Its possible Eric, if you had a single plasmacytoma, that you had pre-multiple myeloma, not frank multiple myeloma. Your diagnosis of multiple myeloma was inaccurate. You may have been over-diagnosed and over-treated.
Hello David- I received a multiple myeloma diagnosis (plasmacytoma in my L1) in late 2014, and underwent radiation and “mild” chemo. I have been in remission for about a year, and want to stay there and MM free. I am interested in learning more about the supplements you recommend and the dosages.
Thanks,
Eric
Hi Eric-
Was your plasmacytoma a “single” plasmacytoma? I ask only because I too presented with a single plasmacytoma in my C5 when I was first diagnosed with MM. Did you have any other diagnostic testing done such as blood work or a bone biopsy?
Its possible Eric, if you had a single plasmacytoma, that you had pre-multiple myeloma, not frank multiple myeloma. Your diagnosis of multiple myeloma was inaccurate. You may have been over-diagnosed and over-treated.
In any case, assuming that your original MM diagnosis was early stage, you have a good chance of remaining in complete remission for a long time. There are many supplements that have evidence-based anti-MM action. Further, I encourage you to learn about and pursue anti-angiogenic nutrition. Lastly, there are anti-MM lifestyle therapies, also evidence-based, that further reduce your risk of a MM relapse.
Please consider registering on PeopleBeatingCancerCoaching.org in order to learn about those many therapies that studies have shown reduce your risk of MM relapse.
Let me know if you have any questions.
thanks,
David Emerson
- MM Survivor
- MM Coach
- Director PeopleBeatingCancer
David,
Thanks for your reply. Yes, it was a single plasmacytoma. I’ve had a bone marrow biopsy and more blood tests than I can count. I’m in the phase where I have a blood test every 3 months to make sure I’m in remission.
My big questions are what are the fees used for, and why are they so high?
Thanks,
Eric
Hi Eric-
A single plasmacytoma indicates that your MM is at an early stage.
The Galen Foundation DBA PeopleBeatingCancer is a 501c3 non profit organization. The nonprofit is supported by individual and corporate donations as well as grants. The revenue generated through cancer coaching adds to the support of PBC. PBC is a virtual non-profit. We don’t have an office or staff. The assistant director and I work from our homes. The AD is a paid part time employee. I don’t get paid. PBC’s programming is the research and support of cancer patients, survivors and caregivers.
In addition to cancer coaching, PBC manages two websites, eleven Facebook pages, one twitter account and I moderate several forums. Managing these internet properties entails the research and posting of personal experience combined with cancer content.
The fees charged by PBC are pretty reasonable compared to other internet-based cancer coaching outlets. I think I have more experience that all of them but that is a subjective issue. I’m biased obviously.
A search for “cancer coaching” will provide a list of individuals and organizations all that are more expensive than PBCC-
cancer coaching–
Last but not least Eric, and you didn’t ask this but I am a 25+ year survivor of MM. As you know that is unheard of in the world of MM. I have skin in the game as they say. I have been in complete remission since 4/99. I undergo the therapies I do because of years of research.
Also, your membership fees are tax deductible. None of the other cancer coaches can say that as they are all for profit organizations.
I can provide you with many non-toxic, evidence-based therapies that either are cytotoxic to MM and or reduce your risk of relapse. I can provide you with evidence-based antioxidant supplementation that works integratively with chemo and radiation should you ever need it.
It’s up to you Eric but I think I can help you a lot.
Let me know if you have any other questions.
David Emerson
- MM Survivor
- MM Coach
- Director PeopleBeatingCancer
“I launched PeopleBeatingCancer because 4 years of aggressive conventional cancer therapies brought remission, relapse, remission, relapse and “there’s nothing more we can do for you.” That was from 2/94-9/97. More than 3 years of pain, organ damage, tens of 000’s of $, resulted in failure and end-stage MM.
I then underwent an evidence-based, non-conventional therapy called antineoplaston therapy (ANP) from 11/94-4/99 when I reached complete remission aka cancer-free status from my painful end-stage MM.
In the ensuing years after my complete remission from my incurable cancer I decided that MM patients, survivors and caregivers needed more than just the conventional oncological view of multiple myeloma.
When I received 501c3 approval and non-profit status from the IRS I launched PeopleBeatingCancer in June of 2004.
Annual tax returns document modest fundraising and donor support from 2004-2015. These tax returns document expenses including, one employee (AD working almost full-time), web hosting, programming, graphic design, fundraising expenses, etc…”