Thank You Walthall for your support of Multiple Myeloma Patients
I Wish I Knew Then What I Know Now
I am a long-term MM Survivor and MM Cancer Coach. Telling you that I made mistakes for several years after my diagnosis doesn’t explain the half of it. I am lucky to be alive more than 20 years after my the diagnosis of MM, an incurable blood cancer. Here is my story…
In late January 1994 I went to a local outpatient clinic on my way home from work one night. The pain in my neck that had been bothering me for a few months was getting worse so I thought I would try to find out what was wrong with me.
I went under the knife early on a Tuesday morning and woke up eight hours later. I was told that I had multiple myeloma. I was told that myeloma was incurable but very treatable (?). I was told that I had a single plasmacytoma that may not become multiple myeloma. I was diagnosed with “pre” multiple myeloma.
I underwent induction chemotherapy (V.A.D.) in April of ’95. I had more chemo (Cytoxan) that September and an autologous stem cell transplant in December of 1995. Over the next two years I had two relapses, palliative radiation and then my oncologist told me “there is nothing more that we can do for you.”
I was young (36) and in otherwise good health and I had a difficult time thinking that I was end-stage. Perhaps I was in denial…and a little angry. Okay, I was a lot angry.
During the summer of ’97 my wife did some research on the Internet and found a clinic in Houston, Texas called The Burzynski Research Institute (BRI). I knew NOTHING about alternative cancer therapy. I only knew that I had to do something about my cancer (that was beginning to really hurt). I didn’t want to go to Germany (Dr. Hans Neiper), the Bahamas (IPT), or Mexico.
In November of 1997 I traveled to the BRI where I began antineoplaston therapy (ANP), a non-FDA approved therapy.
My “incurable” cancer slowly retreated and I have been cancer-free since April of 1999.
My health insurance, Medical Mutual of Ohio, deemed the chemotherapy that took me from end-stage cancer to cancer-free to be “not medically necessary.” So they didn’t pay for it.
I spent the next few years wondering if I would relapse. After all, I was told that all MMers eventually relapse and die. A lived through many short, long-term and late stage side affects from my conventional therapies. I still fear a relapse of my myeloma or a secondary cancer from all the chemo and radiation I underwent from ’95-’97.
I launched the Galen Foundation DBA PeopleBeatingCancer in 2004. I spend my time researching cancers, blogging about cancer issues and working with cancer patients, survivors and caregivers. It may sound odd but I find cancer interesting. Coaching cancer patients, survivors and caregivers has become my passion.
ANP from the Burzynski Research Institute clearly put me into complete remission from my end-stage MM. However MMers always relapse. Always. I have been in complete remission since 4/99 by living an evidence-based, non-toxic, anti-MM lifestyle through nutrition, supplementation, bone health, mind-body and lifestyle therapies.
I provide dozens of evidence-based, non-toxic, anti-MM therapies through my MM Cancer Coaching Program.
I’ve learned that if you are diagnosed with cancer knowledge is power.
- MM Survivor
- MM Cancer Coach
- Director PeopleBeatingCancer