Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Many people regard hospice care for multiple myeloma (MM) survivors as giving up. As a long-term MM survivor myself I can tell you that hospice is not giving up but rather a method of control. HC is a form of patient empowerment for MM patients and caregivers.
I’m a long-term MM survivor who has thought A LOT about stages, therapies, conventional, non-conventional, everything. There is a huge temptation for survivors and caregivers to undergo aggressive therapies during our last months. I will not let this happen to me should I reach end-stage MM.
I plan to undergo palliative therapies and enter hospice care when my time comes.
To learn more about hospice, palliative or other multiple myeloma issues, scroll down the page, post a question or a comment and I will reply to you ASAP.
“Hospice is a type of palliative care that provides services to improve the quality-of-life for the patient and family. The word “hospice” literally means “a place of shelter.” Hospice settings and home-hospice care provide extensive services to terminally ill patients. Care usually involves relieving symptoms and providing psychological and social support. “
“In the study, caregivers reported a high degree of satisfaction from having a team comprised of an advance practice nurse, social worker, a spiritual advisor and the patient’s oncologist explain what was happening and why during the dying process…”
“HC at the end of life can significantly lower rates of hospitalization, intensive care unit (ICU) admission, and invasive procedures for cancer patients, according to a new study. Not surprisingly, it can also significantly lower healthcare costs…”
“”Patients who didn’t enroll in hospice ended up with far more aggressive care in their last year of life–most of it related to acute complications like infections and organ failure, and not directly related to their cancer diagnosis.”
“Patients with advanced myeloma experience a high symptom burden particularly near the end of life, making timely hospice use crucial…
In conclusion, our data suggest that along with vast improvements in treatment and survival, there has also been meaningful progress in EOL care for patients with myeloma in the USA. These patients are not only enrolling more often in hospice, but the increase in use is not driven by late enrollment.
Still, there remains ample opportunity for further improvement, particularly among patients who survive less than one year, are dialysis-dependent, or transfusion-dependent. Possible solutions include earlier goals of care discussions, bridge palliative care services, and modification of the hospice model to enable transfusion support.”