Recently Diagnosed or Relapsed? Stop Looking For a Miracle Cure, and Use Evidence-Based Therapies To Enhance Your Treatment and Prolong Your Remission
Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
Click the orange button to the right to learn more about what you can start doing today.
The challenge all newly diagnosed MM patients face is understanding their diagnosis in order to make the best decisions they can for them in the days, weeks, months and and years to come.
The newly diagnosed MM patient faces big questions (cure vs. control?) and small questions (MM specialists?)- knowing the big and small information about MM is important to you. Scroll to the bottom of the page to read 6 key MM questions and answers.
Your oncologist has probably told you that myeloma is incurable but very treatable. You may be wondering what “very treatable” means. Yes, there is a long and growing list of FDA approved chemotherapy regimens for MM. It is important to know that induction chemotherapy cocktails such as RVD (revlimid, velcade, dexamethasone) will put you into remission.
But if you want to know about the evidence-based, non-toxic, anti-MM therapies that have kept me in complete remission from my MM since 1999, read on.
Multiple myeloma, also known as plasma cell myeloma, is a cancer of plasma cells, a type of white blood cell normally responsible for producing antibodies.[1] Initially, there are often no symptoms. When advanced, bone pain, bleeding, frequent infections, and anemia may occur.[2]
Multiple Myeloma patients and survivors usually don’t die from their cancer. They die from health problems caused by their cancer such as bone damage and/or from the toxicity caused by chemotherapy and radiation.
The solution? Take an integrative approach to managing your multiple myeloma. Enhance the efficacy of chemotherapy and while you reduce the toxicity.
What have I learned about MM over the past 20+ years? Myeloma is about two things:
Whether you are debating treatment options, currently undergoing treatment and experiencing painful side effects, or trying to figure out how to stay in remission, evidence-based therapies are the key.
Multiple Myeloma Diagnosis- Myeloma Specialist? Induction Therapy- MRD, sCR, CR, VGPR, PR, R? ASCT now or later? Maintenance Therapy? Non-toxic MM therapies?
The more I learn about my cancer, multiple myeloma (MM), the more I feel in control. I guess I am never fully in control of an incurable blood cancer but I feel I have some control anyway. The key to understanding a multiple myeloma diagnosis is asking the right questions.
In fact, when I wrote an ebook about MM I titled it Beating Myeloma- If I Knew Then What I Know Now. I wasn’t trying to be clever with that title. I made more bad decisions that good ones in my first years as a MM patient. I know it’s Monday morning quarterbacking but I do think I would have made MUCH better decisions if I knew then what I know now.
It is not an exaggeration to say that I am lucky to be alive.
Does it matter if I have a myeloma specialist or a general oncologist to help me manage my MM?Studies document the fact that newly diagnosed myeloma patients live, on average, much longer if they work with a MM specialist. If they have an ASCT, their overall survival or length of life, on average, will be longer when receiving treatment from cancer hospital that performs many ASCT’s annually.
I’ve had several rounds of induction chemotherapy. Does it matter if I have not reached complete remission?S. Vincent Rajkumar, M.D., myeloma specialist at the Mayo Clinic in Rochester, Minnesota authored a brilliant article on that very question.
Should I have an autologous stem cell transplant (ASCT) or not?There is no one size fits all answer to that question according to Dr. Rajkumar. “Stem cell transplantation is one of several available treatment options and the decision to undergo the procedure should be based on the specific needs of the patient.”
Do antioxidants hurt or help before, during or after chemotherapy?This is both a controversial topic and a topic that is near and dear to my own MM experience. I have remained in complete remission since 1999 and supplement with numerous evidence-based, anti-MM antioxidants. Further, there are many studies that confirm that cancer patients live better, longer lives by supplementing with antioxidants.
I don’t want to undergo much if any chemotherapy for my MM. Are there evidence-based, non-toxic, anti-MM therapies? Yes. As I mentioned above, I have remained in complete remission from my MM since ’99 by living an evidence-based, non-toxic, anti-MM lifestyle through nutrition, supplementation, bone health, lifestyle and mind-body therapies. Again, all supported by research.
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Following my original diagnosis of MM in ’94 I underwent induction therapy (VAD) and an autologous stem cell transplant. I achieved partial remission, relapsed, remission, and then relapsed again. All this from 2/94-9/97. No I don’t believe that chemotherapy helped control my MM.
Have you been diagnosed with MM? If so, what stage?
I have mm now for almost 2years.
My light chane markers are between
3 and 6, which is wonderfu. I am on a experimental program at University Hospital in Cleveland.
I feel lost. I would love to talk to some one.
Are you Bob’s brother? My mom has been hounding your brother for years now to get you to contact me. If I read your email you are currently in remission. Excellent. Yes, let’s talk. I will email you separately.
