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My mom has MM. She’s done bone marrow transplant. She went into a short remission, but her MM is back. She cannot take revlimid. It gives her horrific allergic reactions. Can you please email me a non-conventional therapies guide ?
ReplyHi David,
I have been diagnosed with MM last year and had stem cell transplant in Feb
I would like to know more about the non-conventional therapies, can you please email me.
Hi David-
I sent you the MM CC non-conventional therapies guide via email.
David Emerson
ReplyFrom you experience what do you know about using Fenbendazole in animals and people with multiple myeloma? I am encouraged by the information you provided. Are you a RRMM on Fenbendazole?
ReplyHI Dennis-
The challenge faced by MM patients and survivors when considering off-label drug use for their MM is the lack of research about that drug (fenbendazole) and MM. The drug may or may not produce results and it may or may not cause side effects.
Sorry I can’t be more help.
David Emerson
ReplyMy mom has MM, can you please email me non conventional therapy. Thanks
ReplyHi Laila-
I am sorry to read of your mom’s MM diagnosis. PeopleBeatingCancer offers more information about more than a dozen different types of evidence- based non-conventional therapies. I will send you the nutrition guide to give you an idea of one of the more popular types of non-conventional therapies.
What stage was your mom’s MM? How old is she? Is she experiencing any symptoms such as bone pain or nerve pain?
David Emerson
ReplyId like to know what other vitamins are used with Fenbendazole and dosage for newly early diagnosed MM patient
ReplyHi Layla-
As I mentioned in the blog post, little is known about fen ben as a MM therapy. I have no idea what supplements or dose may help with fen ben therapy. I wish I could offer some expertise.
David Emerson
ReplyI was diagnosed with multiple myeloma in July 2019 and have been doing the Revlimid and Dexamethasone treatment since then. I am having a hard time with the side-effects. I am interested in learning about non-conventional treatment approaches. Please advise as to how I might get in touch with you to discuss non-conventional therapies. Thank you.
ReplyHi Ted-
I am sorry to learn of your side effects of chemo though what you are experiencing is common. I will email you a pdf of the MM CC non-conventional therapies guide to give you a sense of what the MM CC Program is all about. I will include the nutrition guide which also may help you manage your side effects.
Let me know if you have any questions.
David Emerson
ReplyIs it ok to take the fenbendazole along with sarclisa, krypolis and dexanethasone treatment?
ReplyHi Karen-
Frankly, I do not know if it is okay to take FenBen with conventional regimens.
Thanks,
David Emerson
ReplyDiagnosed with 80% myeloma and p17delection after transplant and fitting very aggressive myeloma I’m considering fenbendazole but very overwhelmed with all the information appreciated your opinion
ReplyHi Alina-
I am sorry to learn of your MM diagnosis. Re your question about Fenbendazole, I have read anecdotal accounts aka personal mentions but no real research, no actual studies regarding Fenben and MM. The personal accounts are mainly that a newly diagnosed MM patient is trying fenben and they will report more later.
I wish I could provide more information. Let me know if you have any questions.
Hang in there,
David Emerson
ReplyMichael Z
Hi David. I have had MM for 7 years now. All this time was on Revlimid/Dex (no stem cell transplant) Latest test showed minor disease progression and my oncologist put me on Daratumumab. I am thinking of supplementing my new treatment with non- conventional therapy you mentioned. Can you advise me? Thank you for what you are doing.
Hi Michael,
7 years on Rev/Dex only is a great progression-free survival. Daratumumab is a logical next step. If I advise you we would discuss additional possible next steps.
Continue pursuing your low-dose chemo therapy plan with chemo regimens such as bortezomib (proteasome inhibitors) combined with integrative therapies.
Also, consider other complementary therapies shown to be anti-MM- a number of non-conventional therapies have been shown to cause MM apoptosis.
To be clear Michael, my approach to managing MM is to combine low-dose conventional chemotherapies with evidence-based non-conventional therapies. If you would like to learn more about this approach, let me know.
Thanks and hang in there,
David Emerson
ReplyThanks David.
Yes I would like to learn about non-conventional therapies.
I will appriciate if you navigate me.
zaborko@gmail.com
My mom has mm and I would like to know how to get nocodazole and how much should she take.
ReplyHi Tammy-
I know little about nocodazole and its effect on MM. Also, I don’t know how to get it or dosing info. I wish I could offer more
info.
Thanks,
David Emerson
ReplyI have agressive Multiple Myeloma and recently been told I also have Amyloid proteins in the heart. Due to this, I was told it greatly reduces my life span. Will fenbendazole help with the MM and the amyloidosis?
ReplyHi Mark-
I am sorry to read of your MM diagnosis. The answer to your question is that no one really knows. Fenbendazole has not been studied as a MM therapy. I know of a couple of anecdotal reports but nothing about amyloidosis.
I am sorry I can’t give you more information. Let me know if you have any questions.
Hang in there,
David Emerson
ReplyI was diagnosed with MM end February 2020. Please guide me with regards using Panacur (Fenbendazole) in conjunction with traditional MM treatment.
ReplyHi Libby-
I am sorry to learn of your MM diagnosis. While I encourage your attempts to think outside the box, I have to admit that I know little about Fenbendazole as a MM therapy. I am able to guide you through many evidence-based, non-conventional therapies such as anti-mm nutrition, supplementation, and lifestyle therapies but not Fenbendazole.
Hang in there,
David Emerson
ReplyMy husband was diagnosed in July, 2019 with stage 1 MM. He had 3 spinal tumors and was 80% paralyzed because of vertebral collapse impinging upon the spinal cord. He was given radiation, then began Darzalex, and zometa infusions , dexamethasone and revlamid. He is now on maintenance therapy with the Darzalex monthly, zometa quarterly, revlamid 3 weeks out of 4 and dexamethasone with the monthly Darzalex. He had spine surgery Dec, 2019 from T2 to T 12. Spinal cord was decompressed and he now walks with a cane. Now my question. Would fenbenazole be an option for him at some point? He is on morphine and norco for pain, mainly around the shoulder blade and rib areas.
ReplyHi Reba-
I will reply directly to you via your email address. Thanks.
David Emerson
ReplyOn daratumumab and doing good. Can fenben get rid of Multiple myeloma?
Amish friends recommend it as a cure
Hi David – I started Fenben about a month ago. I take it 3 days a week. Tonight I heard Chris Wark strongly caution people against it. He said it has been known to initially be effective, but then the body figures out a way around it – which can cause premature death. Of course he was not referring specifically to MM. Have you heard that? And what is the difference between Fenben and Mebendazole? Thanks so much!
ReplyI am undergoing maintenance therapy (kypriolis, revlimid) diagnosed 2017 no transplant . I’m on my second round of treatment . Previously CyborD.
ReplyI learned of fenbendazole and mebendazole some time ago and my research of it confirmed it is extremely safe, an effective NON-toxic treatment option, and inexpensive to boot! . If I ever developed cancer I would absolutely use this along with GcMAF in any treatment protocol.
ReplyHi Laranine-
Thanks for the support. Several cancer patients have asked me about this therapy.
David Emerson
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