Multiple Myeloma Patients Need Cancer Coaching-

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Newly-Diagnosed Multiple Myeloma Patients Don’t Know What They Don’t Know- MM CC Can Help-

If you were diagnosed with Multiple Myeloma (MM) would you know what to ask your oncologist? I believe that MMers don’t know what they don’t know. I think this because I didn’t know what to ask my oncologist when I was first diagnosed. Neither I nor my wife had even heard of a cancer called Multiple Myeloma when I was first diagnosed.

MM at a glance- click the image now-

Multiple Myeloma Mind Map

It took me years of living with MM before I began to understand not only MM as a cancer but understand oncology specifically and conventional medicine in general.

My name is David Emerson. I am a long-term MM survivor and MM cancer coach. I now know what MMers should ask their oncologists. In most cases I can encourage the MMer to ask the question as well as give the MMer the study that discusses the question.

And I know what MM patients probably don’t want to ask their oncologists. Whether you want to discuss an issue with your oncologist or just with me, I can help.

Scroll down the page, post a question or comment and I will reply to you ASAP.

David Emerson

MM Survivor

MM Cancer Coach

Director PeopleBeatingCancer

Coaching Program Gives Cancer Patients a VOICE in Their Care

“In his Values and Options in Cancer Care (VOICE) study, Dr Epstein and his group offered an in-office training course for physicians…In addition, the researchers trained coaches to help patients identify the most important questions to ask their oncologists during an upcoming office visit…

The results showed that the intervention resulted in clinically and statistically significant improvements in the primary physician-patient communication end point

“We found that the intervention actually did make a difference in terms of communication,” Dr Epstein said…

Patients were also coached to think about what they want their doctor to know about them, to better help their care. The prompt list offered these suggestions:

  • I want to know the pros (benefits) and cons (side effects) of the treatments I’m getting.
  • I can deal with the truth about my condition.
  • I don’t know what to tell my family.
  • I worry that I’m going to suffer.
  • I worry that if I stop treatment, you might not be my doctor anymore.
  • I hate being dependent on others.
  • I would rather not discuss how much longer I have left.
  • When the time comes, I’d prefer to die at home.
  • I am afraid of dying.”
About

I am a 22 year multiple myeloma survivor.

Posted in Multiple Myeloma, Newly Diagnosed Tagged with:

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