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The role of your oncologist in the life of a newly diagnosed myeloma patient is important. From the time he/she delivers the news, “you have a blood cancer called multiple myeloma,” to explaining therapies, side effects, diagnostic tests, and more, you must rely on your oncologist for accurate, fair, honest information about your health. You must know what to expect, know what not to expect and who else to have on your cancer team.
Your oncologist may use words and phrases that are confusing. Chemo Triplets are more effective than doublets as induction therapy... Dose reduction may prevent side effects…Progression-free survival versus Overall survival…
Knowledge is Power, especially with complicated cancer like multiple myeloma. I know. I am a long-term myeloma survivor and myeloma cancer coach.
I’ve learned both from personal experience as well as years of cancer coaching that:
Do you like your oncologist? Do you have any questions about your last appointment? Please scroll down to the bottom of the page, post a question or a comment and I will reply to you ASAP.
Hang in there,
“Quality cancer care requires addressing patients’ emotions, which oncologists infrequently do. Multiday courses can teach oncologists skills to handle emotion; however, such workshops are long and costly…
OBJECTIVE: To test whether a brief, computerized intervention improves oncologist responses to patient expressions of negative emotion…
PARTICIPANTS:48 medical, gynecologic, and radiation oncologists and 264 patients with advanced cancer….
RESULTS: Oncologists in the intervention group used more empathic statements (relative risk, 1.9 [95% CI, 1.1 to 3.3]; P = 0.024) and were more likely to respond to negative emotions empathically (odds ratio, 2.1 [CI, 1.1 to 4.2]; P = 0.028) than control oncologists. Patients of intervention oncologists reported greater trust in their oncologists than did patients of control oncologists (estimated mean difference, 0.1 [CI, 0.0 to 0.2]; P = 0.036). There was no significant difference in perceptions of communication skills…
CONCLUSION: A brief computerized intervention improves how oncologists respond to patients’ expressions of negative emotions.”
“A cancer clinical trial is a medical research study in which people participate as volunteers to test new methods of prevention, screening, diagnosis, or treatment of a disease. A cancer clinical trial can also be referred to as a cancer clinical study…”
“Perhaps no specialty deals with having to break the bad news to patients more than oncology. One study estimated an oncologist breaks bad news as many as 20,000 times over a career. Patient and family reactions can run the gamut from extreme sadness and weep to shock and disbelief to anger. Some doctors tell of patients—or more frequently their family members—punching walls, yelling at them or even threatening to shoot them, in extreme cases.”
“What patients seek is not scientific knowledge doctors hide, but existential authenticity each must find on her own. Getting too deep into statistics is like trying to quench a thirst with salty water. The angst of facing mortality has no remedy in probability…”
There are a growing number of oncs who understand the cost of cancer care- find one!
“This debate is past due. Some physicians insist that medical professionalism means a focus on patient outcomes without considerations of cost. But oncologists have been reminded that the potential for “financial toxicity” exists in all our clinical decisions.
Patients are not served by adding expense for the expectation of little clinical benefit. In addition, high costs cause treatment non-adherence, worsening outcomes.”