Myeloma- Intravenous Vitamin C Therapy

Upon diagnosis in 2020, I started HD IVC (50grams) taking it three times a week in addition to conventional MM protocol (VDd) followed by ASCT with maintenance therapy of Velcade for 2.5 years after ASCT.

I stopped taking the HD IVC in 2022, approximately 2 years after diagnosis. I continued with the Velcade maintenance every two weeks.

I was ultra high risk at diagnosis with t(4;14), p53 del, 13q del, 1q21 gain and extra medullary lesions.

Within 3 months I was in sCR

Recently, my Lambda light chains have been increasing. A new BMB shows 20% plasma cells. My doctor wants me to start Carfilzomib and Pomalidomide.

Since I restarted taking HD IVC (50 grams) 2-3 times per week on May 19, 2024, the Lambda figures have flatlined but have not significantly decreased. The figures are:

16 on Dec 8, 2023
101 on May 2, 2024
495 on May 16, 2024
531 on May 29, 2024
473 on June 13, 2024
498 on June 18, 2024
518 on June 27, 2024

Is it time to start Carfilzomib?

what is the non-conventional therapy that put you into complete remission.

Hello,
I would like participate in your MM coaching, how do i proceed?

Thank you for this information. I have MM, diagnosed in June 2019 with a transplant in October 2019. My kappa light chain has been increasing for the last year and I recently just tipped over the max in the range. My oncologist is not recommending doing anything at this time, but I was wondering if you recommend intravenous vitamin c without chemo drugs. I would very much appreciate your opinion.

Hi David , how often should vit C infusion be done after initial 4 cycles of velcade , darzalex and Revlimid ? Also what dosage is recommended ?

Will the Vitamin Shot work as well as getting it intravenously?

[…] that the issue depends on the specific antioxidant and also that the issues is heatedly debated. To Learn More about intravenous vitamin C therapy and Myeloma- click now I am sorry I can’t provide a yes or no answer. David […]

[…] To Learn More about intravenous vitamin C therapy and Myeloma- click now […]

[…] blood and urine testing regularly. But I don’t see IVC as being a problem for kidney function. To Learn More about intravenous vitamin C therapy and Myeloma- click now David […]

[…] To Learn More about intravenous vitamin C therapy and Myeloma- click now […]

[…] To Learn More about intravenous vitamin C therapy and Myeloma- click now […]

[…] To Learn More about intravenous vitamin C therapy and Myeloma- click now […]

[…] To Learn More about intravenous vitamin C therapy and Myeloma- click now […]

My mom was diagnosed with MM 09/22 .She is 90 yrs old and has AFIB. The doctors say that chemotherapy and radiation is to aggressive for her and that it wouldn’t be beneficial for her. Would the vitamin C treatment help her? I am looking to find something to at least ease her back pain.

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

What type of vitamin C powder do you recommend?

I have tried vita c therapy but it doesn’t seem to be as effective as o3 therapy with uv exposure. Vita c therapy increases pain but o3 and uv reduces it to a minimum. Have you had any experience with that?

I was diagnosed with stage 1a multiple myeloma on 4/11/2011. I received stringent complete remission with Revlamid with Velcade lasting 5 years. In 2012 I began receiving weekly infusions of vitamin C. My light chains increased in 2012 and I began receiving Ninlaro with weekly dexamethasome. SCR was achieved until 4 months ago. Have begun Pomalyst, Darzalex and Dexamethasome. Light chains have decreased from 230 to 90. I continue weekly infusions of vitamin C. I eat blueberries, apples, lemons, turmeric and ginger each morning.. I work out each morning for 45 minutes. I also pray the Rosary daily. I consider myself very lucky and pray each day for those suffering from the scourge of cancer

At early stages of MM with lots of fatigue and and general pain My question is what was the daily dose of IV Vit c you received and how often? thanks

I’m currently relapsed after an autologous SCT in feb 2018 and am currently on Kyprolis, Pomalyst, and Dex. I’m wondering if I can receive high dose iv vitamin c while I’m on my chemo regimen?

Hello , I was wondering if vitamin C injections will keep me in remission after the BMT transplant which I made back in 2014

Presently the levels of Lambda are again increasing beyond the normal but they are not skyrocketing ….they are high but doctor said we can wait more before we start some treatment …presently lamda is 110 (maximum normal is 27) ….I was wondering if there is a way I can stop the lambda from increasing before the doctor puts me on some treatment …:he requested one more blood test after a month from now and if the lambda showed higher he will then start some treatment ….:do you think the vitamin c injection if I start them from now , will they help decrease my lambda levels ?? Pls let me know the soonest !

Thx
Paul

Hello, I am a recently diagnosed with MM, I have had a 2nd treatment of Valcade, steroids, and waiting for Reviled to be approved. I was reading about complementary cancer care support, and will start taking, supplements, Mushrooms, Etc. I was wondering about the Vitamin C therapy. I read
some where that that interferes with Chemo (valcade) and should do after remission.

What are your thoughts on that ?

Thank you,
Roseanne King

Please help, my dad has MM and they found many lesions on his spine.

I have another concern I wanted to ask you about concerning your program. Some of the therapies that you list might be above our means. I hear some people are doing two or three IVC’s a week, and our finances would not support that. Additionally you mention hyperbaric treatment. While I have never heard a cost for that, I have heard it is expensive. Will I find myself receiving recommendations for things I just cannot do?

Hi David.
Thank you so much for your time and energies to put this together for other individuals
that share this disease.
I was diagnosed in 2016-17, It has been wow… I am now going for more of the nutritional and not so much of the trials and chemo route. I am interested in your directed way of beating MM. Please tell me what I would need to do.
Sincerely
Alys

Hi Dave, I was diagnosed with early stage active MM on 6/23. I have a IgA Kappa MM; M-Spike of 1.2, FKLC 71.7, FLLC 5.2, K/L ratio 13.8, IgA 1,361.
I’m following an integrative protocol with the Mederi Center, Oregon. I’m also adding some non conventional therapies to my regime. I’ve just started HBOT weekly. I have delayed conventional treatments until I can review my treatment options and I’m having a second opinion with Dr James Berenson next week. My oncologist at Stanford will be reviewing my case in October. I would value your opinion on the-most effective adjunct therapies to use until then – HBOT, IV vit C, ozone therapy or hyperthermia.
Thank you,
Joanna

[…] I’ve found a place about an hour from me that does IV Vitamin C (as well as other IV nutrition) but the cost is not cheap! […]

Hi David,
I was diagnosed with MM in February 2020, right in the middle of the COVID-19 pandemic. I was stage 3 and it was aggressive. A year prior I had started having issues with back pain and started seeing a chiropractor 3x per week just to stay functional. Late October 2019 I bent over in the shower to pump facial wash into my hands and it felt as if a horse had kicked me. I was misdiagnosed with a sprain, but ended up in the ER on December 19, 2019 with severe back pain at which time an x-ray revealed a spinal fracture and Osteopenia. A follow up bone density test showed severe osteoporosis. At 50 I had the back of a 95 year old!

January 21st, 2020 I had a regular appointment with my endocrinologist – who didn’t like some of the results on my most recent blood test. He ordered more tests, which resulted in a whirlwind of more tests: more blood work, 24 hour urine test, scans, bone marrow biopsy and finally an appointment with an oncologist. By the time I met with the oncologist, the diagnosis was already made and the only thing the oncologist needed to do was discuss and schedule treatment.

March 13th, 2020 I started to receive Kyprolis via IV once weekly for 3 weeks on, 1 week off. I was supposed to start Revlimed too (also 3 weeks on and 1 week off), but I refused (to my oncologist surprise and frustration). I tend to react to some drugs so I didn’t want to load my body where I wouldn’t know which one was the culprit, so I eased into treatment. My proteins were over 9000 when I started and my hemoglobin was critical at 6.6 and I had to receive a blood transfusion on my very first treatment date. But by the end of my first round (3 weeks), I had made a 75% improvement – only taking Kyprolis, along with added supplements I had started. Oh, and they give me Zolmeda to strengthen my bones.

The last week in March I had spinal surgery to repair multiple spinal fractures – the first one resulted in more, but once I had surgery, got a walker, and gave myself permission to just not worry about stuff I shouldn’t, I am now able to get around better. Gravity hurts, so I can’t stand or walk longer than 3-5 minutes or I’m in a lot of pain. Originally doctors had me on muscle relaxers, hydrocodone and morphine. I didn’t want to live my life on opiates so I got a medical marijuana license which helps.

I did my 2nd round of treatment without Revlimed as well. I was simply too sick after the Kyprolis to add it in. I started Revlimed at the start of my 3rd round at 25mg, but I had a reaction and the oncologist reduced it down to 15mg. At the end of my 4th round – what I thought was going to be my last, the oncologist told me my proteins were at .4 – obviously huge improvement from over 9000, but he said he was greedy and wanted to see if I could get to zero. Ugh.

I didn’t take this news well as I’d been complaining of symptoms for months – severe and violent chills in which I turned bluish-purple, shook uncontrollably, needed to cover up under 3-4 doubled blankets, while lying on a 2 ft. heating pad set to high and it would take four hours to get my body warmed up. I’d run a fever of 103 or 104, I’d be nauseated and experience violent projectile vomiting. Then the diarrhea would start and last for 4 or more days (up to 10 – 12 times per day). I told the oncologist I wasn’t moving forward experiencing that anymore. When I asked him how he determined the Kyprolis dose, he said height and weight. I asked him what the symptoms would be if 10 different women of all the same height and weight were given the same dose and he said it would vary. Therefore, I said, he must adjust my dose based on how MY body was reacting, not some general dose based on my height and weight. He finally agreed, but I was pretty pissed I had to confront him like that after mentioning those symptoms for months.

Tomorrow, July 10th, 2020 will be the start of my 5th round. I will admit I don’t take the Revlimed regularly as prescribed. The shit comes in a bio-hazard bag and the list of side effects is insane. I simply do not want to take it. On top of that, the price tag is over $20k for 21 pills (insurance pays it, thank God!).

I actually feel pretty good – and at the end of my 4th round, all of my blood work was excellent – I wasn’t high or low in any area. My only real complaint is my bones: they are weak, thin, and full of lesions. But I’m concerned about what happens after my 5th round of treatment. I do not want to be on a “maintenance dose” of Revlimed. I’d rather not take it at all. I’ve found a place about an hour from me that does IV Vitamin C (as well as other IV nutrition) but the cost is not cheap!

I was eating a keto diet prior to diagnosis which helped me lose 78 pounds, take my A1C from 11.4 to 5.3 in only 8 months, and take me from diabetic to non-diabetic. This eating style is definitely void of sugar, but it does contain meat and dairy and I have never felt better! I love it because I’m never bloated and I have plenty of energy. But a lot of what I read says MM patients should eat mostly vegetarian. I rarely eat red meat or pork. Most of the meat I eat is chicken, fish, salmon, shrimp, etc. I like my meat and I don’t want to give it up. In fact, I couldn’t eat a lot of what vegetarians eat as it would raise my blood sugar (breads, pastas, potatoes, rice, oats, etc). I eat a wide variety of veggies every day, drink several cups of green tea daily on top of lots of fresh filtered water. I take a lot of supplements, from milk thistle, artichoke, turmeric, vitamin D, several B vitamins, calcium, magnesium, and more, plus I take some potent pro and pre-biotics. I try to get 15 minutes of sunlight daily but I can’t exercise right now due to my bones. I did buy a full-spectrum infrared sauna, but it’s still in the box because we’re planning on moving soon and it will be easier to move the sauna while in it’s original box. I also ensure I get plenty sleep and I keep stress at a minimum.

I’m not striving for perfection, but I know with no current cure, I have to stay on top of the MM. I’d love to see an integrative medical doctor and get their IV vitamin C and other therapies, but again, the cost is not cheap. How do people afford this?!?! And until I can afford it, am I doing enough? Did you do any maintenance drugs, and if so, for how long? Or were targeted drugs available when you were being treated? I’ve read your body can build up a tolerance to these targeted drugs – so why bother? I believe I read that you did a stem cell transplant, is that correct? My oncologist says it requires a very high blast of toxic chemo – which is different than the targeted therapies I’m receiving now. I apparently can’t get the stem cell transplant without the high dose of chemo, so I won’t be getting a stem cell transplant as I won’t do that type of chemo. Ever.

Anyway, I’m very inspired by your story and am trying to read something on your site each day. I’m considering the coaching, simply to soak up as much knowledge as I can. I’ve read no less than 20 books or so since being diagnosed trying to educate myself on cancer, how it works, and how we can heal our bodies to fight/ward off cancer naturally. Most books cover cancer in general or lean towards cancers like breast, prostate, lung, brain, etc. Finding your site that is focused on MM is a blessing and I thank you for sharing and offering your help to others with it.

God Bless and I’ll be tuning in regularly!

Toni

Hello David and congratulations on your long term success dealing with myeloma.
I was diagnosed in August of 2008. I received an unsolicited prognosis of living 3 years from two doctors. I walked away from western medicine at that point and stayed away for 2.5 years, while I learned that all important balance between what western medicine offers and the best of the alternatives. Although not in a true remission, I have been successful in coexisting with myleoma for almost 12 years now..
The only drugs I have used to treat myeloma have been revlimid/zometa. In the past 12 years I have used revlimid 4 times and zometa quarterly.
I became an author, with one book published and another coming out next month. I also mentor people facing life ending challenges, including myeloma. I am also a inspirational speaker.
I am extremely interested in your regime, especially the Vit C IV treatment. Can regular oncology docs use this treatment or do I have to find an integrative doc? I am going to send a link to this site to a trusted myeloma doctor that is quite open to alternatives.
I am looking forward to communicating with you about this and all other myeloma issues. So glad a friend guided me to you. Let’s run with it.
Richard D. Rowland

Thank you so much for your inspiring journey and for having made it your mission to teach and help those with MM.

Next week I will start my very first chemo session. My Oncologist, a MM specialist recommended the KRD regimen.

Would you suggest that I ask whether I could get high dose Vitamin C at the same time, since I’ll be hooked up for 3hours anyway, once a week?

Hi David.
I have been diagnosed with Smoldering Myeloma 3 months ago.

2 months ago, I started doing Alternative treatments to prevent Multiple Myeloma.

I did 10 Treatments of Xenon and Krypton treatments to boost blood cells health as well as a good diet with lots of vegetables, soup and lots of white fish fillet and white chicken and fruits and almond, almond milk etc.

I am also eating iron foods including wheat, fish, cracked wheat, spy beans, chick peas, broccoli etc.

After starting the diet and treatment within 4 weeks, my body changed and started removing all toxins.

My liver and kidneys started working hard to remove the toxins.

Integrative doctor gave me anti oxidant supplements and vitamins and other supplements to remove bacteria and help blood flow.
Also, he gave me anti inflammatory supplements.

Somehow I became slightly anemic. My iron levels are normal but ferrin saturation is at 12% one below 13% which is normal.

I also started to have some inflammation and go to toilet and urinate a lot.

I am now taking Iron tablets, Vitamin C Liposomic, curcumin 1000 Mg a day to start with and still doing the diet.

My integrative therapist noticed a 50% improvement in my immune system and my blood cells however the membrane cells are not strong enough still.

I asked him if I should do vitamin C IV Injections at 60 grams at another clinic as he does Not do that treatment.

He advised me that it may or may not work, and it may increase your Paraprotein serum levels and plasma cell count.

3 months ago, my Plasma cells were at 39%. Serum protein at 24 g/l. Now after 2 months treatments and diet, my serum protein went up to 26 g/l.

I spoke to my Haemotologist, he said it goes slightly up and down. It is not an issue.

I have a few very Important questions for u.

1. What do you think the cause of my liver and kidneys weakening and iron deficiency. Is it diet related or system changes related?

2. Does low level iron Ferrin saturation cause serum papaprotein to increase?

3. Is it true that Vitamin C IV Injections at 60 Grams high dose Or higher can make my condition worse and cause Paraprotein levels to go up due to toxicity?

4. If dont have very strong blood cell membranes, can they NOT handle high doses of vitamin C? My understanding is that Vitamin C toxicity can improve the weaker cells too.
What are your thoughts?

Please help.

Thank you

Mike

I have been told I have 4:14 high risk myeloma. I’d appreciate anything you can tell me I should be doing. I take lots of supplements and plant based diets as well as ‘off label meds’ and just started taking cbd oil too.

Greetings David! Thank you so very very much for the tremendous amount of information that you provide here. I so wish I had the resources to do MM coaching with you and dearly appreciate your being available to answer questions. I read about the IV Vitamin C therapy for MM and have located a place to be able to do that. I am about 5 weeks in my first cycle of chemo on revlimid and velcade. I started on Dex though had a rough reaction to it and was taken off of it. No Mspike detected nor kidney damage thus far and very grateful. 30% detected with a BMB. I am IGg kappa. I was also informed about oxygen therapy in a hyperberic chamber located at a clinic nearby. Is that something you would recommend as well as the Vitamin C infusion? Thank you so very much for your perspective and taking the time to answer me – Elizabeth Meadows

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] or have you been free of MM that long that the treatment wasn’t available? I plan on doing IV vitamin C therapy soon once I have raised more money in my GoFundMe campaign. It’s something I have wanted to do […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] or have you been free of MM that long that the treatment wasn’t available? I plan on doing IV vitamin C therapy soon once I have raised more money in my GoFundMe campaign. It’s something I have wanted to do […]

PLEASE remove my last name from what I just posted. I didn’t realize that it would be shared.

Thank you! 🙂

Christine

Hi,

First of all, I was grateful to find your site. Thank you for all that you’re doing to help us beat MM and stay in remission. While being treated for breast cancer (advanced), I received the diagnosis of MM the end of August. Treatment for the breast cancer stopped and I started the third round of chemo this week. Yesterday my doctor talked to me about the bloodwork and PET scan last week. The good news is that my body is responding well to the chemo and a couple of the labs were within normal range. He talked with me about considering autologous stem cell therapy after the fourth round. It sounded very intensive and concerning given the breast cancer as well. He will talk with his team to find out if it’s advisable. I am wondering if you did this type of therapy or have you been free of MM that long that the treatment wasn’t available? I plan on doing IV vitamin C therapy soon once I have raised more money in my GoFundMe campaign. It’s something I have wanted to do for quite some time and the new diagnosis makes it even more important.

How long did you do the IV vitamin C? I am also working with a naturopath who specializes in oncology, taking supplements, eating a ketogenic diet, doing oxygen therapy and having a lot of energy work done. Despite the health challenges, I have faith and a lot support.

One more question . . . I learned that green tea interferes with the Velcade. It looks like you recommend drinking green tea so I am curious about that. Also, I recently learned about off label medications for the MM and breast cancer based on the book “How to Starve Cancer” and am considering going down that road although it seems complicated. Do you take any off label medications to stay in remission? Do you take any conventional treatments now? (i.e., Zometa)

Thank you. I look forward to your response.

Diagnosed two months after breast cancer. Current paraprotein 24 no treatment and bones clear (two spots on spine-no change last mri) want to do all I can to lower pp. Currently take off label drugs/supplements and low gi diet

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

Hi David, I was just recently diagnosed with MM. They stated I was stage 1 low risk. I have a lesion on my clavicle, humorous head, and rib. My BMB showed 50% myeloma cells. I was diagnosed at Rush University in Chicago.. I’ve since switched to UofChicago as they have a clinical trial of Dara/KRd open for newly diagnosed patients. I am scheduled to start treatment June 3rd. However, my numbers have been stable from April to Mays blood work. They don’t want me to delay my treatments. However, I’m thinking of delaying it and getting High Dose Vit C IV for a few weeks and see how my numbers go. What are your thoughts?

Thank you,
Alex Ilic

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

How much vitamin C do you need to take

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

[…] Multiple Myeloma- Intravenous Vitamin C Therapy […]

HI David,
My 81 year old father was diagnosed with MM in 2004. And it has been smoldering, until recently. Around November- his back started killing him and they discovered a couple small tumors on his spine.
He started radiation but ended up in the hospital with a GI bleed and sepsis. where he stayed for a month. I came across a vitamin C protocol that I somehow convinced the ICU doctor to use when we thought he was going to die. he woke up 12 hours later. I have been convinced the vitamin C helped him, and have been on a vitamin C kick ever since. I haven’t been able to convince his doctor to do a vitamin C protocol to attack his Myeloma, and may parents are somewhat conventional as well. I have read that liposomal Vitamin C is similar to IV vitamin C.
Do you know anything about liposomal vs IV Vitamin C? and I really can’t figure out how much vitamin C to give him. Is it possible to do this orally? He is home now, but has round the clock care takers and cannot walk.

I am 4+ weeks post melphalan and stem cell transplant. Am doing pretty well except for some nausea and being fickle about what I will eat. I had a 35 g infusion of Vit C the day before the melphalan with my haematologist’s OK. No mucositis, diarrhea, neuropathy at this point. I have asked for Vit C infusions from him to help the healing process but have found no studies except using this in conjunction with chemo/radiation, not to improve healing after the fact. Do you know of any studies? I had the recent infusion at my dentist but can’t get back to him at this point and my haematologist says there is no evidence it helps with healing. I see him tomorrow 12:00 GMT so any help before then would be wonderful. I found you when looking for studies – wish I had earlier!

Husband diagnosed with MM stage 1 – 2 last week. Interested to read your page. Can you let us know more about vitamin c and curcumin benefits to fighting MM as have read these can inhibit some chemo drugs effectiveness? Thank you

PLEASE TELL ME HOW MUCH VITAMIN C TO DO DAILY.. I CAN GET VITAMIN C IV THERAPY. WHAT ELSE DO I NEED TO DO.. WAS JUST DIAGNOSED AND VERY SCARED.

Randomly came across your page. What a blessing having you help others with your program! Keep it up and hope you’re doing well.

Hello David, my uncle is sick of MM since 2014. He was treated with velcade dexamethasone alkeran chemotherapy, but paraproteins are already very high and he is quite weak. Can you offer alternative treatment for the disease. Thank you very much
Regards
Iskra Dulgerska
Bulgaria

Hi, I was dxed in 2012, late stage III, tumors on spine, tons of lesions. 16,000 kappa light chain, 6,000 Bence Jones. Done many treatments, two sct but never off chemo. Today Kappa is in normal and BJ in teens, yet due to 3 relapses my onc suggest I continue with chemo ( currently Kyprolis, dex, Bendestine) I am handling it well, yet my immune system is destroyed. Platelets in20’s, monthly Neulesta shots, otherwise neutropenia etc. I would Love to take a chemo break, and was wondering if at this low rate of MM, vit C, turmeric and other supps and diet, I can keep the MM under control and my body a chance to detox. Please give me your thoughts 🙏🏻

I’m based in Scotland UK and have read your blogs for seven years since diagnosis of MM. I did a lot of self treatment both with supplements and numerous other protocols. I had no conventional treatment till early last year when anaemia required several blood transfusions. Then in May 2016 when excruciating pain forced me to go for Velcade, Dexamethasone and Thalidomide. Had that for five months and blood results were good enough to stop treatment in October. Refused ASCT. My para protein levels are now rising again and I want to find a non conventional way to avoid more chemo. Your info seems to focus on US methods. Have you any info about the UK? Thanks David.

Need a source for IF vitamin C in Miami Beach.