Learn how you can stall the development of full-blown Multiple Myeloma with evidence-based nutritional and supplementation therapies.
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Mary Slocum was the first MGUS survivor I met online. The term “e-patients” hadn’t been coined yet.
Mary, Margaret, Beth, Julius and I (and many others) were living with different stages of multiple myeloma (pre, stage 1,2,3) trying to learn more about multiple myeloma than what conventional oncology offered.
Monoclonal Gammopathy of Undermined Significance (MGUS) at a glance-
“In 2003 I was having excruciating pains in my legs and neuropathy. It was odd because sometimes there was no neuropathy other times it was bad. I was tested for a lot of things but finally diagnosed with fine nerve pain and the possibility my nerves were demyelinating.
Then a blood test revealed MGUS 0.04 IGG. The Dr at the time told me nothing about an MM possibility and told me we would just watch and wait….He also said MGUS had no symptoms and that it had nothing to do with my pain. Then he referred me to an Oncologist and I had to wait 3 months for an appointment. During the 3 month wait I got the flu, returned to my GP who refused to see me stating “You have cancer. You need to see the cancer specialist” When I called the Oncologist he stated I did not have cancer and that my GP was wrong.
Eventually I would stop working because stress seemed to exacerbate my condition. I remembered that many of the women in my family had become severely fatigued after 50 years old and I looked for a genetic testing that provided me with the information that I have a reversal on my number 10 gene, a marker for POEMS, an immune system problem.
I searched MGUS, Immune Response, Neuropathy, MM, fibromyalgia, and Chronic fatigue. I found the Galen Foundation (PeoplebBeatingCancer) and Margaret of “Margaret’s Corner“ who advocated for Curcumin.
I looked for alternative therapies, things I could do to change my immune system. I read about Burzynski and others with theories outside western medicine.
I tried Macrobiotics and thought I loved really good food too much to die with lentils on my lips. But I went vegetarian for a while and I went Organic, increased my consumption of fruits and green veggies.
I read about hydrotherapy, bought a hot tub and cranked it up to 104 degrees and soaked every day and sometimes at night before bed.
I took supplements, some helped some didn’t. I trusted my body to get better if I found things that worked.
I saw a Naturopath, had more tests that diagnosed gluten intolerance and tested for yeasts found I had one that was near impossible to cure, took nystatin for 30 days and it came back. Eventually I would read Brownstein’s book Iodine…increase my iodine intake and the yeast would disappear.
I believe my research, my making this a job improved my condition.
In 2015 my m-spike is now 1.04 IGG and I continue to take about 22 supplements a day-
Recognize you did something that got you here, whether it’s environment or genetics. Your job is to learn all you can about whatever is happening to you and trust your body, you’ve known it longer than your Doctor. Don’t be afraid to fire a doctor if they don’t support you in your journey, they don’t have to agree with you, just allow you to partner and work on your own.
From (an IGG M-spike of) 0.04 in 2003 to (an IGG M-spike of) 1.04 in 2015 I am doing OK.”
Consider MGUS Therapies such as:
Ed. Note as of 7/2023- my guess is that Mary Slocum had a form of monoclonal gammopathy alluded in the editorial linked and excerpted below. In other words, multiple myeloma was not Mary’s main problem. It was the damage done to her organs by the “malignant plasma cell clone.” Mary did the best she could with little or no help from conventional medicine.
“Monoclonal gammopathy of clinical significance (MGCS) is an umbrella term to describe a broad spectrum of disorders with remarkable organ dysfunctions related to the underlying non-malignant B or plasma cell clone.
Although the clone itself is typically very small, it is associated with diverse clinical manifestations through different mechanisms, such as monoclonal protein deposition, the biological activity of the monoclonal immunoglobulin, or angiogenic/inflammatory cytokine hyper-secretion (1, 2).
Some predominantly involve a single organ, commonly peripheral nerves, kidney, or skin, while others are systemic diseases with syndromic presentations.
Recognizing the clinical features with appropriate workups, in particular tissue biopsies, are the key to making a timely diagnosis, especially when the kidney or skin is affected. Treatment is often challenging and requires a multidisciplinary approach. In several conditions, immunomodulation with high-dose intravenous polyvalent immunoglobulin and/or clone-directed therapy are the best options with significant improvement of clinical symptoms and reversal of organ dysfunctions (1, 2)…”