Multiple Myeloma Patients Need Cancer Coaching-

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Newly-Diagnosed Multiple Myeloma Patients Don’t Know What They Don’t Know- MM CC Can Help-

If you were diagnosed with Multiple Myeloma (MM) would you know what to ask your oncologist? I believe that MMers don’t know what they don’t know. I think this because I didn’t know what to ask my oncologist when I was first diagnosed. Neither I nor my wife had even heard of a cancer called Multiple Myeloma when I was first diagnosed.

MM at a glance- click the image now-

Multiple Myeloma Mind Map

It took me years of living with MM before I began to understand not only MM as a cancer but understand oncology specifically and conventional medicine in general.

My name is David Emerson. I am a long-term MM survivor and MM cancer coach. I now know what MMers should ask their oncologists. In most cases I can encourage the MMer to ask the question as well as give the MMer the study that discusses the question.

And I know what MM patients probably don’t want to ask their oncologists. Whether you want to discuss an issue with your oncologist or just with me, I can help.

Scroll down the page, post a question or comment and I will reply to you ASAP.

David Emerson

MM Survivor

MM Cancer Coach

Director PeopleBeatingCancer

Coaching Program Gives Cancer Patients a VOICE in Their Care

“In his Values and Options in Cancer Care (VOICE) study, Dr Epstein and his group offered an in-office training course for physicians…In addition, the researchers trained coaches to help patients identify the most important questions to ask their oncologists during an upcoming office visit…

The results showed that the intervention resulted in clinically and statistically significant improvements in the primary physician-patient communication end point

“We found that the intervention actually did make a difference in terms of communication,” Dr Epstein said…

Patients were also coached to think about what they want their doctor to know about them, to better help their care. The prompt list offered these suggestions:

  • I want to know the pros (benefits) and cons (side effects) of the treatments I’m getting.
  • I can deal with the truth about my condition.
  • I don’t know what to tell my family.
  • I worry that I’m going to suffer.
  • I worry that if I stop treatment, you might not be my doctor anymore.
  • I hate being dependent on others.
  • I would rather not discuss how much longer I have left.
  • When the time comes, I’d prefer to die at home.
  • I am afraid of dying.”
About

David Emerson is a 23 year Multiple Myeloma survivor. He started PeopleBeatingCancer.org as a non-profit in 2004 to help cancer survivors and caregivers navigate the vast world of cancer issues by providing evidence-based information on the most pressing cancer issues. Since 2004, David has impacted over 600,000 people through this website. He is in the process of developing cancer-specific coaching program, and also does one-on-one coaching via phone or email. Thank you for visiting!

Posted in Multiple Myeloma, Newly Diagnosed Tagged with:
4 comments on “Multiple Myeloma Patients Need Cancer Coaching-
  1. Peter says:

    Hello,
    I have mm, diagnosed 1 year ago. I was wondering if you have any info on nutrition/diet for mm?
    Thanks in advance
    Peter

    • David says:

      Hi Peter-

      Yes I have info about foods and supplements that starve MM. My experience is that MMers must pursue the spectrum of evidence-based therapies in order to manage their MM. By spectrum I mean the best of both conventional and non-conventional therapies.

      What was your stage at diagnosis? Have you undergone induction therapy such as RVD (rev/vel/dex)? Have you had an ASCT? I don’t mean to sound nosey. The more I understand your situation the more info I can provide.

      David Emerson

  2. Sue says:

    Hi David
    Is there away to email you. I can’t seem to click on this blue button. How can I get this free book. I have questions, I hope you can enlighten me.
    Thank you
    Sue

    • David says:

      Hi Sue-

      The two best ways to communicate are either through the site the way we are exchanging emails now or by emailing me at David.PeopleBeatingCancer@gmail.com.

      I will send you the introduction of the MM ebook to give you an idea of what is in the ebook. In addition I will include the introduction to the MM Cancer coaching program. The ebook is included in the program.

      Have you been diagnosed with MM? If so, what stage? Are you dealing with any symptoms such as bone or kidney damage or anemia?

      David Emerson

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