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Dear David – My husband was diagnosed for Multiple Myeloma (MM) 7 years ago as a result of the WTC. He had a lot of side effects from the Carfilzomib. His oncologist kept lowering the dose. My husband has been in and out of atrial fibrillation for the past treatment of other chemos. It is always a struggle for him.
I worried about his heart and kept checking his labs. I worry about no other treatment available for MM if the Carfilzomib is no longer good for his heart. He underwent an autologous stem cell transplant in 2015. My husband only reached a partial remission. His numbers are ok for now but climbing. Lucy
I am sorry to learn of your husband’s MM as well as his side effects from his chemo. Several things.
While there are evidence-based therapies cited to be protective for the heart damage caused by other chemotherapies, Carfilzomib is relatively new and therefore less-well researched. Therefore I cannot reference studies to support my recommendations. Further, the evidence-based therapies that I refer to such as CoQ10 and curcumin have not been researched and approved by the FDA. Therefore your husband’s oncologist will not know about them.
Having said the above, here is what I do for my chemo-induced heart damage. I take several heart healthy supplements daily, exercise moderately but frequently, and eat a heart healthy diet. Dark chocolate is a treat once you get used to it’s bitter taste…
As for your husband running out of therapy options, I would say that the more you can learn, the more informed your decisions will be. With that in mind, please click here to read another blog post I wrote all about Carfilzomib and heart damage.
If you would like to learn more about the evidence-based protocols that I follow for my own Multiple Myeloma issues, please scroll down the page and post a question or comment.
Let me know if you have any questions. Hang in there…
PS- my guess is that your husband was a first responder to the WTC on 9/11. Thank you both very much. I hope that you and or your husband have applied for the compensation mandated for first responders who have contracted blood cancers as a result. Increased risk of blood cancers such as leukemia, NHL and MM due to 9/11 is pretty well-documented and you both deserve compensation in my opinion.