Multiple Myeloma Explained

The single most important thing about MM is that conventional oncology considers MM to be incurable. If you pursue conventional oncologic therapies exclusively, you will probably relapse multiple times until your onc. tells you that “we can do nothing more for you.”

The problem with the usual “Multiple Myeloma Explained” scenario given by conventional oncology is me or my life as a MM survivor. I have lived in complete remission since 1999.

I underwent an autologous stem cell transplant (ASCT) in 12/95, went into remission twice, relapsed twice and was told “there is nothing more we can do for you.” I underwent a “quack” cancer therapy, reached remission and have remained in complete remission by living an evidence-based anti-MM lifestyle.

My point is that when your oncologist tells you that myeloma is incurable, he or she doesn’t talk about evidence-based but non-toxic, non-conventional therapies.

The conventional Multiple Myeloma Explained is about:

I don’t mean to sound harsh when I explain that conventional myeloma treatment is a foregone conclusion. I have known dozens of MM patients and survivors over the years and each has gone through 1-7 above. The progression may take 1-3 years or it may take ten years. But the result is always the same.

I am both a long-term MM survivor and MM cancer coach. Needless to say…I take a somewhat contrarian view to multiple myeloma compared to the average hematologist/oncologist. I have researched and created a MM Cancer Coaching program based on what I do and why I do it.

Please watch the video below to learn more about the evidence-based, integrative therapies to combat treatment side effects and enhance your chemotherapy.

If you have been diagnosed with multiple myeloma regardless of the stage at diagnosis, please read Dr. Vincent Rajkumar’s essay-

Treatment of Myeloma: Cure vs Control

“Although not often openly acknowledged, “cure vs control” is the dominant philosophical difference behind many of the strategies, trials, and debates related to the management of myeloma. Should we treat patients with myeloma with multidrug, multitransplant combinations with the goal of potentially curing a subset of patients, recognizing that the risk of adverse events and effect on quality of life will be substantial? Or should we address myeloma as a chronic incurable condition with the goal of disease control, using the least toxic regimens, emphasizing a balance between efficacy and quality of life, and reserving more aggressive therapy for later?

To be sure, if cure were known to be possible (with a reasonable probability) in myeloma, it would undoubtedly be the preferred therapeutic goal of most patients and physicians. But this is not the case. Myeloma is generally not considered a curable disease…”

Please understand that the FDA approved MM “Standard-of-Care” therapy plan consisting of induction therapy, an autologous stem cell transplant followed by maintenance therapy is what is referred to as “one size fits all.” Meaning, this therapy plan is effective at putting stage 2 and 3 NDMM patients in remission but is much too much toxicity for anyone not in stage 2 or 3.

Learn about the pros and cons of conventional MM therapy. Consider what therapies are best for you in your specific situation.

Thanks and hang in there,

David Emerson

MM Survivor
Cancer Coach
Director PeopleBeatingCancer

What Is Multiple Myeloma?

“In multiple myeloma, a type of white blood cell called a plasma cell multiplies unusually. Normally, they make antibodies that help fight infections. But in multiple myeloma, they release too much protein (called immunoglobulin) into the bones and blood. It builds up throughout the body, causing organ damage.

The plasma cells also crowd normal blood cells in the bone. They release chemicals that dissolve bone. The weak areas of bone created by this are called lytic lesions.

As multiple myeloma gets worse, those plasma cells begin to spill out of the bone marrow and spread through the body. This causes more organ damage…”

Symptoms

“Early on, multiple myeloma may cause no symptoms. As time passes, you may have:

Bone pain
Weakness and fatigue
Weight loss”

Diagnosis

“Your doctor may test you for multiple myeloma if a blood test reveals:

Too much calcium in your blood (your doctor may call it “hypercalcemia”)
Anemia (too few red blood cells)
Kidney problems
High protein levels in your blood combined with a low albumin level (your doctor may say you have a “globulin gap”)

If your doctor thinks you have multiple myeloma, he’ll test your blood, urine, and bones. Some tests he may order include:

Electrophoresis, which measures immunoglobulins (something your body makes when it’s fighting something)
Blood urea nitrogen, also known as BUN, and creatinine — to check how well your kidneys are working
A CBC, which stands for complete blood count, which measures and counts the cells in your blood“

Clinical Trials for the RR/MM Survivor- Yes or No? - PeopleBeatingCancer says 8 months ago

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Multiple Myeloma Side Effects- Revlimid Risks Blood Clot Despite Blood Thinners - PeopleBeatingCancer says last year

Eydie says last year

My mother suffered starvation and dehydration up to the end from once a vibrant woman to 60+ lb bones and skin due to chemo that destroyed her body. Her drs lied to her telling her chemo was her only chance of surviving MM. Both of us with Sjogren’s Syndrome is common to develop MM. My labs showed I had MM cancer ratio cells in blood…not active.

I looked all the books she had on how to cure cancer. The were full of foods that were high in Omega 6’s, high carbohydrates, high glycemic, mycotoxins, and dairy. ALL THAT FEEDS CANCER.

After 4+ years being on a strict plant based diet, my lab results for liver, inflamation, AI, etc. did not improve but had gotten worse and did not improve…I also suffer from numerous health and organ issues. Being sick and weak, I had to re-evaluate my diet and food I was eating as strict plant based diet wasn’t helping me.

Long story short, I changed my diet to a low carbohydrates healthy diet, eating 4 oz of grass fed/finished meats & organs high in omega 3’s (beef, chicken, fish, eggs, butter). Eliminated all starchy & high glycemic vegetables/roots to high omega 3’s green leafy and cruciferous vegetables. No high glycemic fruits except 1/4 cup of berries a day. ABSOLUTELY NO GRAINS IN ANY FORM Or PRODUCTS CONTAINING THEM. No nuts due to all contaminated with some form of mycotoxins. No high omega 6’s oils…EVO heated to 200 degrees becomes toxic. No dairy due to caseins. No sugars or artificial sweetners of any kind. I do make an excepion to a drop on raw unfiltered local honey a day…but no more due to high glycemic. Organic non-GMO.

I supplement with food based Vitamin C, D3, Zinc, toxin free Omega 3’s fish oil (sardines, anchovies, small fish), earth minerals, magnesium malate, potassium, choline, Grass fed/finish collagen
I & III taken separately from II & HA, probiotics? Multiples, MegaResveratrol (I don’t recommend brands but found these were the only true 99% trans-revseratol used in all universities, govt, and medical studies)….until I run out to see which ones I can eliminate that are not missed as eating right eliminates the need for supplements. In a few months from eating this way, I went from being bed ridden and weak to losing 70 lbs, full of energy, and able to see a future where before it wasn’t a possibility. I can not say this will work for you and hope you do research all the foods you eat that is contributing to your failed health to feel better. My goal is not to feed MM cancer cells to become active in my body and keep my immune system healthy. As far as Sjogrens Syndrome…it hasn’t gotten worse and hope it too goes into remission.

David Emerson says last year

Hi Eydie-

Thanks very much for your informative post. I agree that nutrition, supplementation, lifestyle, can affect cancer and chronic diseases dramatically.

Good luck.

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Multiple Myeloma Explained

The single most important thing about MM is that conventional oncology considers MM to be incurable. If you pursue conventional oncologic therapies exclusively, you will probably relapse multiple times until your onc. tells you that “we can do nothing more for you.”

Treatment of Myeloma: Cure vs Control

Recommended Reading:

What Is Multiple Myeloma?

Symptoms

Diagnosis

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