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Diagnosed with SMM, SPB, or MGUS?

Learn how you can stall the development of full-blown Multiple Myeloma with evidence-based nutritional and supplementation therapies.

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Monoclonal Gammopathy of Undetermined Significance (MGUS) Survivor Story- Mary Slocum

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As you will read in Mary’s account, MGUS, a pre-myeloma stage, was not well-understood by oncology. Mary’s journey, in her own words, is written below.

Mary Slocum was one of the first e-patients I met online. The term “e-patients” hadn’t been coined yet. Mary, Margaret, Beth, Julius and I (and many others) were living with different stages of multiple myeloma (pre, stage 1,2,3) trying to learn more about multiple myeloma than what conventional oncology offered.

Monoclonal Gammopathy of Undermined Significance (MGUS) at a glance-

Monoclonal gammopathy of undetermined significance

“In 2003 I was having excruciating pains in my legs  and neuropathy. It was odd because sometimes there was no neuropathy other times it was bad. I was tested for a lot of things but finally diagnosed with fine nerve pain and the possibility my nerves were demyelinating.

Then a blood test revealed MGUS 0.04 IGG.  The Dr at the time told me nothing about an MM possibility and told me we would just watch and wait….He also said MGUS had no symptoms and that it had nothing to do with my pain. Then he referred me to an Oncologist and I had to wait 3 months for an appointment. During the 3 month wait I got the flu, returned to my GP who refused to see me stating “You have cancer. You need to see the cancer specialist” When I called the Oncologist he stated I did not have cancer and that my GP was wrong.

 I eventually got a different GP but the whole experience told me there wasn’t a lot known about MGUS. I set out to learn everything I could about MGUS, I learned about the MM connection and began my journey to enable my immune system to help heal me, slow the progression and improve my quality of life.

Eventually I would stop working because stress seemed to exacerbate my condition. I remembered that many of the women in my family had become severely fatigued after 50 years old and I looked for a genetic testing that provided me with the information that I have a reversal on my number 10 gene, a marker for POEMS, an immune system problem.

I searched MGUS, Immune Response, Neuropathy, MM, fibromyalgia, and  Chronic fatigue. I found the Galen Foundation and Margaret of “Margaret’s Corner” who advocated for Curcumin.

I looked for alternative therapies, things I could do to change my immune system. I read about Burzynski and others with theories outside western medicine.

I tried Macrobiotics and thought I loved really good food too much to die with lentils on my lips. But I went vegetarian for a while and I went Organic, increased my consumption of fruits and green veggies.

I read about hydrotherapy, bought a hot tub and cranked it up to 104 degrees and soaked every day and sometimes at night before bed.

I took supplements, some helped some didn’t. I trusted my body to get better if I found things that worked.

I saw a Naturopath, had more tests that diagnosed gluten intolerance and tested for yeasts found I had one that was near impossible to cure, took nystatin for 30 days and it came back. Eventually I would read Brownstein’s book Iodine…increase my iodine intake and the yeast would disappear.

I believe my research, my making this a job  improved my condition.

In 2015 my m-spike is now 1.04 IGG and I continue to take about 22 supplements a day-

  • 3 grams of Curcumin which I believe has helped slow the progression.
  • I’ve become a great gluten-free chef,
  • And the last time I saw my Oncologist he asked what I did to take such good care of myself. 8 years ago when I went to him I said I was starting a gluten-free diet and he rolled his eyes and said he doubted it would help. This time I told him my progress was because of the Curcumin and gluten-free eating , he said “ I’m gluten-free too.”

Today Doctors acknowledge that MGUS has symptoms, neuropathy in particular.
Find people you can share information. Find people who have held off MM like Margaret and David Emerson. Recognize you did something that got you here, whether it’s environment or genetics. Your job is to learn all you can about whatever is happening to you and trust your body, you’ve known it longer than your Doctor. Don’t be afraid to fire a doctor if they don’t support you in your journey, they don’t have to agree with you, just allow you to partner and work on your own.

From (an IGG M-spike of) 0.04 in 2003 to (an IGG M-spike of) 1.04 in 2015 I am doing OK.”

To learn more about the evidence-based protocols you can follow to prevent your Pre-Myeloma from becoming Multiple Myeloma, please watch the short video below:

Click here to get the FREE Pre-Myeloma Introduction Guide and follow along.

Click here to get the FREE Pre-Myeloma First Questions Guide.

Consider MGUS Therapies such as:

  1. non-toxic, cytotoxic/apoptotic supplements,
  2. foods that starve multiple myeloma
  3. evidence-based mind-body therapies,
  4. detoxification therapies,
  5. Non-conventional bone health therapies
  6. Cannabis/CBD/THC oil

David Emerson

  • MM Survivor
  • MM Cancer Coach
  • Director PeopleBeatingCancer

 

 

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