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Non-Hodgkin’s Lymphoma – Nodular Sclerosis-Out of Remission-Help!

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The overall percentage of toxic deaths for Non-Hodgkin’s Lymphoma patients was 5.4%, while in the group of patients transplanted with PBSC it was only 1.3%...”

From: Lea 

Subject: Non-Hodgkin’s Lymphoma

Hi David,
Patients affected with non-hodgkin's lymphomaI was diagnosed just after my 33rd birthday with NSHL (Nodular sclerosis) stage 2a all favorable. I was told I had a 96 percent cure rate with a 6 cycle course of ABVD chemotherapy.

Fast forward to right now 18 months later I relapsed and am just devastated. I’m told my only chance at a possible cure is salvage chemo with Autologous Stem Cell Transplant and beam chemo.
I just started my first course of salvage chemo called GDC and am so nervous as my chance of cure has been cut in half. I’m trying to focus on mental strength. Healing from within, meditation and chakras.
Any possible information or info that might help me would be greatly appreciated. Possible alternative treatments, combined treatments or other options would really help.

Thank you!

Hi Lea, 
I am sorry to read of your Non-Hodgkin’s Lymphoma diagnosis and relapse. Thanks for your kind words also. If you find my story to be inspiring then keep in mind I too relapsed after a brief remission from my blood cancer. And here we are almost 20 years later… 
First and foremost, the chemotherapies you refer to above means that your body will undergo a lot of toxicity. Your oncologists believe you have to do this in order to reach complete remission. As a blood cancer survivor myself who is living with many long-term and late stage side effects from my own ASCT I encourage you to undergo integrative therapies to reduce your risks of collateral damage. 
Specifically-
1) Regarding ABVD- I know that you completed this therapy regimen. I am bringing it up only to point out long-term or late stage side effects caused by this cocktail. I underwent vincristine chemotherapy in 1995 (VAD). I developed heart damage (afib) in 2010. I want to research the other chemotherapies for long term side effects in order to try to prevent the side effects. Or at least reduce your risks. 
2) GDC Chemotherapy regimen- this chemo cocktail appears to be fairly new. Again, I would like to research this therapy more to determine success rates and possible side effects. I know of several antioxidant supplements that work integratively with gemcitabine and cisplatin to enhance the efficacy while reduce toxicity.
3) Regarding BEAM chemotherapy followed by an autologous stem cell transplant please read the study linked and excerpted below to learn about outcomes. 

“In the present paper, we evaluate tolerability, outcome and prognostic factors in patients with poor prognosis non-Hodgkin’s lymphoma (NHL) and Hodgkin’s disease (HD) when uniformly treated with BCNU, etoposide, cytarabine and melphalan (BEAM) and autologous stem cell transplant (ASCT)…

The overall percentage of toxic deaths was 5.4%, while in the group of patients transplanted with PBSC it was only 1.3%...”

 

 

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