MGUS – Nerve Pain

Hi Tyrone-

It depends on what you mean by help. Nerve pain is a common symptom of MGUS. Monoclonal proteins can cause several types of problems including tingling and pain. There are few therapies shown to be 100% effective. Some work, some of the time.

The next issue is if your diagnostic info indicates any other symptoms of MGUS. Kidney, bone health, etc.

The third issue is to figure out your risk of progression. Again, this is done with diagnostic info.

Lastly, you can undergo non-conventional therapies shown to reduce your risk of progression- for example curcumin.

Let me know if you have any questions.

David Emerson

The next

Hi Russell-

I am sorry to learn of your PN. Nerve pain is a common symptom of MGUS. Conventional oncology has difficulty diagnosing this symptom because the standard reply about MGUS is that it is asymptomatic.

Possible therapies include vitamin D supplementation, CBD oil, alpha lipoic acid, frequent, moderate exercise, others.

Let me know if you have any questions.

Hang in there,

David Emerson

Hi Michael-

I am sorry for all of it- your MGUS, nerve pain, frustration with conventional medicine, all of it. Several issues to consider. As a general comment, much of my info results from research, some from my personal experience, some from anecdotal info from various online groups.

First and foremost, all stages of pre-myeloma (SPB, MGUS and SMM) are considered by conventional oncology to be “blood disorders” and not cancer. Therefore little research and no therapies are provided by conventional oncology.

Secondly, since the beginning of covid vaccinations, a relatively small group of both myeloma and pre-myeloma (mgus, smm) patients have talked about a vaccination causing increases in either immunoglobulins (IGG,IGA, IGM) or Freelight chains (kappa, lambda). The anecdotal relationship between vaccines and blood markers has been occasional and has returned to baseline- at least according to various people.

Thirdly, there is a documented relationship between MGUS and nerve pain. As you know, MGUS is said to be “asymptomatic.” But many pre-mm patients experience a variety of symptoms- regardless of vaccination status.

I know of no formal or anecdotal relationship between vaccinations and nerve pain. As I discuss above, I know of vaccinations and possible increases in blood markers and I know of a connection between MGUS and nerve pain but no documented or anecdotal relationship between vaccination and nerve pain.

Just because I cannot establish any relationship here does not mean that no relationship exists. I’m simply trying to reply to your question methodically.

There are a number of therapies shown to reduce and or eliminate nerve pain- at least for the side effect called Chemotherapy-induced peripheral neuropathy aka CIPN. As you know, gabapentin is the therapy prescribed by conventional oncology.

If you would like to learn more about non-conventional nerve pain therapies we can do so during your consultation.

David Emerson

Hi Michael-

I was able to research your issues and write a post replying to your issues-

https://peoplebeatingcancer.org/covid-vaccination-nerve-pain-
mgus/

David Emerson

Hi Terri-

I am sorry to read of your MGUS diagnosis. It sounds as though you are low risk and stable at this time. All good. Do you have any symptoms such as bone or nerve pain? Does everything feel AOK with you?

David Emerson

Hi Virginia-

Registering for the Pre-MM CC Program-Course and Consultation is an important first step in managing your health challenges. Please reply to my email asking about your:

goals,
symptoms,
any therapies that you have had
any questions you have

I will ask you to send me your latest diagnostic testing results such as your Complete Blood Count, Metabolic panel, Freelight chain assay, SPEP, Bone Marrow Biopsy, FISH analysis, etc.

I sent that email to you yesterday. Let me know, thanks.

David Emerson

Hi Mark,

MGUS is difficult to diagnose and conventional oncology considers MGUS to be asymptotic and a blood disorder, not cancer. You can reduce your risks of a full-blown MM diagnosis with evidence-based but non-toxic therapies in the pre-MM program.

https://peoplebeatingcancer.org/product-category/pre-myeloma/

Let me know if you have any questions.

David Emerson

Hi Sheila,

I am sorry to read about your MGUS diagnosis. Keep in mind that many people live with this form of “blood disorder” for years without knowing it and die of old age. Yes, MGUS can evolve into frank multiple myeloma but there are evidence-based, non-toxic therapies that reduce the risk of full-blown MM.

“The progression of m-protein” occurs only over time, based on how often you have blood work done. Regarding your desire to live a “toxic free life,” you can do this and reduce your risk of progressing to MM. The “pre-MM” program is a series of evidence-based therapies that reduce your risk of MM. The program is inexpensive and easy to follow. I do/take each of the therapies myself and have for years.

The reason why MGUS or SMM patients don’t get guidance in this area is that MGUS is a blood disorder and not cancer. Drug companies invent therapies for cancers usually. Further, the studies that support these therapies are not clinical controlled studies.

Please click the link below to learn more- let me know if you have any question.

pre-myeloma cancer coaching products-

Let me know if you have any questions.

David Emerson
MM Survivor
Director PeopleBeatingCancer

Hi Paula-

Though MGUS is considered to be “asymptomatic” by conventional oncology, it often comes with well-documented symptoms such as nerve and bone pain. You are correct that if your numbers are okay you can remain in pre-MM but your quality of life suffers. To answer your question, yes, your pain is related to MGUS.

David Emerson

Hi Simon-

You have been diagnosed with several possibly overlapping issues all of which may be contributing to your pain. I will address
as many possibilities as I can.

Re nerve pain and MGUS. As you know, MGUS is supposed to be asymptomatic aka you are supposed to have any nerve pain. However pain as a possible MGUS symptom is well documented. Further, nerve pain is well documented for fibromyalgia as well. Also as you probably know, conventional oncology considers MGUS to be a “blood disorder” and therefore can offer no therapies.

My experience is for pre-MM patients (single plasmacytoma, MGUS and SMM) to pursue evidence-based, non-toxic therapies. Several of the therapies I take as a long-term MM survivor overlap with supplements that I have read about helping fibromyagia- an example would be vitamin D3- I take this for bone health and balance and I will link a study below about fibromyalgia.

Please consider the pre- MM cancer coaching program. The information provided will has been shown to reduce your risk of progressing to MM and I have worked with MGUS patients who tell me that they have slowly reduced their m-spike.

Basic Pre-MM CC Program-

Treating Fibromyalgia Pain Naturally

Let me know if you have any questions. Hang in there,

David Emerson

Hi Heather-

I admit that I like to prove conventional oncology wrong- or at least I like to prove to them that they don’t have all the answers. Not having all the answers is the reason why PeopleBeatingCancer has a place in this word.

Living outside of the US may make you out of touch where MGUS is concerned. Let me know if you have any questions.

David Emerson

Hi Gene-

Several issues for you to consider. Based on your email my guess is that you have MGUS. This is a blood disorder, not cancer. Yes, mgus may progress to frank multiple myeloma but you are pre-MM. As you probably know, MGUS is usually asymptomatic. There are documented cases however, of PN, kidney involvement, etc.

To answer your question about anything more to do other than watch and wait, two things. I encourage you to ask your oncologist to confirm that you have no other MM symptoms. Yes, an m-spike of .03 is tiny. This is good. However, please have your kidney function tested, perhaps imaging studies to confirm no other “hot spots” and any other testing that your oncologist would do with frank MM.

Secondly I would consider evidence-based, non-conventional therapies shown to reduce the risk of MGUS progressing to full blown MM. I work with MGUS patients who have lowered their m-spike and I know of two pre-MM survivors who have been living with pre-MM for more than 15 years now.

Mary, one of the MGUS survivors, talked about severe nerve pain before she knew she had pre-MM.

I do not know if or how your food sensitivities might be affecting your pre-MM.

I will send you the link to the pre-myeloma cancer coaching package after I finish this reply. Let me know if you have any questions.

David Emerson