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106 comments
Hi there. Thank you for sharing your expertise in this disease… I’d like to request the bone strengthening, supplement and diet information, if possible. I’ve refused chemo and radiation, I am too frail and already disabled from pain. I believe strengthening my body will help me to live longer.
ReplyHi Christina-
I am emailing you directly.
David Emerson
ReplyDavid, could you please email me the bone supplement guide?
Thank you very much.
Paul
ReplyDavid, could you please email me the diet and supplement guide?
Thank you very much.
Paul
ReplyHello David,
thank you for your work!
Without getting into my MM story in great detail, I wanted to ask you about muscle pain / trigger points (also know as pressure points or muscle knots). I have many throughout my body. Massage helps a bit temporarily. Can you give me some insight as to what is causing the trigger points and what foods or supplements I can take to help relieve it?
Thank you very much! Paul
ReplyHi David,
Thank you for the information on your website.
As having MM since 2020 I have come across information a few times regarding NOT to take/drink green tea.
Is there any truth to this as it seems odd that this would be a restriction I thought it actually may help with inflammation.
Thank you in advance.
Sylvia
Hi Sylvia-
In fact, it has been shown that green tea (the component called EGCG) can reduce the efficacy of velcade aka bortezomib. Same is true for vitamin C. I don’t know enough biology to be able to explain why.
https://pubmed.ncbi.nlm.nih.gov/19190249/
Hang in there,
David Emerson
ReplyDavid- I have just recently relapsed after 21 months of complete remission. Most of what I have seen seemed to indicate that 2 yrs is about the time people relapse. My treatment now is velcade, dar, and dex. I’m responding well but spend 2 days a week with bad headaches. I have also read that that is pretty common with these specific drugs. I have been told it’s okay to take Tylenol but it doesn’t really do much. Can you suggest a supplement that might at least be as useful without the side affects? Thanks
ReplyHi Diane-
I am sorry to read about your headaches. I am coming at your question from a different direction. You are correct that the average length of first remission is approximately two years. Secondly, you are also correct that most everyone on chemo experiences side effects.
The chemo cocktail that you list as your current treatment- Velcade, darzalex, and dexamethasone, works but often brings side effects. Consider reducing the dose of one or more of your chemotherapy regimens. Especially the dose of dexamthasone.
Dex. is included in order to ramp up your immune system. However, it often interferes with sleep and often brings headaches. I’m sure your onc. will agree to reducing your dose- if it is 40mg, consider cutting it in half to 20mg. 20mg down to 10mg.
A lower dose of dex will work just as well and may even work better.
https://www.goodrx.com/dexamethasone/common-side-effects#
Let me know if you have any questions-
David Emerson
ReplyI started mm conventional treatment Sept 1 2023. The two main side effects are blurred vision, extreme fatigue and some less severe side effects. The only symptom prior to diagnosis was anemia and tiredness. What is the best way forward in this stage of my diagnosis?
ReplyHi Gordon-
I’m sorry to learn of your MM diagnosis and side effects. I will start by saying, though rare, blurred vision can be a symptoms of MM itself as hyper viscosity, resulting from monoclonal proteins, can cause a variety of blood problems such as vision problems.
Both blurred vision and fatigue can be side effects of velcade and revlimid. The only possible solutions are
1) reduce the dose of chemotherapy
2) take a therapy vacation/break- if the side effects resolve then you can begin again.
It is possible that curcumin supplementation could minimize your side effects though research on this is limited.
Sorry I provide definitive suggestions.
Let me know if you have any other questions.
Hang in there,
David Emerson
ReplyHi could you please email me the diet and supplement guide? Thank you so much.
ReplyHi Jim-
The nutrition and supplement guides are designed to work in combination with the other 14 guides in the MM cancer coaching program- all to support MM patients and survivors.
David Emerson
ReplyI would like one of your supplementation guides. Taking curcumin, resveratrol, and Vit. D but would like to take everything possible to keep my MM at bay.
Let me know how to purchase or send email.
Thanks, Michael Rohrer
Could you please send me the MM Supplementation Guide?
Thank you so much for providing this MM information!
Thanks for using your life experience with MM to help us newly diagnosed patients! I would like to request the nutrition and supplementation guide and look forward to learning more.
ReplyHi Andrea-
I replied to your post directly via email. Please check your spam folder if you did not receive an email from me.
David Emerson
ReplyHi Judy-
I replied to you via your email. If you do not receive an email from me please check your spam folder.
Thanks
David Emerson
ReplyHow can I get the MM supplementation guide I am in the process for a TCell therapy
ReplyHi Marlene-
The MM CC supplementation guide is designed to work with the other guides in the MM Cancer Coaching program. For example, the nutrition guide shows a Ted Talk where Dr. Bill Li cites anti-angiogenic (anti-myeloma) supplementation (curcumin) and nutrition (black raspberries).
https://peoplebeatingcancer.org/better-than-a-miracle-myeloma-cure/
David Emerson
Reply[…] Myeloma Diet, Supplement – A How-to Guide […]
ReplyI”d like a copy of the guide. I’m a MM patient going on my 5th treatment soon. Lambda lights are climing again.
ReplyHi Susan-
I sent you the book via email.
David Emerson
ReplyHello, David. Wow!! Your story is so inspiring. I’d love your supplement guide and nutrition info. We eat modified, WFPB currently due to a geetic kidney disease (PKD). Would live to learn more! Thank you!
ReplyHi Catherine-
Are you a MM survivor? I would assume so but I ask only because you didn’t mention it. If you have kidney issues the kidney guide might be’mnore useful. Let me know, thanks.
David Emerson
ReplyHello, David. Wow!! Your story is so inspiring. I’d love your supplement guide and nutrition info. We eat modified, WFPB currently due to a geetic kidney disease (PKD). Would live to learn more! Thank you! ❤️
ReplyI would be very interested in your materials and coaching.
ReplyI would like the book. I am into my 3rd month of chemo. Thank you for info
ReplyHi Sheila-
I sent it directly via email.
David Emerson
ReplyHi David I live in Australia and have read some of your posts and seen one or two of your videos. So to make this as short as I can. My wife is 63 and was diagnosed with MM Oct last year . Her kappas were at 1800. And her kidney function in the end went down to 7. She has endured 7mths of dexa.. dara.. cycolphoshamide..valcade every week until early march. So they have now got her kappas down to 460. With no treatment for the last 6 weeks to give her a break. So prognosis is this in a month’s time another blood test to see if they are still going down on there own or if it’s heading upwards they then suggest monthly dara to keep doing that until remission . Or she could go on revlmid tabs as just a maintance dose. My wife is also on dialysis 3 times a week .They Doc says it’s better to go on dara monthly to get to remission so the kidneys may get better then and to get of dialysis. So we would appreciate some feed back. She takes a high form of curicumin In a golden paste that is with coconut oil and black pepper. 1 tsp twice a day. And she also takes other supplements from a qualified natrapath. Could u send pls your dietary guide pls. To complicate things even further she has high cholesterol and high blood pressure before MM and this was kept in place with drugs.. I could go on about her problems but she is tough and during the chemo never got nausea despite the 4 drugs of chemo . Look fwd to your reply. Kind regards John
ReplyHi John,
I am sorry to read of your wife’s health challenges. Your main challenge is that several standard MM therapies can damage kidney function. In other words, your doctors are at cross purposes- fighting the MM as well as trying to heal your wife’s kidney function.
I will send you the nutrition guide via email. As for your questions, it is difficult for me to advise you when there is much that I don’t know. You will have to rely on your doctors.
Hang in there,
David Emerson
ReplyI would like to get a copy of your MM Supplementation Guide. Thanks for all your hard work on putting these resources together.
ReplyHi Annette-
I emailed you the guide directly.
David Emerson
ReplyI’m so relieved to have come across your website! The information I have read, so far, is so valuable and what I have been searching for. May I please get a copy of your MM Supplementation Guide? Thank you in advance.
ReplyHi Mary-
I will send you a MM CC nutrition guide via your email address. Let me know if you have any questions about anti-mm nutrition, supplementation,
lifestyle therapies etc.
David Emerson
ReplyHi David ! Thanks for your great information. How can I get your diet and supplementation guides?
One question: Is it true that green tea extract – matcha interferes with Bortezomib action?
Tbank you!
Hi Maria-
I replied to you directly via email.
David Emerson
ReplyOne more question for my friend with both MM and CKD – I have been researching raw goats milk (goats fed a pure non-GMO grass fed diet) as good support for the immune system in a cancer patient. Any issue with raw milk when thinking about the kidney? Thanks!
ReplyHi Angie-
Though I read about and talk to CKD patients who are working to manage their MM diagnosis, none have ever asked about or mentioned milk consumption. I don’t know if this means anything other than milk is not an issue for them, either way. A google search turned up a number of resources on the issue of kidney disease and milk consumption.
I linked the study below because it is the most specific of everything I read. The bottom line is the, according to research, milk, daily, should be limited but that’s as far as anyone will do. There are many nutritional positives regarding milk consumption so there is a trade-off.
For the record, I too limit my dairy consumption. I don’t have any kidney issues but I think all MM patients should think about managing their kidney health because MM can gum up kidney function…
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5171808/
David Emerson
ReplyHi David, I am inspired by your story! I am daughter and caretaker to a parent with MM. I am passionate about finding nutritional and supplemental solutions to complement her treatment plan and deliver her into remission. The past few months we have found some success with Vitamin D and collagen supplementation. However, I am curious to know which products and the specific dosages (i.e. mg of curcumin, grams of collagen, daily IUs of Vitamin D3, etc.) you have found to be of benefit. I would love to hear from you. Thank you so much!
ReplyHello, David. I’m celebrating my 1-year anniversary of being in remission from stage 3 MM. Please send me your Supplementation Guide. Thank you!
ReplyHello, My dad is in complete remission from MM after velcade, chemo, and recent stem cell transplant. Where do we start with vitamin supplements and targeted supplements to kill cancer. Also, he has had severe neuropathy in legs. How to help that? Which of your guides should we read?
ReplyDaniel-
I will email you directly in order to send you specific guides.
David Emerson
ReplyHi David,
I was diagnosed with SMM in Dec 2019. Your story is amazing. I have two questions: Do you have an opinion on Nutridyn Curcumin which claims 400x bioavailability? Also, are omega 3 supplements as effective as fish oil?
Hi Honor-
Sorry to read of your SMM diagnosis though good to see you are managing it and learning all you can about complementary therapies.
Re your question about Nutridyn- while I supplement with curcumin myself and I write lots of blogs about the benefits of curcumin in general, I have not done any research into one curcumin formula over another. Because I take only one capsule (400 mg), I don’t think about high bioavailable formulas.
As for omega-3 supplementation, all of the studies I know of that cite the benefits of omega-3 fatty acids cite “omega-3 fatty acids” and don’t specify any specific source- Krill, FO, avocado, etc. My brand of omega-3 cites mostly fish oil but also other sources. I like a variety myself.
Hope this helps.
David Emerson
ReplyHi David.. can you please email me a copy of the supplementation guide. I am in complete remission and am stage 3. Thank you Mary M.
ReplyCan you send me a list of supplements. Was diagnosed with SMM in 2019, going to start treatment in January. Low dose !
ReplyWhere can I get a copy of the “People Beating Cancer – Multiple Myeloma Supplementation Guide.” The booklet with the red yellow and blue circles. Can you send me a copy or where can I buy one. I would appreciate it.
ReplyHi Carol-
I will email the MM CC Supplementation Guide. It is digital with hyperlinks to studies.
David Emerson
Reply[…] Myeloma Diet- Before, During, After Therapy Myeloma Survivor Diet in Three Easy Steps Multiple Myeloma Diet, Supplementation- A How-To Guide Multiple Myeloma Diet- Liver Enzymes, Inflammation A Long-term Multiple Myeloma […]
ReplyHi Brenda-
I have emailed you several of the guides that make up the Pre-MM CC course.
David Emerson
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ReplyHello. I tried to register to receive the pdf of the MM Supplementation guide but the button does not work.
ReplyHi Lisa-
PeopleBeatingCancer is currently offering the nutrition guide or the cannabis guide free for downloading. We are not offering the supplements guide.
David Emerson
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ReplyI have MGUS and I take several of the same products you are taking. I would appreciate the dose of all of them and where you purchase these products.
Thank you,
Judy Conley
ReplyHi Judy-
I suffer from nerve damage and I buy all my supplements through Amazon. I get them delivered to my front door and Amazon is cheaper than my local health food store.
The dose you take may (probably will) differ from the dose I take for several reasons. First and foremost, I am taking a “maintenance” dose being in complete remission. Secondly, you may be taking a “loading” dose having active or pre-myeloma. Thirdly, each brand of supplement differs in what it recommends for a daily dose. I will recommend the brand I take because I think it works best, of course.
I have cut and pasted the supplements from the article you came in on and I will try to address your question to each.
This list includes
curcumin, This brand of curcumin, “super biocurcumin” is the brand I take because of its absorbability. Please go to Margaret’s Corner as Margaret is managing her pre MM (SMM. I think) and she discusses doses for those with MGUS or SMM.
glutamine, I don’t take glutamine at this time-
vitamin D– the studies that cite vitamin D3 all talk about blood serum levels- you should have a blood test to find this out. The link is to the brand I take at 2000 mg daily. But you may be different.
Maitake mushrooms, I don’ take this currently-
fish oil, This is the brand I take- If you choose to take it, you should follow the label.
green tea, This is the brand I take, 750 mg daily- the dose on the label-
>milk thistle, This is the brand I take, maintenance dose (small)
Astragalus, I don’t currently take this
melatonin, My brand but only take once a week as needed-
and probiotics.”don’t currently take-
I hope this helps Judy. Let me now if you have other questions.
David Emerson
ReplyDavid,
My father is currently battling pancreatic cancer with meta to the liver and lung. He’s currently undergoing chemotherapy, being administered 4 rounds of gemcitabine. My question was pertaining to supplementation. He’s currently taking approx 4000 mg of curcumin daily, 4000mg of fish oil daily and I just had him begin taking garlic supplements (I read that garlic was one of the most effective cancer fighting spices) as well as milk thistle (approx 300mg/day) in an attempt to detoxify his liver. Any thoughts on this regiment? Any more supplements he should be taking? Thank you so much for your help!
Hi Steven-
I am sorry to learn of your father’s pancreatic cancer diagnosis. I think that it is correct to pursue integrative therapies. My research of integrative therapies to gemcitibine chemotherapy indicates that you are right on track.
Further, I have also read that garlic fights cancer. And yes, milk thistle both detoxifys the liver in addition to also fighting cancer.
Milk Thistle and cancer
My only suggestions are to ask about the brand of curcumin you are taking. I take Life Extension Foundation’s Super Bio-Curcumun- LEF touts this brand’s ability to enter the blood stream though I haven’t read studies to verify this. But 4 grams (4000mg) is a strong dose. I have read about some people taking 8 grams daily but I have no personal experience with this dose.
To confirm, the integrative approach you are pursuing should offer a distinct advantage over conventional pancreatic therapy alone. As for other supplements that I have researched, below please find two blog posts that I wrote that list a number of non-conventional pancreatic cancer therapies.
Pancreatic cancer- Complementary and Integrative therapies-
Integrative therapies may be the answer in pancreatic cancer-
Please let me know if you have any questions. Thanks and hang in there.
David Emerson
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