Multiple Myeloma Diet

Please send the MM CC nutrition guide. I am fairly recently diagnosed, and have received absolutely no support from the doctors regarding nutrition or diet. I would appreciate anything you could share at this point. Thanks. Have a beautiful week. Dave

I am very happy to learn about your diet. I am almost done with my treatments of mm. 3 mores weeks. And I know that diet is very important but we have to know what to eat and not eat. So thank you again . I will do my best to read about it . My cancer came back to normal after 7 months but the doctor want to do the treatments for a year for controlling it better.i hope you can understand my English because I am from Quebec Canada. But I leave here for many years but I do speak French still a lot with my family. I am 74 years old. My cancer was in my spine only whe we begin the treatments. I am on revlimid.

I’m newly diagnosed and am learning as much as I can. Can you please share the diet you’ve developed with me? Thank you for your encouragement.

Hello, I have just been diagnosed with MGUS and very much appreciate your mention of Dr. Li’s work. I would be grateful for any information you might share about your own nutritional wisdom. Thanks

Hi David. I am a 9 year survivor having been diagnosed with SMM. I had a AST five years ago and relapsed 3 years later. I am currently in CR. I am fit and eat a pretty good diet but would appreciate a copy of your flexarian diet. Thanks so much.

hopefully that product will be nice

David is my coach and has shared his experiences and suggestions for me and many others. He does his best to support MM patients. He is a Living example of successful fighting

Hi David. I’m 52 and was diagnosed with SMM a year ago. I’m IgA Kappa and have an m-spike of 0.9 and 0.2. (Total of 1.1). I was working with a nutritionist who had me on the “Mitchell Page Diet and a daily routine of over 70 pills/supplements. My numbers have remained stable but did not go down as the nutritionist said they would with the regime he had me on. I am now seeing a new nutritionist. I’ve only had my initial consult, but the gist is that I’ll do the AIP diet for a month along with food sensitivity testing and a select and more targeted supplement intake. After a month, I will be able to add back certain foods I was able to eliminate so long as I don’t show an inflammatory response. I would love to learn more about your program to make tweaks. Thanks in advance for sharing your potentially life saving protocol.

[…] Multiple Myeloma Diet […]

Wow! I have MM. I was diagnosed in August 2015.
I am very interested in your
information, diet & exercise
program. How do I learn more?

My husband Don had a solitary plasmacytoma on his C5 disc and had surgery in December 2020 followed up with radiation. He has now been diagnosed with MGUS and we would like information, please. Thank you!

Please send me information for my husband, Bob, who was diagnosed last July and is now three months after autologous stem cell transplant. He is doing very well.

Do I have to become a mm coach in order to get the book and materials on the nutrition? I was diagnosed with MM this past February and will be having a SCT in July.. wanting to know more in the nutrition and foods to eat that will help this.

Very good video

I was recently diagnosed with mm. I am starting a RVD treatment then the stem cell transplant. Any advice or help with my diet? Thank you!

Where do you get your supplements resveratrol and curcumin Brand name How do you take them!

Venison ( lean meat ).

[…] Multiple Myeloma Diet […]

Hi David,

I have recently been diagnosed with Multiple Myeloma Stage 3 and I am leaning toward not doing the autologous Bone Marrow Stem Cell Transplant.

I would like your thoughts on this and I would like to know at what Stage you were diagnosed.

Thank you,

Tricia

I have had MM fir 6 years. Had a stem cell transplant 5 1/2 years ago. I am interested in learning about your flexatarian diet.

Hello David, thank you for posting this web on your own journey with dealing with MM, i think it was divine intervention that brought me here. My questions are actually for a loved one. Firstly, thank you for bringing up the MM specialist since the person i am speaking for does not have a specialist only an oncologists, who has been seeing him for over 1 year now, he will actually be getting a 2nd opinion because it seems that his body is not responding well now to Revlimid, his liver enzymes has been trending up and so he had to stop Revlimid 25mg for 1 session and was started on Vemlidy 25mg, it brought down the enzymes but once he started regimen again with Revlimid his enzymes now went up again, do you think the felxitarian diet will help him with this and help his liver? His doctor diagnoses him with smoldering MM so ue is not in late stage yet but now his current tx is affecting his liver. Secondly, do you have any tips to help with insomnia? He has been taken off dexa bit still has hard trouble sleeping and uses ambian everyday to be able to get at least 4hrs sleep. Thank you.

Hi, I would like to know more about multiple myeloma. I was diagnosed last year with mm.

Hello there,

You have an incredible story and it is EXTREMELY rare to hear of anyone discuss links between food and mm. In fact I have actually been told to eat fast food because it might make me feel better mentally! Additionally, while getting chemo I’ve been (almost) forced to eat cake and drink lemonade by the staff. Currently, I’m the ONLY patient in my clinic who has disagreed with these food/beverage offerings. I was diagnosed with stage 1 mm on 23rd march 2020. Currently I am on day +30 post sct. For most of my time since diagnosis I have followed a similar diet to what you have outlined (mostly plant based). My diet is like a cross between fruitarian and Mediterranean foods. Occasionally I eat small quantities of meat. Usually when I eat meat it is after a session with my personal trainer. Interestingly, since swapping over to plant based foods I have noticed massive improvements to my health despite going through chemo. I lost 14kg, gained 8% muscle mass, no flem, no inflammation, better digestion, no dandruff, no bloating/ gas, and feel quite energetic. Last year I typed up a weekly meal plan with some common dishes I eat regularly. Would you be willing to read through my documented meals and offer some advice on where I could improve/ what I could change etc?
Cheers, Dan

Thanks so much for this information

HalloIs thwrw a fb group.I will learn everything about alternativ treatmen for MM so curious.Thwrw is hope.Ilivemyself with MM

I want to learn more and join your group. I am an MM patient and want to learn more about your success,

Hi, because I had a lot of side effects from vevlimid,valtrex,and Dex the steroid and I am 79 years old I can’t have sct. I also have diebetes,hypertension, severe Arthritis. constants dirreaha problem any suggestions?

Hi, because I had a lot of side effects from vevlimid,valtrex,and Dex the steroid and I am 79 years old I can’t have sct. I also have diebetes,hypertension, severe Arthritis. Cordless is a constant problem any suggestions?

Hi, I am in desperate neeed and help and guidance my Mom was diagnosed in april2018 , we have not done any chemo or treatment. We want to heal this naturaly . She is having back pain in the vertebrae. Kidneys are still fine. Please help

Will like to start this diet

Hi I have MM Igg lambda , I am a vegetarian , my protein level was at 140 and after a week of chemo dropped to 80, plasma cells were at 16%, mspike at 68 something , what diet changes or lifestyle changes can I do?

I want to become an MM survivor and need to start eating correctly. I have completed my radiation treatments and am moving on to Cycle5 chemo. Even though I am having difficulty eating anything right now it is still a good time to start.

Do you have back pain and if so what did you do for that?

Hello!
I am recently diagnosed MM with plasmacytoma at T5. I haven’t been given a Stage yet. I’m trying to learn all that I can, and starting with diet. I was hoping you could tell me the recommended dosage for resveratol?

Thank you!

Foods for mm beating and bone strengthening.

[…] I eat as nutritious a diet as I can each and every day. The most popular blog post on PeopleBeatingCancer.org is simply titled Multiple Myeloma Diet.  […]

Please send info

My husband was diagnosed with mm two years ago. He had a stem cell transplant I. May 2019. He has nonsecretial mm. It is only in his bone marrow and can only be checked through bone marrow biopsies. It is very aggressive. Please send me information. Thank you.

I am interested.

I was diagnostic with M.M. About 2 or 3 yr. ago & had the stem cell transplant & I m under Dr. Care but I feel I m losing & need all the help I can get. Can U help me?

I was diagnosed with multiple myeloma in nov 2015.
I had a tumor on skull spine and hip.
The one on the hip broke my female.
I had to have radiation therapy and chemo, then in may 2016 I had a bone marrow transplant.
After that I refused all treatment and was good until may 2019when my numbers were up again, took no treatment, but in dec 2019.
I underwent emergency surgery to remove a mass which was on my vertebrae pressing on my spinal column causing me some awful symptoms, was struggling to walk had no balance, right eye couldn’t see out of it and was struggling with bladder issues.
The operation was only able to remove part of the mass, so I also had to undergo ten rounds of radiation, also had a mass on chest bone which was inoperable.
After all of that we tried five different types of chemo to which I had horrible side affects.
At the moment trying to go down a natural route, so any advise would be awesome and appreciated.
I was an international swimmer so I try to swim a few miles every week.
Thanks for any help you can give.
At the moment iam in remission
Jane pendrich

I have had MM since 2013. I am very healthy otherwise. I am currently in remission and on a chemo drug as preventive therapy. Would like to stay on your site and find it very interesting to hear other peoples ideas and situations.

I’ll be having a SCT soon waiting on another bone marrow biopsy first then if everything is o.k. then the transplant. I havent went by no kind of diets. ..guess I need to be doing that….I also got to STOP smoking ASAP smh…so hows it going since your transplant

I have been diagnosed with smoldering mylenoma. Would it help to do this ,so maybe it wouldn’t progress

I had MM can give me more information on it. I have had a relapse and worry now

Hi David, diagnosed 2 years ago low risk but 70% plasma cells. Have tried almost everything I have read short of conventional treatment. Still progressing but slowly. Slightly anemic but no other symptoms, Started RVD induction and scheduled for Transplant for now. I’m interested in anything I can do that does not interfere with treatment since I have committed to go this route. I would like to learn about the diet as well as supplement interactions

Hi David,
Thanks for this information as it seems to be the only one of its kind. I was diagnosed with MGUS after a blood workup by my rheumatologist for suspected RA. Went that was negative this protein IgA was found in my blood and I have been tested for 3 years in a row now by a hem/onc. This year my M-Spike went from 0.3 to 0.6. The dr didn’t even point this out but just said all is stable. I don’t show any other abnormalities on my labs. I brought to his attention the increase in the M-spike and he said that’s ok it’s stable. So frustrating! I need to take this into my hands. I need to lose about 40 lbs and I have started the circumin and reversatrol and cbd. Should I be so obsessed this being scared of MM? My aunt died of this and the Dr. said it isn’t inherited but when I research I see otherwise.

Hello! Thank you all of this wonderful information and I am so happy to hear that you are doing well after so many years! My dad is being tested for myeloma and the initial blood work is showing a few things off. M-spike at 0.3, kappa light chains at 63 and the kappa/lambda ratio at 6.7 so we aren’t sure what those mean until we meet with the doctor this week. He is certainly experiencing joint pain, but we aren’t sure if that is related or if it’s due to repeated overuse throughout the years. He’s a 61 yr old carpenter.

My question surrounds long term benzene exposure. Do you have experience with successfully removing benzene/toluene/etc from the body and repairing the damage done from the those harsh toxic chemicals? He uses the sauna, sweats a lot at work during the summer, drinks filtered water, eats organic and incredibly well (mostly vegetables, fruits, nuts, seeds, beans, legumes, healthy fats and occasionally meat from a local organic farmer, no sugar, gluten, corn, dairy, soy). He has also started drinking green, dandelion and essiac tea, juicing, taking 3 grams of vitamin c (spread out), vitamin D3+K2, and now starting curcumin. While I think this is a great start, I think the best thing is to go after root cause which we believe is the benzene exposure. I’d love to hear if you have or know anyone that has successfully detoxed the body in a healthy way to get rid of the benzene and company. Sorry for the novel here! Thank you again for all that you do!

I would love to hear more about your diet…some encouragement on.living with end stage aggressive MM and specifically what to ask my dr about re alternative therapies and supplements. I already (flexibly) go by the eat right for your blood type presently. So encouraged to hear the year 25! Dr said I should have been dead by last March after 29months but I am still here!! Suffering on chemo weeks but still here!! Thankyou!

David,
What is the best way to take curcumin in your opinion? (I am not sure I want to mess with making my digestive track more porous with black pepper..)
And what is the best daily quantity? My hematologist told me today that too much can be dangerous.
I should say that after 27 years of having MM without treatment, following a tandem bone marrow transplant in 1993, and then watching the kappa/lambda ratio creep up through the years, it finally became very active and forced me to undergo radiation and then DARA, ledalidomide, and dexamethasone, of which I have completed two months so far.
David E.

Hi, found what you have to say interesting. I was diagnosed Jan 2019 with Stage 1 -2 MM. High Risk translocation 14:16. 60% myeloma cells present. Picked up by my PCP with an elevated Protein, she ran with it. and recommended the oncologist I see. I was 68.PET scan neg. I have achieved complete remission since 10/19. I was started on Revlimid 25, Velcade and Dex. Turns out I was allergic to the Velcade. Intermittent use of 2 other drugs and now on decreasing dose of only Revlimid 20 to now 15 mg. Bone marrow and cytogenic study negative 2 weeks ago. I am careful with my diet lots of fruits/veg, almonds and use many supplements including IP-6 and tumeric, B12, B complex Vit C, D3, Krill Oil. I do not drink and never smoked. I have not had a stem cell transplant and have felt well throughout treatment. I also practice Reiki and have many prayerful friends. I do not own this disease ( God is my physician) but follow Dr’s orders and have armed myself with as much as I can to bring about God’s miracle. I am a retired RN. I belong to no support group but gather info here and there. Thought I would share my story…..feeling very blessed. Glad you are there to help people from your experience.

Hi David… my name is Jamie. I was diagnosed with MM at 40 yrs of age.
I went to the hospital with back pain and they found some lesions on a couple of my disc and fewer. I went through 5 rounds of chemo followed by a stem cell transplant. Since then, I was put on 10 mg of Revlimed and there are no traces of m protein in my system. At this moment, I am feeling terrific, besides some pain that I get around the laces where the lesions were found, but overall back doing all the active stuff that I always did ( ie hockey, weight training). I always kept myself in good shape, but since being diagnosed I wanted to make sure that I was putting food back into my body that, I thought would help ward off the Myeloma from coming back. I guess, something I can do than just asking the revlimed to do all the work. I’m very much into nutrition, and I have read some articles about foods that aid in fighting this disease. If you have any info on nutrition that can help the fight against MM, I would very much like to see it. I’m not a fan of popping pills just to make things go away and I do believe Better nutrition Does help getting rid of diseases.
I enjoyed reading about your journey and applaud you on your 25 yrs beating this deserve. You are an inspiration and I after reading this, your story made me feel that nothing is impossible.
All the best

Hi David… my name is Jamie. I was diagnosed with MM at 40 yrs old. I went to the hospital with back pain and they found some lesions on a couple of my disc and fewer. I went through 5 rounds of chemo followed by a stem cell transplant. Since then, I was put on 10 mg of Revlimed and there are no traces of m protein in my system. At this moment, I am feeling terrific, besides some pain that I get around the laces where the lesions were found, but overall back doing all the active stuff that I always did ( ie hockey, weight training). I always kept myself in good shape, but since being diagnosed I wanted to make sure that I was putting food back into my body that, I thought would help ward off the Myeloma from coming back. I guess, something I can do than just asking the revlimed to do all the work. I’m very much into nutrition, and I have read some articles about foods that aid in fighting this disease. If you have any info on nutrition that can help the fight against MM, I would very much like to see it. I’m not a fan of popping pills just to make things go away and I do believe Better nutrition Does help getting rid of diseases.
I enjoyed reading about your journey and applaud you on your 25 yrs beating this deserve. You are an inspiration and I after reading this, your story made me feel that nothing is impossible.
All the best

[…] Multiple Myeloma Diet […]

Hi, I just got diagnosed with MM a month ago going for my biopsy on 9/11/2020

Dear David,

My grandmother and mother both lost their lives to MM. My mom passed on 2/2019 just 3 months after her diagnosis. She never had any pain at all. Its a long and complicated explanation. To make a long story short. She started her MM treatment and a week later was hospitalized with heart failure. She was gone a month later. Five months later I started having shortness of breath, rib pain, fatigue. I just had kidney stones and my kidney function is normal. I am pretty anemic as well. Also I need to drop about 60lbs. I haven’t seen a doctor yet. Im terrified. What do you recommend? Thank you!

Is this site still active? I would love information!

Is the USD199 payment for the coaching program a onetime payment/life time subscription?
Can the lessons be printed in a easy to read format in order to enhance studying?

Hi, my name is Angela and my husband was diagnosed at the age of 51 with an aggressive stage of MM 2 years ago, he had lesions on almost all his bones, compression fractures in his vertebrae and a lower back fracture and his creatin was 3.6 for his kidney function when he was diagnosed. He under went the normal cytoxin, revlimid, dexy therapy which got it under control, his kappa lambda light chains went from 9000 to 140 after a few cycles. And his creatin level is 1.3 We did a CAR-T clinical trial for newly diagnosed patients which put him in remission for about 3 months, but it came back at which time he had the stem cell transplant in the fall of 2019. He is on 15mg of revlimid and gets a Velcade shot every other week, which wipes him out for a few days. He changed to a completely whole foods plant based Vegan diet 6 weeks ago in an attempt to have more energy and to lose weight, which has not given him any relief from either. He walks about 3 or 4 miles everyday, except after the velcade days. The new diet has taken most of the back pain away and he is off all his pain medications. I guess my question is are there foods/supplements that help to off-set the energy draining side effects of the velcade and revlimid to some degree?

Thank you,
Angela

[…] Fruits and vegetables- both for MM and CKD- […]

Sean, what is the transition used between the photos?

[…] Multiple Myeloma Diet […]

My 60 yr old sister was diagnosed with MM about 3 years ago. She has had constant chemo throughout and a stem cell transplant about 1 year ago. She has been taking many supplements/vitamins all along. Doctors say she has refractory MM and in most cases the life span (with treatments) is only 5 years. Could supplements/vitamins be interacting with the chemo treatments preventing her from going into remission?

[…] Multiple Myeloma Diet […]

[…] Multiple Myeloma Diet […]

Hello David: Great work you are doing to get us informed! I was diagnosed with MGUS in 2016. I’m a 66 yr. old female, 5’3″, 115-119 lbs. My diet for the last 20 yrs. or so has been fairly clean ( at times I slip off the wagon with either gluten, sugar, dairy or non organic). Otherwise, I juice greens, carrots, beets, ginger root, turmeric root, and purchase as much local organic farm vegetables as possible and eat wild edibles (when available), I’m on a few supplements ( vit D3, Chaga tincture and sometimes chaga tea, Vit B12, sublingual, Curumin on occasion, vit C on occasion tablet form, every week or so I’ll make white cedar tea, or white pine needle tea and broccoli sprouts on occasion. I drink grass fed protein powder a few times/week. Very little to no toxic skin care products. Walking 30 min. 3-5 times/week. Hydrotherapy in the shower. I use an infrared Dome at home daily for a few hrs/day. I drink filtered water (Big Berkey). I take CBD oil and THC oil and 1-2 puffs of dried THC at night only for sleep. One registered massage therapy session/month. I have blood work once/yr and so far all is stable. I worry most of the time about this MGUS progressing. It’s on my mind most days which I know is not the best way to live. I stress easily. Are you able to calm my minds thinking in any way with your knowledge. I am really against conventional cancer treatments. Also, I’m not on any medical prescriptions except for the cannabis. Your thoughts would be much appreciated.

Hi David

I have MM & have recently undergone Induction Therapy & I am in the process of deciding whether to proceed with HDT-ASCT.I am 67yrs young & in reasonable shape although the induction therapy had given me peripheral neuropathy mainly in my legs & feet.
I have already changed my diet to a more vegan outlook although it wont be 100% . I am thinking along the anti-angiogenesis line with inclusive foods.
The question I am grappling with is do I call it quits on the conventional route & back my own gut feeling or complete the stem cell transplant with the treatment likely to worsen my neuropathy & maybe introduce other unwelcome side effects ?

Hi there, I have just been diagnosed with multiple myeloma. Still going through tests before treatment but wanting to arm myself with everything I can get my hands on. I know that diet plays a huge part. I NEED to know what foods to avoid and you did give a brief outline. I was also wondering if baking soda does any good?? Any advise would be great! Thank you for putting your info out there…gives us hope!

I was diagnose with MM four weeks ago, and currently receiving infusion once a week with other medications. Can you consume alcohol? If yes what kind? What kind of nutrition /food and supplements to take. What is non toxic MM therapies? Please I need your e book you have on MM …Thanks

David, I have had full blown MM since 2016 had stem cell transplant in 2017….I need assistance maintaining or fighting the growth of MM….In essence, I need coaching with diet, exercise, supplements, etc.
I look forward to hearing back from you.
Ken Rubin

[…] Multiple Myeloma Diet […]

Am happy tolerant that people can be healed on this

My granny(66) has been diagnosed with multiple myeloma for 3 years and our present medication is thalidomide and aspirin. Her legs are swollen often but the creatinine tests are fine. Please adivce me about the precautions for renal impairment🙏.

[…] Multiple Myeloma Diet […]

I was wondering if you could tell me what to feed my husband he was diagnosis 8 week ago and in on treatment he was a strong man but now can not walk without a walker , lots of pain right now his blood count is 44 which is not the best , I need to get the count up so what would be good for him , I love my husband of 36 years and I want so bad to make his life better.

how much fruit do you use? what kinds??

The BEST place in the WORLD for treatment and ultimate success is the UNIVERSITY OF ARKANSAS MEDICAL SCIENCES CENTER — UAMS Iin Little Rock, Arkansas. They are world renound and have probably the best success record of ANY institution anywhere!

[…] Multiple Myeloma Diet […]

Please do not post.
How much is your program. What if a person can not afford it?

Hello! My mother in law just found out she has MM and two masses. One in the back of her neck and an other one below her kidney. We are devastated. Need to go see a Hematologist and oncologist. Waiting for an appointment. I need to know what kind of diet she she do and which supplements would help her cope with the treatments. If there’s anything you can share it would Ben greatly appreciated. Where did you do your treatments?

Do you have this translated in Spanish? I’m asking because my mother will be starting her 3rd treatment in 3 years for MM. She was in remission from breast cancer, 1st diagnosed in 2006. then was diagnosed with multiple myeloma in 2015. She is my heart and soul, and I’m looking to educate her on more non conventional treatments. Thank you.

Hello
My brother in law just got diagnosed with Multiple Myeloma and he has had MS for about 15 years also. They gave him maybe 3 years to live. He started chemo just recently and is in the hospital still Because his MS is so bad they have to move him to a rehabilitation center. He lives in a different state than my husband and I. I want to help him and I just don’t know where to start.
Thanks
Jody

I discovered I had MM on April 13, 2016 when I broke my arm when playing golf. I started treatment of RVD after a rod was put in my arm to repair the fracture. I also am considered high risk with 17p chromosome deletion. The RVD lowered my Light Chains for the first 5 months, then relapsed. The Velcade was then replaced with Kyprolis. I have continued this drug combination with my Light Chains continuing to decrease for the last 9 months.

Hi David
My name is Miles. I’m 59 and about to receive autologous SCT here at Seattle Cancer Care Alliance. My condition began Oct 2016 with a diagnosis of ESRD kidney failure when creatinin was shown at 17 during a kidney stone removal whereupon I was placed on dialysis for 3mos.

Thankfully the chemo (rev-dex-Velcade) relieved the kidney condition and I feel very well, praise God!
Tomorrow I will begin receiving human growth injections. I stumbled upon your site whilst searching for info re the mitigation of libido side effects caused by chemo and SCT. I had noticed a decrease in that area during the previous months when I was on chemo drugs. Interestingly since the doctor discontinued the chemo last week as a precursor to the transplant, libido has returned to near normal.
I signed up for webinar so my wife and I can check it out tomorrow night. Thanks for a great looking website!

Hi David, My name is Sharon and I was diagnosed with high risk smoldering myeloma last October. I am 59 years old. I have a blood test every 5 weeks and follow up with the oncologist the 6th week. I have had a specialist, oncologist and nurse practitioner tell me I will “probably” have myeloma within 12 months and need a stem cell transplant. I am interested in any and all information you can offer, particularly the diet. Thank you so much!!

I have stage II relapsed multiple myeloma and need your advice and help.

David,

I have reached out to Dr. James Berenson and am waiting for his response – Thanks!

I plan on joining your program, I haven’t decided which program I will choose yet

David,

I was diagnosed with Stage III High Risk MM with translocation t(11:14), Mutation of p53 and Deletion of 17p in July 2016 at the age of 68.

I have worked out with weights and heavy cardio for 40 years this month. I first got into nutrition 36 years ago just before our first of two sons was born.

I know I have a very unusual diagnosis, as I have been informed I am in the worst possible status. After diagnosis I continued my 4 miles on my elliptical and as well doing upper weights one day and lower weights the following day for 6-7 days a week. I also tightened up my diet even though I was a healthy vegan and started juicing 32 to 56 oz. a day with added ginger, flax seed oil, ground black pepper and a lot of turmeric.

I had four rounds of RVD and an “auto” stem cell transplant in December of 2016. I also had kyphoplasty surgery in September 2016, as T-11, T-12, & L-4 collapsed in my spine and I lost 3.5 inches of height. Even at my worst stage of being completely crippled and not being able to move in any direction once I was in bed, I continued my 4 miles on the elliptical and my pulley weight workouts of my upper and lower body. I was also diagnosed with osteoporosis.

I went to one of the top Osteoporosis Research Centers in the nation and my doctor was startled when I informed him of how heavy of weights I was using in my workouts and recommended I stop it immediately.

I continued my workouts anyway and went through my 4 rounds of RVD with very minor side effects. I breezed through my “auto” stem cell transplant and never hit bottom with fatigue as I had all kinds of energy when everybody was exhausted.

I have since added 30 minutes of stretching 4 months ago to my weights and recently added another mile to my elliptical to now do 5 miles 6-7 days a week.

I have been mentally and physically training for an “allo” transplant since my “auto” transplant in December of 2016. I am in top mental and physical condition, as I do 4 sets with 12 reps of 9 weight workouts daily. I am from the Midwest and have a very good MM oncologist locally, but also have two world renowned doctors in MM in two different states on the east coast.

Even at my age of now 69, my insurance company authorized my”allow” transplant because of my physical conditioning. It is almost impossible to get all three of my doctors on the same page except to the fact that I am Stage III High Risk and none recommend another “auto” transplant. Even getting one of my east coast doctors to finally tell me I was High Risk was a six week process after three visits back east and multiple tests, as he “thought” I was Low Risk based on the fact they could not find any MM in any of the (4) MRI’s, (4) bone marrow biopsies, PET Scan, and a Gene Expression Profile. One worldly MM doctor thinks I am near remission, but not quite there as he thinks there is some MM in my blood and it is dying slowly which he said “might” be a good thing. While my other world renowned doctor thanks I am near relapse because my M Spike has a trend in moving up from .20 to .59 with (7) M Spike measurements. I have read where Quest and Lab Core can be off as much as 33% in their results.

I have been given (5) choices from my (3) doctors:
(1) do nothing (2) another “auto” SCT (which non of them recommend) (3) “allo” SCT and (4) & (5) are maintenance programs with Daralex, Valcade, & Dexamethsone or Keytruda. Be The Match was not able to locate a matching donor for my protein tissue from 32 countries and 27 million volunteer donors, so I was scheduled for a “Haploidentical” (half donor) transplant with one of my sons being the donor. I was told it was risky,but not in detail. i was informed about GVHD and infections. I did my own research and found out there are 84 infections that can kill you or make you bedridden until death if you don’t die from disease recurrence or other cancers you are subject to.

After not being able to acquire any written statistics on the results of “allo” or “halo” transplants from my transplant doctor and only receiving two calls from successful “haplo” patients,when I requested five, (one informed me she was “doing OK I guess” at 13 months after the transplant) and the transplant doctor not wanting to retest my MRI’s, bone marrow biopsies, PET Scan, bone density tests, and a Gene Expression Profile, I searched and found my second world renown doctor in MM.

I am feeling great. I look healthy and strong, nobody can even tell I have MM. I have been training for MM for decades without knowing it. I know I need to make a decision on a direction of further treatment soon, but unfortunately, I have to go with my gut feeling because the doctors cannot agree on the best direction for me.

I am interested in your program as I know very well you have to combine both western and eastern medicine towards cancer in order to win. I am also very interested in the oils of marijuana as an aide to my strong self discipline. I also want more nutrition on controlling MM and lowering my protein (M Spike) down to zero from my .20 to .59 results of the last 11 months.

I am listening to your webinar this evening, but please email me all of your information on your MM therapy as I would like to analyze it.

Best Regards,

Mike

Is turmeric helping in the treatment for MM.

My father aged 71 has been diagnosed with stage 3 MM yesterday.
He also has a lesion in the right lobe of the liver which is possible HCC.
Agree with ur philosophy of conventional plus non conventional treatment.
Your guidance wud help.

David,
My husband has just been diagnosed with Stage 1 MM. He is supposed to start chemo this coming week. MM was discovered on his routine blood tests. He has pernicious anemia and yesterday was told he also has normocytic anemia. The MM has not affected his kidneys or bones. Am very interested to learn what to do now. I know that diet and supplements can play a key role in his recovery.

I was recently diagnosed with smoldering MM. I have seen a naturopath and have altered my diet. I am interested in learning what else I can do to avoid active disease. I am currently enrolled to start in a clinical trial

My husband has been recently diagnosed with stage three multiple myeloma. He has had one cycle of cytoxan, velcade and dexamethasone. he had a femoral rod placed to strengthen his femur and received dialysis 6 times while hospitalized, although, thankfully, his kidneys have recovered and resumed normal function. I would like some information regarding any supplemental therapies that may help his medical status.
Thanks so much, Sandy

Hi David,

I recently had a baby and during some labs that my Rheumatologist ran for my undiagnoised connective tissue disease they discovered I have an M spike. The hematologist doctor believes at this point that I have MGUS. I am scheduled for a biopsy in 1 week to get more information. Any information that you can provide to me would be greatly appreciated.

We would appreiate any information that you can give us, such as diet and how long do the treatments last before a change occurs. The doctor has said that her blood numbers are better. Does this treatment seem good or the best. Thank you very much.

My wife, vella, has MM and is under treatment for almost 16 months, She takes 10 mg of Revlimid daily, 20 mg of Dexamethasone weekly, 3 tablets a week of Sulfamethoxazoleitmp DS Muta, also recieves infustions biweekly when she visits her Cancer doctor. She gets diarrhea very badly from her medications and has to take imodium . She feels weak and tied.

Hello, David:

I was intrigued by your webinar yesterday, and I followed up by sending
you an email concerning my interest in receiving details of your
Multiple Myeloma Cancer Coaching Program. While waiting for a possible
response to my email, I chose to re-read the material you presented above,
and I found space to ‘comment’ as others have done. I look forward to your
reply. I am a male 91-year old retired scientist in rather good health just prior to a very recent progression from MGUS to borderline (?)
multiple myeloma, as revealed by low hemoglobin and rather high
free light-chain ratio.

David I just happened across your site when googling info on swollen feet. I have been fighting mm for six years. During that time I have relapsed, then had an ASCT in fall of 2013. Started chemo maint of daily 10mg revlimid and weekly velcade started in jan 2014. Relapsed in June 2015 and did six cycles of 25mg revlimid 21/7, twice weekly velcade and weekly 40mg dex. Ended up with significant PN in both feet and started 600mg gabapentin three times a day in February 2016. Went back on chemo maint of daily 10mg revlimid and weekly velcade in jan 2016. Relapsed again in dec 2016. Started 25mg revlimid 21/7, 40mg weekly dex and weekly velcade in Jan 2017. My numbers just started to go back down in March 2017. I have been asking and looking for duet solutions with little success. This is an area that does not get enough attention. I recently asked the oncologist NP about curicum. She said there were no evidence based, double blind studies, etc for it. I know each of us us different and success and failures with wide ranges with standard chemo and non traditional treatments. At a minimum my diet needs help so it can’t hurt to try something different. My health has been steadily declining. With each relapse it is getting more and more difficult to continue the fight. I am currently going to physical therapy twice a week to maintain miobility. My attitude is I am willing to do anything within my control to improve my situation. Diet and exercise definitely falls within that. Thanks for any help.

Hi David , May I ask you which stage was your MM ? my bother diagnose with MM 3 years a go , he was 47 and he did Transplant and chemo and all the treatment . today we find out the cancer back again ………..what a disaster ….any hope ?

I wasa just diagnosed with stage one of MM and didnot start any treatment as yet but would like to know what to expect during my treatment.

I have MM now 2 years in Revilimid treatment…. I love sugar, Don’t smoke..Drink.. Love fruits including citrus love to find out more thanks

Hi David, my daughter age 37 went for a routine physical and the doctor found too much protein in her white blood cells. She saw a hematologist who after a bone marrow test diagnosed “smouldering” multiple myeloma. Lorraine had no symptoms that indicated this. Her diet is very poor and it has been difficult getting her to eat healthy. Her husband after going through some major physical problems has started eating better but we need to get her in the right track. I believe that diet is very critical for this disease and would love to have the information for her to be involved in the program. Any help would be must appreciated.

I would like more information

David
My husband has been recently diagnosed with MM and will begin Revlimid, Dex, Velcade on Tuesday. We are extremely interested in communicating with you, participating in your coaching program and receiving your guidelines. We have a lot to learn as we proceed. We look forward to hearing from you.

I was diagnosed with MM in 2015 and had 4 rounds od VDR followed by a SCT. My MM is IGg kappa. When the transplant was complete and out 100 days my light chains were 21. The Dr. thought that might just a mistake. I was put on 10 mg revlimid 21 day maintenance and Zometa once a month in July of 2016 and things have been going well until this month when we discovered the light chains have risen to 38. Would be interested in the coaching information please.

Hi, my mom went for routine tests and due to some belly aches, after eating spicy foods, etc. Her ultrasound and scope came back good, her biopsy is a 50/50 that it could be mm or just toxins in her urine from some meds she took.. Feeling very scared for her and love to hear about success stories.. She’s only 61 and very healthy otherwise.. Does the booklet tell you what foods to eat and stay away from? Feeling scared.