Extramedullary myeloma treatment is different enough from conventional treatments for multiple myeloma that it requires special mention. I know this because I originally presented with what may have been
Continue readingI’ve written about MGUS symptoms many times before. It is well established that monoclonal proteins cause a variety of symptoms. There is no greater challenge to the MGUS patient experiencing symptoms
Continue readingI have recently been diagnosed with Marfan Syndrome. I am also a cancer survivor whose conventional therapies left me with a host of long-term and late stage side effects. As a result, I would prefer
Continue readingAccording to the excerpt linked below, a number of identifiable risk factors have been identified by conventional oncology. Factors that increase the risk of progression of MGUS, SMM to Myeloma. If you
Continue readingWhen should you begin treatment for smoldering multiple myeloma (SMM)? To put this question another way, what is the benefit of treating SMM? In my experience as a long-term MM survivor, all conventional
Continue readingWhich occupations increase myeloma risk? While there is no known “cause of myeloma, there are known risk factors. Certain occupations can increase the risk of myeloma more than others. What is Multiple
Continue readingA diagnosis of multiple myeloma is stressful. Chemotherapy brings side effects. Chemotherapy-induced hair loss in myeloma can be one of the most stressful side effects for many. Fortunately, there are
Continue readingIt really shouldn’t be a surprise to document cardiovascular risks in older myeloma survivors. Though the article linked below cites heart risks for all older cancer survivors, my experience as a
Continue readingWhat is the relationship between melatonin and age-related macular degeneration (AMD)? What is AMD anyway? What is AMD? “AMD is a common condition — it’s a leading cause of vision loss for
Continue readingThe FDA has approved Sarclisa with RVd for transplant-ineligible myeloma patients as a first line or induction therapy. “Transplant-ineligible is a term that refers to patients who, due to older
Continue readingEarly Palliative care is NOT end-of-life care for MMers. For the sake of this blog post, the phrase “advance care planning” or “symptom management” makes more sense. We all think
Continue readingAccording to the research below, CAR-T therapy used upfront for high-risk myeloma patients works well. As always however, the devil is in the details. If you are diagnosed with high-risk MM your therapy
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