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Hi,
My husband was recently diagnosed with stage 2 MM. He can barely walk with a walker, he has 3 back compression fractures, he lost around 30 pounds and he is in great pain. We start treatment in March at Sylvester Cancer Treatment Center. What should he do until the
treatment begins? What is the best treatment?
My husband was recently diagnosed with stage 2 MM. He can barely walk with a walker, he has 3 back compression fractures, he lost around 30 pounds and he is in great pain. We start treatment in March at Sylvester Cancer Treatment Center. What should he do until the
treatment begins? What is the best treatment?
Hi Beth,
I am sorry to read of your husband’s compression fractures. While his standard MM therapy plan (induction, ASCT, maintenance therapy) should reduce the lesions in his spine, this therapy will take time. I would think that your oncologist would be offering info about a procedure called kyphoplasty. See the link below.
Please ask your oncologist about local radiation (to kill the lesions in your husband’s spine) followed by kyphplasty.
Good luck,
David Emerson
https://pubmed.ncbi.nlm.nih.gov/30808868/
ReplyOn July 3, 2019 I found out I had multiple my Loma and I was in the second stage since then I’ve gone through some treatments. I’ve done a bone marrow transplant within a year and 11 months I was back out of remission my son does not want me to do another bone marrow transplant. Please help me know what I need to do to help myself diet mind medicines I just need help so I can figure out what I need to do to keep me going. Thank you. God bless.
ReplyHi Margaret-
I replied to you via email. If you don’t find my email in you inbox please check your spam folder.
David Emerson
ReplyThank you for this hope. My brother and I both have this disease. He is in remission. I was diagnosed this May. I am a certified health coach and have been eating very healthy for many years. I think the stress from taking care of my Mom caused this to happen now. Maybe I have bad genes? I am doing conventional treatments as that is all I can afford. I have been able to get free drugs. I hate putting these chemicals in my body. I am doing better, but seemed to have stalled at an M spike of 2. I am feeling very discouraged and don’t have insurance as yet to do the bone marrow transplant nor do I think I want to do that. Any insights you can give would be most appreciated. I have several siblings who could be at risk if this is genetic.
ReplyHi Ruth-
I replied to you via email. Let me know if you have any other questions.
David Emerson
ReplyI’ve completed stem t plant 8 months
Looking for ways to work naturally on MM
My husband was just diagnosed with MM with 70% in bone marrow but no outward symptoms or irregular levels on other testing….The doctor kept using the word “surprising’ ….We do not want to proceed with chemotherapy but do not know how to get other sound advice….We immediately began some nutrition protocols but I see from some answers here that I would even need much more guidance for these protocols…What would be the best way to proceed in this case?
ReplyHi Shannon-
I replied to your post directly via your email.
David Emerson
ReplyMy mom was diagnosed with stage 3 multiple myeloma in Feb 2022. She has completed induction chemo, including revlamid, velcade, dexamethasone and darzalex. She also has had SCT 2 weeks ago with Melphalon chemo. So far she is doing well and Drs at Froedtert in Milwaukee WI are happy with results. She is home, I am seeking information on lifestyle and mindest changes she can make to enhance her life with this disease. Thank you!
ReplyMy husband 59 yo was diagnosed with MM yesterday
10% and neuropathy to feet. He rides a bicycle for up to 2 hours. He is 6 feet tall and weighs 158. He used to weigh 174. I am looking for naturopathic treatment to build his immune system. His Hematologist wants to send him to Dana Farber fir clinical trials/observation. Please Advise, Monica
My Dad was recently diagnosed with MM. I want to help in any way I can. I have him taking some supplements every day but would love any recommendations if you have any? Thank you so much.
ReplyHi Jared-
Please be careful as to which supplements you give your dad. For example, if his blood calcium is above average, he should not supplement with more calcium. If he is undergoing Velcade/bortezomib, he should not undergo either green tea extract or vitamin C.
In the area of anti-mm nutrition, there are specific foods that have been shown to cause apoptosis aka kill mm cells. In general, these foods are called anti-angiogenic.
Further, there are a number of evidence-based, non-conventional lifestyle therapies from moderate exercise (bone strengthening) to sauna (detoxifying).
How old is your dad? What was his stage at diagnosis (I,II, or III)? What symptoms if any? Vitamin D3 supplementation may alleviate nerve pain.
What therapies has your dad undergone, if any? An ASCT may or may not be the right therapy for your dad at this point depending on the info above.
Let me know. Hang in there.
David Emerson
ReplyMy dad has stage 3 myeloma
Any natural remedies that will help him I would be eternally grateful
I was tested today & in a couple days, everything as I know it may change. I am searching for alternative treatments now while I am not super stressed just in case.
ReplyHi Dianne-
I am sorry to read of your possible MM diagnosis. There are many complementary, integrative and alternative mm therapies though the key for you is to get a formal diagnosis in order to develop a therapy plan. Early stage mm is treated differently than advanced stage for example.
I encourage you to contact me again once you know your diagnostic testing specifics such as your m-spike, freelight chains, bone marrow biopsy results, etc.
In the meantime, hang in there.
David Emerson
ReplyMe again. Can you give me the names of Multiple Myeloma specialist in either the Midwest or Florida. I really can’t go to CA to see Dr. Berenson. 😔. Thank you.
ReplyI am looking for Multiple Myeloma specialists in Florida, as well. Thank you.
ReplyHi Cheryl-
There are mm specialists in both northern Florida as well as Miami aka southern Florida. Can you tell me what urban area you are closest to?
thank you,
David Emerson
ReplyHi David,
I have had MM for almost 6 years. I am on my 4th treatment. I am seeking natural ways to improve my chances of getting in remission and staying there for many years. You mentioned supplements. Could you share with me the supplements you take, the dosages, and the brands? I would appreciate it. Thank you.
Hi Patricia-
I will reply to you directly via email.
David Emerson
ReplyHi David,
My father has multiple myeloma. We are going through treatment and being told that stem cell therapy is the only route for sustained remission. However, he will need to remain on a chemo pill after the procedure so I am not understanding whether that is in fact an effective solution. I’d appreciate any advice. Thank you in advance!
ReplyHi Maria-
I replied to you directly via your email address.
David Emerson
ReplyMy best friend has had Myeloma cancer for about 10 years. She goes to UAMS in Arkansas every 6 months for a bone marrow biopsy. The cancer is coming back. Is there anything youd recommend that i could show her to use along with what her doctors are telling her?
Thank you
Hi Corey-
If you are saying that your friend was diagnosed with MM at least 10 years ago and has been in remission all this time, your friend has experienced a long progression-free survival aka PFS aka remission. While their practices are pretty aggressive, UAMS is a top-notch MM center.
There are several chemotherapy regimens that your friend can take to achieve remission once again. My guess is that he/she has not yet taken a chemo called Darzelex aka Daratumumab.
To answer your question, yes, there are many evidence-based but non-conventional therapies shown to kill MM. Specifically anti-angiogenic nutrition, any-MM supplementation as well as anti-mm lifestyle therapies such as exercise, whole body hyperthermia, etc.
I will send several MM CC course guides to your email inbox. Please consider the MM CC course for your friend both to lengthen and deepen remissions as well as boost your friends immune health in between bouts of chemotherapy.
Good luck Corey.
David Emerson
ReplyANYONE EVER HEAR OF “Multiple Myeloma’s Natural Calcium Cure”? Please email me at krymkowskithomas777@gmail.com if you have. I have some questions. Thanks. Tom.
ReplyMy sister has been told she has this Cancer, can you help with a natural approach. Thank You
ReplyHi Brenda-
I am sorry to learn of your sister’s cancer diagnosis. In order for me to suggest evidence-based, non-toxic therapies, I need to know her type of cancer (breast, leukemia, lung, etc.) and stage and any symptoms she is experiencing. ‘
Hang in there, thanks.
David Emerson
ReplyHi David,
Just learned this evening that my dad was diagnosed with MM. this was done with x ray and specific urine test for certain levels of something I’m not sure what it is.
The general doctor claims he is stage 0.25 so if that’s true that’s a good sign. He is going for consultation in a few days, Any tips on starting out with this in terms of finding the best doctor, nutrition, etc.?
Thank you.
My Mother In Law has just recently been diagnosed with Myeloma.
She hasn’t started treatment yet, but I was wondering if you could provide some insight in to what some other options would be for her treatment?
Thank you
Hi Gemma-
I am sorry to learn of your mom’s MM diagnosis. The therapy suggestions I can make depend largely on her diagnostic testing specifics. In other words, her age, stage (pre,I,II,III), bone or kidney involvement, co-morbidities (other health issues), for example, all enter into her treatment plan.
At the very least, I would encourage your mom to “pre-habilitate.” Meaning eat cleanly (I follow a Mediterranean diet myself), lots of anti-angiogenic fruits and veggies, exercise (a brisk walk every morning or moderate exercise).
More basics- are you seeing an oncologist who specializes in multiple myeloma? Studies show MM specialists offer much better guidance. Even if you meet with a specialist once or twice to determine your approach.
I don’t mean to complicate your mom’s life as a newly diagnosed MM patient. A few basic rules will help her live a better, longer life as a patient.
Let me know if you have any questions.
Hang in there,
David Emerson
ReplyI want to take this opportunity to thank you for your knowledge your sharing with other mm patients. I to believe in a holistic approach along with conventional medicine. Any natural health tips you could give would be greatly appreciated,and God Bless You! David Emerson
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