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Recently Diagnosed or Relapsed? Stop Looking For a Miracle Cure, and Use Evidence-Based Therapies To Enhance Your Treatment and Prolong Your Remission

Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.

Click the orange button to the right to learn more about what you can start doing today.

Multiple Myeloma Diagnosis- Oncologists vs. Patients

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A multiple myeloma diagnosis is difficult. Oncologists are critical to your MM experience but oncologists are human. Learn to manage your relationship with oncology…

The role of oncologist in the life of a newly diagnosed myeloma patient is important. From the time he/she delivers the news, “you have a blood cancer called multiple myeloma,” to explaining therapies, side effects, diagnostic tests, and more, you must rely on your oncologist for accurate, fair, honest information about your health. You must know what to expect, know what not to expect and who else to have on your cancer team.

 

Your oncologist may use words and phrases that are confusing. Chemo Triplets are more effective than doublets as induction therapy... Dose reduction may prevent side effects…Progression-free survival versus Overall survival

Knowledge is Power, especially with complicated cancer like multiple myeloma. I know. I am a long-term myeloma survivor and myeloma cancer coach.

I’ve learned both from personal experience as well as years of cancer coaching that:

Do you like your oncologist? Do you have any questions about your last appointment? Please scroll down to the bottom of the page, post a question or a comment and I will reply to you ASAP.

Hang in there,

David Emerson

  • Multiple Myeloma Survivor,
  • MM Cancer Coach,
  • Director PeopleBeatingCancer

Recommended Reading:



Enhancing communication between oncologists and patients with a computer-based training program: a randomized trial.

“Quality cancer care requires addressing patients’ emotions, which oncologists infrequently do. Multiday courses can teach oncologists skills to handle emotion; however, such workshops are long and costly…

OBJECTIVE: To test whether a brief, computerized intervention improves oncologist responses to patient expressions of negative emotion…

PARTICIPANTS:48 medical, gynecologic, and radiation oncologists and 264 patients with advanced cancer….

RESULTS: Oncologists in the intervention group used more empathic statements (relative risk, 1.9 [95% CI, 1.1 to 3.3]; P = 0.024) and were more likely to respond to negative emotions empathically (odds ratio, 2.1 [CI, 1.1 to 4.2]; P = 0.028) than control oncologists. Patients of intervention oncologists reported greater trust in their oncologists than did patients of control oncologists (estimated mean difference, 0.1 [CI, 0.0 to 0.2]; P = 0.036). There was no significant difference in perceptions of communication skills…

CONCLUSION: A brief computerized intervention improves how oncologists respond to patients’ expressions of negative emotions.”

Learn About Cancer Clinical Trials

“A cancer clinical trial is a medical research study in which people participate as volunteers to test new methods of prevention, screening, diagnosis, or treatment of a disease. A cancer clinical trial can also be referred to as a cancer clinical study…”

How Doctors Deliver Bad News

“Perhaps no specialty deals with having to break the bad news to patients more than oncology. One study estimated an oncologist breaks bad news as many as 20,000 times over a career. Patient and family reactions can run the gamut from extreme sadness and weep to shock and disbelief to anger. Some doctors tell of patients—or more frequently their family members—punching walls, yelling at them or even threatening to shoot them, in extreme cases.”

How Long Have I Got Left?

“What patients seek is not scientific knowledge doctors hide, but existential authenticity each must find on her own. Getting too deep into statistics is like trying to quench a thirst with salty water. The angst of facing mortality has no remedy in probability…”

Should Doctors Care About Cost?

There are a growing number of oncs who understand the cost of cancer care- find one!

“This debate is past due. Some physicians insist that medical professionalism means a focus on patient outcomes without considerations of cost. But oncologists have been reminded that the potential for “financial toxicity” exists in all our clinical decisions.

Patients are not served by adding expense for the expectation of little clinical benefit. In addition, high costs cause treatment non-adherence, worsening outcomes.”

Leave a Comment:

11 comments
PeopleBeatingCancer demystifies Multiple Myeloma- PeopleBeatingCancer says a couple of years ago

[…] The Oncologist-Patient Relationship-Multiple Myeloma Cancer Coaching […]

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[…] The Oncologist-Patient Relationship-Multiple Myeloma Cancer Coaching […]

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PeopleBeatingCancer demystifies cancer offering positive outlook- PeopleBeatingCancer says 4 years ago

[…] The Oncologist-Patient Relationship-Multiple Myeloma Cancer Coaching […]

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Physical Activity and Brain Games Heal Chemobrain - PeopleBeatingCancer says 4 years ago

[…] The Oncologist-Patient Relationship-Multiple Myeloma Cancer Coaching […]

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marjorie says 5 years ago

Can ca125 rise because of taking different antioxidants? Am on alternative meds for ovarian cancer.

Reply
marjorie says 5 years ago

Can antioxidants cause ca125 to go up.am on alternative meds for ovarian cancer.

Reply
    David Emerson says 5 years ago

    Hi Marjorie-

    I am sorry to read of your ovarian cancer diagnosis. I am a survivor and coach for a blood cancer called multiple myeloma. I am not qualified to answer questions about CA 125 diagnostic testing.

    I am sorry that I can be more help.

    David Emerson

    Reply
Cure Your Cancer- "If I knew then what I know now. says 6 years ago

[…] The Doctor-Patient Relationship- Chances are you will be talking to your onc about a lot of personal and intense issues. You need to find an oncologist who you trust. With your life… […]

Reply
If I knew then what I know now. says 6 years ago

[…] The Doctor-Patient Relationship- Chances are you will be talking to your onc about a lot of personal and intense issues. You need to find an oncologist who you trust. With your life… […]

Reply
Barbara baum says 6 years ago

I just recently finished up with treatments for cervical cancer in February. In June a CA125 blood test was taken and it showed a number of 34 which they said was a little high. The norm should be 22. They said it might have to do with the treatments I received. I took another CA125 test on 9/14 and was just told the count is now at 70. Should I be worried?

Reply
    David Emerson says 6 years ago

    Hi Barbara-

    I’m sorry to read of your cervical cancer. Regarding your question “. I took another CA125 test on 9/14 and was just told the count is now at 70. Should I be worried?” as you probably know, you have several things to consider. I will highlight several and you should also get feedback from your Onc.

    Based on the Medscape article linked below, 35, depending on the unit of measurement, may be normal. But a CA125 test that is increasing is not good. Keep in mind however that several things can trigger the CA125 antigen. Please read “Conditions other than cancer that can cause high CA-125 values include:” below. Yes, the treatments you received can cause an increase in the CA125 antigen.

    As you probably already have figured, you have pros and cons to consider. I would not advocate getting too worried but I would take action.

    Whether your CA125 is increasing or decreasing, I think that learning about and considering those non-conventional therapies that have been shown to decrease or fight cervical cancer makes sense for you. There antioxidant and polyphenol supplements that have been shown to fight cervical cancer.

    If you are interested I can provide studies to support the efficacy of these supplements.

    Cancer antigen 125 normal values 1
    Normal:
    Less than 35 units per milliliter (U/mL)

    Less than 35 kiloUnits per liter (kU/L) (SI units)

    High values

    Conditions other than cancer that can cause high CA-125 values include:
    Pelvic inflammatory disease (PID).
    Endometriosis.
    Uterine fibroids.
    Liver disease (such as hepatitis or cirrhosis).
    Pancreatitis.
    The first trimester of pregnancy.
    Certain times during the menstrual cycle.
    Lupus.

    Let me know how you want to proceed.

    David Emerson

    Reply
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