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Multiple Myeloma
Video

The Multiple Myeloma Coaching Course

3 Modules 1 Chapter 14 Lessons

About this course

In this course, we cover the full-spectrum of Multiple Myeloma issues from conventional therapy options and side effects to nutritional support and managing your mental health, all with a back bone of evidence-based studies to guide our decision-making process.

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Course Outline

ONLY FOR COURSE REGISTRANTS
1 Chapter

Module 1: Conventional Multiple Myeloma Therapies

Let's get started. 6 Lessons

Lesson 1: Symptoms and Side Effects

  • The difference between disease symptoms and treatment side effects
  • The concept of short term, long term, and late stage, and why a familiarity with long term and late stage side effects is critical for planning
  • How pain factors into this matrix of side effects— is it a disease or a treatment side effect?
  • Palliative care is not hospice care. Discussion of pain management during treatment.

Lesson 2: Diagnostic Testing and Staging

An overview of the various diagnostic tests used to diagnose and monitor Multiple Myeloma and what they measure.

Lesson 3: Questions for Your Oncologist

  • How to manage your oncologist
  • The importance of a second opinion
  • The importance of a Multiple Myeloma Specialist or Multiple Myeloma Center of Excellence and how to find one

Lesson 4: Conventional Therapies

  • Chemotherapy, radiation, auto/allo SCT, R/R therapies for Multiple Myeloma
  • Overview of treatments—what they are, my experience
  • Question of when to do an ASCT if at all
  • Prehabilitation—what it is and why it is so important

Lesson 5: Relapsed Refactory

  • What "the right to try" initiative is for end-stage cancer patients
  • In-home hospice care vs. hospital care
  • How making decisions for end-stage care can help you prepare just in case

Lesson 6: Elderly Multiple Myeloma Care

  • The long-game for cancer-related financial planning
  • Bankruptcy
  • Disability—my experience with filing for disability
  • Medical insurance—in vs. out of network, deductibles, etc.
  • Viatical settlements
ONLY FOR COURSE REGISTRANTS
6 Lessons

Module 2: Evidence-Based, Non-Conventional Therapies

Lesson 7: Non-Conventional Therapies

  • What are “alternative” therapies?
  • What is the “evidence” that we are basing these therapies on?
  • How can you use evidence-based therapies? (Overview)
  • Discussion of the top evidence-based alternative therapies for Multiple Myeloma

Lesson 8: Integrative Therapies

  • What evidence-based integrative therapies are and what they do-- they "integrate" with conventional therapies to enhance outcomes and alleviate side effects
  • A reminder about the importance of "evidence-based" a tool for evaluating therapies.  There should always be a study to read for any therapy you are considering.
  • The challenge of evaluating the studies' results vs. your oncologist's advice

Lesson 9: Bone Health

  • Multiple Myeloma as a bone disease and a blood disease
  • How to manage bone health
  • The risks and benefits of conventional bone health therapies

Lesson 10: Nutrition and Diet

  • Why supplementation and nutrition are defined as "non-conventional therapies"
  • The top evidence-based supplementation protocols specific to Multiple Myeloma
  • What an anti-angiogenic diet is and why it is important ongoing

Lesson 11: Supplementation Therapies

  • Evidence-based supplementation protocols you can start today.

Lesson 12: Curcumin/CBD

Cannabis for Multiple Myeloma and its attending issues of sleep trouble, loss of appetite, and treatment side effects.

ONLY FOR COURSE REGISTRANTS
2 Lessons

Module 3: Issues

Lesson 13: Caregiving

  • Whether you are a Multiple Myeloma patient with a caregiver, or a caregiver to a Multiple Myeloma patient, it is important to acknowledge the particular shifts that can take place when a caregiving relationship develops as both parties have unique needs
  • How to manage day-to-day responsibilities
  • Navigating burn-out
  • The importance of asking for help
  • How I navigate the caregiving relationship I have with my wife, my primary caregiver

Lesson 14: Online Support

  • The value of experience-based information
  • Discussion of online support network options
  • An overview of how to evaluate the information you find online
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