Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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My mother has just been diagnosed with symptomatic MM at age 65. She told me that her RBC count had dropped from 140 in September to 104 in December which is why docs were alerted.
My mom does not know her monoclonal protein (m-spike) count. She is also pretty much asymptomatic ie. she does not have any:
However, the doctor said that if left untreated, it could lead to severe kidney/renal complications.
Her treatment plan is Bortezomib via injection once a week with Dexmethasone and a new drug on the market called Lenalidomide taken orally for 4 months followed by a stem cell transplant.
That’s as much information I know so far. We have a proper meeting with the doctor next week to discuss the treatment plan in more detail.
I don’t know much about chemo but what I do know is that it’s long term impacts on health can sometimes be worse than it’s ability to rid the body of the cancer cells.
This is why I’ve been researching about alternative methods to support the conventional way or limit the more harmful treatments if we have the choice.
Thanks for your time David and I look forward to your reply. Nancy
I am sorry to learn of your mom’s symptomatic MM. Thanks very much for this basic information about your mom’s situation.
While I agree with your mom’s oncologist that your mom should undergo treatment to stabilize her MM, the issue for you and your mom to consider is the amount of treatment, the amount of toxicity that your mom has.
When you say that your mom is relatively asymptomatic, it makes me think that she is early stage MM. That she does not need a lot of chemo to stabilize her MM.
A growing number of studies (see below) document that newly diagnosed MM patients like your mom can achieve a deep response with VRD and that more chemo, an ASCT, does not lead to a longer overall survival aka length of life.
More chemo means more toxicity which can lead to short, long-term and late stage side effects.
If you register for the MM Cancer Coaching program and consultation I will be able to study her diagnostic information, determine your mom’s stage, if she is experiencing any bone or kidney involvement and be more specific with you about
My belief is that the MM CC Program and Consultation will enable you and your mom to understand you mom’s situation and make better decisions for her MM and her quality/length of life going forward.
Let me know how you would like to proceed
Hang in there,
“The frontline therapy for newly diagnosed multiple myeloma (MM) has continued to evolve over the last 10 years. There has been a growing emphasis on achieving the best depth of response in the context of minimal residual disease negativity, given its prognostic correlation with superior overall survival.
Another important area of emphasis has been to improve prognostication and staging by including information on disease biology. There also a growing appreciation of global differences in drug access and patterns of care…
The most pertinent decision in the treatment of NDMM is a patient’s appropriateness for transplant with subsequent management based on this choice. Although there are no universally agreed upon transplant eligibility criteria, several factors such as age, performance status, and patient comorbidities are important tenets in determining a patient’s eligibility…
The advent and widespread use of the immunomodulatory agents and proteasome inhibitors in the frontline treatment of MM has significantly improved OS. Currently, 50.7% of all patients with MM are living more than 5 years, yet stratification by the Revised International Staging System (R-ISS) demonstrates significant variability with 82% of stage I patients living more than 5 years…”