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[…] Monoclonal Gammopathy of Undetermined Significance (MGUS) Survivor Story- Mary Slocum […]Reply
I had MGus for many years but I didn’t know it was cancer , I had a high igg lambda test over 12 years ago , then Noone did anything I told my dr he did a pee test . Now 12 years later I start fracturing bones , I have myeloma , but not with all symptoms, no anemia , no high calcium. One night of kidney issue . I went from a 4000 protien level to to low in like 9 moths , no M spike any longer . I’m in remission by numbers but do have a slight active spot on my femour . I’m wondering if I’m going to go back to the MGUS stage , my dr said she’s never seen myeloma act like this . But the many fractures all in my thoratic really did me in .. I went for a second opinion I’m staying with this dr . They are talking stem cell transplant but I’m not sure I want that. I’m going to hopkins to talk to the transplant specialty Dr . Anyone ever go back to MGUS after active myeloma?Reply
WOW! Please tell us 1) Which non-toxic, cytotoxic/apoptotic supplements to take?
2) What are the foods that will starve multiple myeloma?
4) What are the detoxification therapies?
5) What are the Non-conventional bone health therapies?
6) How much Cannabis — CBD/THC oil we should be taking?
This is the best MGUS website!
Thank you and thank you for being alive.
Watch the free pre-MM webinar to learn more about pre-MM cancer coaching program.
Thank you for sharing; the stories and strength are encouraging.
It is clear to me that we are only beginning to map out MGUS and its place on a spectrum with MM.
My husband and I recognize my situation with MGUS, a small M spike of 0.8 Kappa light chain, to be quite symptomatic. My life is defined by illness, weakness, and extreme fatigue. Doctors view the MGUS as only a set of numbers to watch and do not correlate this plasma disorder with my general lack of wellness.
Much of my last four years has been spent in bed, fighting infections from simple skin irritation and boils to intense boughts of influenza. My body shut down thyroid and ovary function as the result of a “perfect storm” involving renal abcesses, infection, and kidney surgery in 2014; I have been recovering since. With the help of an endocrinologist I now benefit from HRT. I have yet to get my “feet under me.” The unreliability of this body prevents me from working and the outside world has fallen away.
I have always (married 24 yrs) grown as much of our food as possible and obtained the the rest locally, ensuring its organic wholeness. Our well trained children have continued to garden in my stead. The household still prepares meals from whole sources as much as possible. Nutrition and diet have never been questionable and work based leisure marked our days, making lifestyle healthy as well. My life was tied to the earth and changed with the seasons.
As I rest in bed, fever down for the moment, fighting the flu, I wonder where to start. How do I reinvent my life when I am so frequently helpless? I am not sure about what needs to change but my growing hopelessness reminds me to look for a way out.Reply
I am sorry to read of your health challenges. You sound knowledgable and reasonable. It is difficult for me to offer any ideas for “reinventing yourself” based on your description. It sounds like you are doing everything you can. Hang in there.
[…] state. Margaret of Margaret’s Corner and others have maintained their pre-MM state for years now. I think you will benefit from reading Mary Slocum’s story . Let me know if you have any questions. Hang in there, David […]Reply
Hallo I am 44 years old and just diagnosed with mgus please could you give me your best nutritional advice and supplemend recomendation to prevent its proggress to myeloma? Thank you!!!Reply
I am sorry to read of your MGUS diagnosis. As you can read from Mary Slocum’s story pre-MM can be managed for years with evidence-based but non-toxic nutrition, supplementation, bone health, etc. therapies. Please click the link below to register to watch the free webinar about the pre-MM program. This program will provide you with the specific therapies needed to remain pre-MM.
Wait for Pre- Multiple Myeloma to Progress or Try Non-Conventional Therapies?
Let me know if you have any questions. Thanks.
[…] MGUS Survivor Story […]Reply