Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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According to the study linked below, toxicity is underrepresented in clinical trials. Are you a myeloma patient? Do you rely on info from clinical trials to guide your therapy plan? I have. The main issue
Continue readingWhat is the inherited risk of myeloma? If any? This question is frequently asked in online groups. If you have a relative with MM, what are your risks of MM? If you watch this video you probably won’t
Continue readingHow should myeloma patients handle physical changes to ourselves? When I read HALEY GROCE‘s article linked below I was surprised by how well she understood the challenges. I had forgotten how long
Continue readingASCT vs. CAR-T for myeloma? What’s the difference between these two procedures? Should you choose one over the other? Or have both? In fact, the two procedures are very different. Yes, both procedures
Continue readingAccording to research 20%- 50% of patients with multiple myeloma develop renal disease, most commonly from AKI (acute kidney injury) caused by cast nephropathy. The range is so wide, because of the basis
Continue readingHow does SpineJack for compression in myeloma differ from vertebroplasty and kyphoplasty? Which is better? What are the possible side effects? I often tell MM patients how much MM management has improved
Continue readingAccording to research 40%-60% of myeloma patients present with kidney involvement upon diagnosis. Healing kidneys in multiple myeloma is essential to say the least. As the video below explains, determining
Continue readingCytokine release syndrome (CRS) and neurotoxicity after CAR T-cell therapy are serious treatment-related adverse events. Both CRS and neurotoxicity are potentially life threatening. I’m writing about
Continue readingMyeloma and chemobrain have finally come of age. Coming of age may have taken decades but the information linked below finally talks about chemobrain as a serious side effect of chemotherapy. I have lived
Continue readingWhat is a relapse for myeloma patients? What is progressive disease? What is a RR/MM aka relapsed/refractor for myeloma patients and survivors? Scanxiety- regular blood, urine and imaging diagnostic testing,
Continue readingWhat health insurance denials do myeloma patients have to deal with? To put this another way, managing MM is expensive- even just the deductibles and co-pays. The last thing you need is for your health
Continue readingIf you knew that long-term myeloma survivor immune systems were progressively weakened by all forms of chemotherapy would your therapy plan change? Truth be told, I think most people have seen long-term
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