.
I went under the knife four days later and woke up eight hours after that. Dr. Makely gently explained that I had multiple myeloma. I was told that myeloma was an incurable but very treatable (?) blood cancer.
It took me years to figure it out but conventional oncology’s definition of treatable is very different from a multiple myeloma patient’s definition of treatable. My oncologist prescribed chemotherapy and radiation that caused short, long-term and late stage side effects that I struggle with to this day.
I now understand that standard MM therapy is excellent at stabilizing the newly diagnosed patient’s MM. But painful experience taught me that the more chemo and radiation the patients has, the greater the risk of side effects.
Further, there are dozens of complementary and integrative therapies that research has shown can enhance chemotherapy and radiation and/or can kill MM. Foods, supplements and lifestyle therapies such as whole-body hyperthermia can kill MM as well as help us keep us MM survivors strong before, during and after therapy…
“What is multiple myeloma? In my experience the standard-of-care approach for multiple myeloma patients is misleading. Considering only FDA approved MM therapies represents short-term thinking. Newly diagnosed multiple myeloma patients are put at a huge disadvantage if they think short-term.
In my experience, MM is a blood cancer that combines potentially life-threatening symptoms and a series of life-threatening side effects. All at the same time. Let me explain.
The most common MM symptoms are:
The most common side effects/complications caused by MM therapies are:
The most common causes of death for multiple myeloma survivors are: