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Marfan Syndrome Aortic Root Dilation

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On Wednesday May 8, a Cleveland Clinic doctor told me that I have Marfan’s Syndrome. While I certainly exhibit Marfan symptoms, and while MS certainly runs through my family, I have to admit that I consider myself to be mild when it comes to the people I read about in Marfan’s Syndrome FB groups.

In fact, my real problem with the above diagnosis is that I am a long-term cancer survivor. Aggressive chemotherapy and radiation therapy barely touched my blood cancer and left me with a series of short, long-term and late stage side effects.

None of the MS like symptoms referred to above, appeared until after several years of aggressive cancer therapies. Though I am not precluding MS at all, I am simply wondering how my myriad long-term side effects square with my MS symptoms.


What are the typical symptoms of Marfan Syndrome?

  1. Skeletal abnormalities: People with Marfan syndrome often have long limbs, fingers, and toes. They may also have a tall and thin stature, curved spine (scoliosis), and a protruding or sunken chest.
  2. Joint hypermobility: Individuals with Marfan syndrome may have joints that are more flexible than normal, which can lead to joint pain, dislocations, or early onset of osteoarthritis.
  3. Cardiovascular issues: Marfan syndrome can affect the structure of the heart and blood vessels, leading to conditions such as aortic enlargement or aneurysm, mitral valve prolapse, and other heart valve abnormalities. These can increase the risk of aortic dissection or rupture, which can be life-threatening.
  4. Ocular complications: Marfan syndrome can cause problems with the eyes, such as nearsightedness (myopia), dislocated lenses, and an increased risk of retinal detachment.
  5. Respiratory issues: Some individuals with Marfan syndrome may experience breathing difficulties due to lung abnormalities or the compression of lung tissue by a severely curved spine.
  6. Stretch marks: Stretch marks (striae) may develop on the skin, particularly in areas that undergo rapid growth during adolescence, such as the back, hips, and shoulders.
  7. Dural ectasia: This is a condition where the membrane surrounding the spinal cord and brain becomes weakened and expands, causing symptoms such as back pain and headaches.

Or I should say, how therapies for my side effects affect therapies for my MS symptoms.

The study linked and excerpted below, outlines “a holistic approach” to managing aortic root dilation. One of my many heart issues. Cardiotoxic chemo can also cause a host of heart problems. 

Fortunately, I am already undergoing many of the holistic approach therapies listed in the article including:

man hand holding his nutritional supplemets, healthy lifestyle background.

  1. Acupuncture 
  2. Phytotherapeutics
  3. Heart healthy nutrition and supplementation

This is the first of many blog posts where I research and write about both conventional and evidence-based non-conventional therapies for both MS symptoms as well as my cancer therapy-induced side effects.

Have you been diagnosed with Marfan Syndrome? Or are you a cancer survivor grappling with treatment-related side effects? If you’s like to discuss conventional or non-conventional therapies email me at David.PeopleBeatingCancer@gmail.com

Hang in there,

David Emerson

  • Cancer Survivor
  • Cancer Coach
  • Director PeopleBeatingCancer

A HOLISTIC APPROACH IN DILATATION OF AORTIC ROOT: A CASE REPORT

“The aortic root characterizes the flowing field from the left ventricle, where its display is a connection between the left ventricle and the ascending aorta. Aortic root diameter is influenced by some factors, and its dilation can cause many symptoms in patients. The purpose of the present case report was to describe the outcomes of the holistic treatment approach, which is called the Remember Regeneration Therapy Method (RTM) protocol, with emphasis on phytotherapy and complementary alternative medicine (CAM) for a patient with aortic dilation.

Case Presentation: A 53-year-old male patient attended the special CAM therapy clinic due to headache, anxiety, tachycardia and stress. As the echocardiographic evaluation of the aorta is a routine part of the standard echocardiographic examination is well-known, his echocardiography was compatible with the aorta’s dilatation. Following the RTM protocol, the patient exhibited an improvement in his clinical outcome capacity (the diameter of the aorta’s root: from 43 mm to 30 mm, a decrease of symptoms such as headache, anxiety, tachycardia, and stress) after 27-months of progress. Conclusion: We conclude that based on the fast cardiological impairment, the RTM protocol was indicated, which achieved favorable outcomes after this patient’s follow-up…

Aortic root diameter is prejudiced by determinants such as gender, age, body size, and blood pressure [2]. It is well-known that arterial wall rigidity rises with age, related to variations in aortic geometry [3]. Addi- tionally, the engagement of various molecular ways in cardiac aging is rising, even if their character is well-discovered and agreed upon [4]..

There are inadequate choices for treat- ing thoracic aortic aneurysms even though surgical repair has been enhanced [5]…

In October 2016, in his cardiological evaluation, severe left ventricular hypertrophy dilated the aortic root (the diameter of the root of the aorta: 43 mm) and ascend- ing aorta, mild mitral & aortic valve failure, dilated left atrium were detected with transthoracic echocardiography examination (TTE)…

In January 2019, in his cardiological evaluation, the diame- ter of the aortic root, 30 mm, normal mitral and aortic valve, was detected with TTE. No failure of mitral & aortic was also observed.

After 27 months, his symptoms such as headache, tachycar- dia, anxiety, stress, and breathing disorder during sleep returned to normal status or disappeared. He expressed that he felt much better than before…

Dilatation of the aortic root with and without aortic insuf- ficiency is usually produced by anomalies of the aortic wall’s connective tissue…

Accessible information recommends that the upper limit of healthy individuals’ aortic dimensions does not surpass 40 mm…

Conclusion- A special holistic approach with RTM protocol yielded the per- fect improvement of dilatation of aortic root and provided better- quality cardiac function and symptoms in patients in a short time without side effects. This appropriate effect of the RTM protocol could be related to its epigenetic changes and adjustments.

The RTM protocol may offer a potentially effective and relatively safe approach to retard the progression of cardiac problems and their symptoms, particularly in dilatation of aortic root patients, as an alternative therapy modality.”

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