Multiple Myeloma
Video

The Multiple Myeloma Coaching Course

3 Modules 1 Chapter 19 Lessons

About this course

In this course, we cover the full-spectrum of Multiple Myeloma issues from conventional therapy options and side effects to nutritional support and managing your mental health, all with a back bone of evidence-based studies to guide our decision-making process.

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Course Outline

ONLY FOR COURSE REGISTRANTS
1 Chapter

Module 1: Multiple Myeloma Diagnosis

Let's get started. 9 Lessons

Introduction

Let's talk about what we're going to cover in this course.

Lesson 1: Symptoms and Side Effects

  • The difference between disease symptoms and treatment side effects
  • The concept of short term, long term, and late stage, and why a familiarity with long term and late stage side effects is critical for planning
  • How pain factors into this matrix of side effects— is it a disease or a treatment side effect?
  • Palliative care is not hospice care. Discussion of pain management during treatment.

Lesson 2: Diagnostic Testing and Staging

- The diagnostic testing “rules of the road” - CRAB - SLiM - Staging

Lesson 3: Questions for Your Oncologist

  • How to manage your oncologist
  • The importance of a second opinion
  • The importance of a Multiple Myeloma Specialist or Multiple Myeloma Center of Excellence and how to find one

Lesson 4: Conventional Therapies

  • Chemotherapy, radiation, auto/allo SCT, R/R therapies for Multiple Myeloma
  • Overview of treatments—what they are, my experience
  • Question of when to do an ASCT if at all
  • Prehabilitation—what it is and why it is so important

Lesson 5: Relapsed Refactory

What remission means What is means to be relapsed and refractory Outside the box RR/MM therapies

Lesson 6: Elderly Multiple Myeloma Care

Definition of “elderly” in multiple myeloma care Why treating elderly myeloma is different than the average patient Elderly Issues

Lesson 7: High Risk Myeloma

What is “high risk” in multiple myeloma? What is “ultra high risk” Aggressive, less aggressive therapy plans

Lesson 8: Extramedullary Myeloma

What is EMD? Extramedullary disease? Why is EMD so challenging for the MM patient? EMD therapy plans
ONLY FOR COURSE REGISTRANTS
7 Lessons

Module 2: Evidence-Based, Non-Conventional Therapies

Lesson 9: Non-Conventional Therapies

  • What are “alternative” therapies?
  • What is the “evidence” that we are basing these therapies on?
  • How can you use evidence-based therapies? (Overview)
  • Discussion of the top evidence-based alternative therapies for Multiple Myeloma

Lesson 10: Integrative Therapies

  • What evidence-based integrative therapies are and what they do-- they "integrate" with conventional therapies to enhance outcomes and alleviate side effects
  • A reminder about the importance of "evidence-based" a tool for evaluating therapies.  There should always be a study to read for any therapy you are considering.
  • The challenge of evaluating the studies' results vs. your oncologist's advice

Lesson 11: Bone Health

  • Multiple Myeloma as a bone disease and a blood disease
  • How to manage bone health
  • The risks and benefits of conventional bone health therapies

Lesson 12: Nutrition and Diet

  • Why supplementation and nutrition are defined as "non-conventional therapies"
  • The top evidence-based supplementation protocols specific to Multiple Myeloma
  • What an anti-angiogenic diet is and why it is important ongoing

Lesson 13: Supplementation Therapies

What specific nutritional supplements supplements are cytotoxic (kill) multiple myeloma? Which of the 19 supplements do I take? Do antioxidants interfere with chemotherapy and radiation?

Lesson 14: Kidney Involvement

Conventional therapies that damage kidney health Diagnostic tests to measure kidney function Conventional and non-conventional therapies to improve kidney function

Lesson 15: Curcumin/CBD

Benefits of both curcumin and cannibidiol aka CBD oil Brands, dosing Where, what states?
ONLY FOR COURSE REGISTRANTS
3 Lessons

Module 3: Issues

Lesson 16: Caregiving

  • Whether you are a Multiple Myeloma patient with a caregiver, or a caregiver to a Multiple Myeloma patient, it is important to acknowledge the particular shifts that can take place when a caregiving relationship develops as both parties have unique needs
  • How to manage day-to-day responsibilities
  • Navigating burn-out
  • The importance of asking for help
  • How I navigate the caregiving relationship I have with my wife, my primary caregiver

Lesson 17: Online Support

  • The value of experience-based information
  • Discussion of online support network options
  • An overview of how to evaluate the information you find online

Lesson 18: Financial Issues

Multiple myeloma care is expensive and can last for years! What is financial toxicity? Know your health insurance plan SSDI? What are vatical settlements?
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