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Avascular Necrosis- ESWT Therapy
Avascular Necrosis is a possible side effect of high-dose dexamethasone therapy. A diagnosis of multiple myeloma led to high-dose dexamethasone therapy combined with several different chemotherapies over
Continue readingWhat Do Myeloma Patients Prefer?
What do myeloma patients prefer? When I listened to the video and read the study below, I heard quality of life vs. length of your first remission (PFS). To me, “less toxicity” means quality
Continue readingNewly Diagnosed Multiple Myeloma- Best Plan
You are a newly diagnosed multiple myeloma patient wondering about the best therapy plan for you to undergo. Like most NDMM patients, you want the longest progression-free survival (PFS) with the least
Continue readingEGFR ligand amphiregulin in Myeloma?
Could radiation therapy stimulate EGFR ligand amphiregulin in Myeloma? And then could this stimulate distant MM growth in MM patients? Full disclosure- I am a long-term MM survivor, not any type of medical
Continue readingGut Microbiome, CAR-T, Myeloma
Can the gut microbiome influence CAR-T therapy for myeloma? According to the study linked below, bacterial diversity in your gut enhances your response to CAR-T therapy. This finding really shouldn’t
Continue readingAnnual CT Scan for SMM???
What are the risks and benefits of an annual CT scan for smoldering multiple myeloma (SMM)? While the article linked below promotes this practice, how should SMM patients think about this practice? As
Continue readingPros Cons Titanium Myeloma
What are the pros and cons of using titanium for myeloma bone damage? You’ve been diagnosed with a blood cancer called multiple myeloma. The MM has damaged one or more of your bones, and your doctor
Continue readingWhy Does Revlimid Cost So Much???
Why does Revlimid cost so much? According to the article linked and excerpted below, the company that manufactures it can raise the price of this myeloma drug anytime it wants. While the article about
Continue readingSalvage Transplant in Myeloma?
Does salvage transplant in myeloma help MM patients live longer? According to the research linked below, no, salvage ASCT shows no survival benefit. To be clear, a salvage ASCT is not an FDA standard-of-care
Continue readingPill Swallowing w/ Dysphagia
Pill swallowing with dysphagia gives me fits. I’ve never completely choked (died) on a pill or capsule, but I have come close on many occasions. I am a long-term survivor of a blood cancer called
Continue readingAutologous Stem Cell Transplant for Myeloma?
How long will an autologous stem cell transplant for myeloma keep you in remission? This is one of the most frequently asked questions posted in online MM groups. The answer to this question depends on
Continue readingCan Myeloma Fractures Heal?
Can myeloma fractures heal? Yes, they can, though it is more difficult for bones to heal as we age. Or I should say that fractures that healed quickly when we were young now take longer to heal, if at
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