Multiple Myeloma Cancer Coaching- Example of Q and A

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Multiple Myeloma Cancer Coaching is information and feedback from a long-term Myeloma Survivor. Your MM oncologist and I provide you with information, education and support-

The Q and A exchange below is a typical exchange between a MM CC client and myself. Ken is the MM patient Jenny is Ken’s caregiver.

I am both a long-term MM survivor and MM cancer coach. Please scroll down the page, post a question or comment and I will reply to you ASAP.

Thanks,

David Emerson

  • MM Survivor
  • MM Cancer Coach
  • Director PeopleBeatingCancer

Dear David,

Hope all well with you.

Ken’s blood testing on 23rd of May after being off all medication For 2 months were:

M-spike – 2.16
Kappa – 835
Lambda – 2.84
K/l ratio 294.01

The treatment we followed for a month was 2.6 mg Velcade (bortezomib)  once every week, dexamethason 40 mg every week, and pomalid 4mg X21 days 9 days off.

His markers now are:
M-spike – 1.16
Kappa – 407
Lambda – 5.1
K/L ratio – 79.8

Considering this we have reduced the pomalid to 2mg X 21 days, velcade 2mg either once a week or every alternate week , and decmax remains the same.
What do you think about this? Considering the pain due to the neoplasms is yet there.

The neoplasms that the biopsy revealed above the pelvic bone on Ken’s left side still cause some pain though compared to before treatment much less. On the day that he takes the decmax its disappears and comes back after 2 days.

Since September 2016 the Velcade has been administered to Ken subcutaneously in the stomach and always before and after the area is numbed with an ice pack, the pain starts from the left lower back and goes on to the stomach left side… I have been wondering if there is any relation at all between all this as it is all in the same part of the body.

We have also started some new supplements, which I wanted to discuss with you, kindly address these concerns of mine first.

Thanks as always
Warm Regards
Jenny
Sent from my iPhone


Hi Jenny-

All is well with me, thanks.
If I understand your email, Ken was off all medication for April and May and underwent more chemo though somewhat reduced doses. If this is correct and Ken’s blood levels have improved and his bone pain has improved overall I would say that Ken is trending in the right direction.
I will be specific below.
1) Re the specific numbers- If I read the results above correctly, Ken’s m-spike, Kappa and K/L ratio have all gone down. If Ken’s MM responded this well after a chemo “vacation” I would say this is good news. My impression from your email is that you are a bit concerned (unhappy) with Ken’s bone pain but can’t complain as the bone pain is less than before.
2) Re subcutaneous Velcade injections. I don’t know if any side effects of Velcade that are similar in any way to what you describe.
Please give my best to Ken-
David Emerson
About

David Emerson is a 23 year Multiple Myeloma survivor. He started PeopleBeatingCancer.org as a non-profit in 2004 to help cancer survivors and caregivers navigate the vast world of cancer issues by providing evidence-based information on the most pressing cancer issues. Since 2004, David has impacted over 600,000 people through this website. He is in the process of developing cancer-specific coaching program, and also does one-on-one coaching via phone or email. Thank you for visiting!

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