Newly Diagnosed Ewing’s Sarcoma

Share Button

Pediatric Ewing’s Sarcoma- Surgery, Chemotherapy, Possible Lung Metastasis, Resisting Radiation-

From: Andrea 
Subject: anything else?

Hi David:

Image result for image of ewings sarcomaMy 12 year old son was diagnosed with Ewings Sarcoma in September and has undergone 7 rounds of chemo so far (7 more to go).  

The tumor was found in his toe and they have surgically removed the toe. He has seen a few naturopaths that have put him on lots of supplements and we do a lot of alternative therapies, including changing our diet.

 He is doing well, but I just want to know if there is anything else we can do for his specific type of cancer.  They found spots on his lungs, but they are tiny (1-3 mm), and they remained exactly the same size after 6 rounds of chemo so they think maybe it’s something else (scarring, etc.?).  They want to do radiation but I am fighting that, especially if they can’t prove the spots on his lungs are cancerous.  It would be nice to talk with you about any other therapies, etc.  I can go into more detail on what we are doing as well, but wasn’t sure if this was the place I was to do that?  

Thanks so much!!

Hi Andrea-
I am sorry to read of your son’s cancer diagnosis. However I am glad to read that your son is responding well to chemotherapy. Further, I am happy to read that you have “seen a few naturopaths.” It sounds as though your son’s Ewing’s Sarcoma was localized and as such there is a 70% chance of a cure according to research. You are correct to be concerned with radiation to your son’s lungs if the spots on his lungs are not cancerous.
I am happy to talk with your further about your son’s cancer. In particular I will focus on the long-term and late stage side effects of chemotherapy for pediatric cancer patients. As an adolescent and young adult (AYA) cancer survivor myself I have learned about the long-terms effects of conventional therapies from personal experience.
I am a cancer survivor and cancer coach. Let me know which chemotherapy regimens your son has undergone.
Thanks and let me know if you have any questions. 
David Emerson
  • Cancer Survivor
  • Cancer Coach
  • Director PeopleBeatingCancer

What Happens After Ewing’s Sarcoma Is Treated?

“When a child is treated for cancer, conditions can develop later in life that stem from that treatment. These “late effects” vary from child to child and depend largely on the kind of treatment received. Radiation and the drugs used in chemotherapy damage normal cells as well as the cancer cells, and over the long term that can have an effect on the brain, which may result in learning difficulties. Other late side effects may impair hearing and vision and growth and development, as well as have an effect on the the heartrespiratory system, and other organs.

Children can also develop second cancers. For example, some chemotherapy drugs can cause leukemia, or a new cancer can develop at the site of radiation therapy. In addition, there is always the possibility of a recurrence of Ewing’s sarcoma.”

Leave a Comment: