My latest blood work finally shows normal free light chain levels (they have been below normal) and ratio. No M-spike. I am told that I am in complete remission (CR) from my multiple myeloma.
Hi David, I am almost 3 years post allogeneic transplant (matched sibling) for 17 del IgA kappa myeloma, stage IIA, no bone lesions, only anemia. I have had mild GI GVHD (on sirolimus for that) and I have slowly added back in my supplements as the GVHD is resolving.
I take BCM95 curcumin, green tea, resveratrol, fish oil, grape seed extract, vit.K2, calcium & magnesium, vitamin D3 and boswellin for GI (I have history of IBS). I was taking Wobenzym N early on and I may add it back in. The enzymes were upsetting my stomach. The green tea and resveratrol I just added back in this week. I noticed that the curcumin and resveratrol lowered my siromilus levels, so I backed off after transplant.
My latest blood work finally shows normal free light chain levels (they have been below normal) and ratio. No M-spike. I am told that I am in complete remission (CR) post allogeneic transplant. My concern is trace amounts of IgM and lambda paraproteins now showing up in my blood. I had IgA kappa myeloma. My oncologist doesn’t have an explanation and my allo transplant doctor thinks it is a temporary anomaly, it has shown up once in October blood work and again a week ago. Have you ever heard of this in other patients? My oncologist suggested going back on Revlimid but my transplant doctor thinks it is unnecessary. He said that if I was developing another form of myeloma it would be IgG or IgE, it would not likely be IgM.
Susan
Hi Susan-
Let me begin this reply by saying that I am impressed with your therapy. An allogeneic transplant for MM is relatively rare. It seems as though your all transplant went very well. Congrats.
I take many of the same supplements that you take. I have no experience with IBS. Or GVHD. Again, you are doing well. Regarding your question about trace amounts of IgM in you blood while in CR, I have heard anecdotal accounts of trace paraproteins but nothing specific.
My thinking is that you are going above and beyond to manage your MM, both conventionally and non-conventionally, and you will have to be satisfied with that. I am more cynical about MM oncology than you are I think. I believe you know more about your situation than your onc.s do at this point.
Let me know if you have any questions.
Keep in touch,
David Emerson
- MM Survivor
- MM Cancer Coach
- Director PeopleBeatingCancer
Recommended Reading:
“An overview of evidence-based supplement protocols to help you manage your Multiple Myeloma.
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