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ReplyI was diagnosed wtih Myeloma, Dec 2012. The last year it has escalated, My oncologist says that the bone marrow is 70-80% cancer, done 6 months ago. I don’t want conventional treatments. I don’t have a lot of money since I started a medical leave. I have tried a few alternative medicines but not working so far. Would appreciate advice
ReplyHi Joe,
I am sorry to learn of your MM relapse. I have to say though, that a seven year remission is pretty good. I will make a few suggestions and then ask a couple of questions below.
If you have been in remission for the past 7 years then I’m thinking that you have not undergone any chemo or radiation in that time and therefore your body should be relatively healthy. I hope I am thinking correctly here. If your bone marrow is more than 60-70% MM then you don’t have the time necessary for non-conventional therapies to work. The problem yet strength of toxic theraies is that they work faster because they are toxic…
Consider low-dose chemotherapy combined with evidence-based integrative therapies. For example, low-dose Revlimid combined with integrative therapies such as curcumin can offer less toxicity while still reducing your MM. My definition of low-dose is 5-10 mg of revlimid but your oncologist’s definition may be more like 20 mg. You are trying to balance toxicity with killing your MM. Not to mention that lower doses of any chemotherapy are cheaper than higher doses…
Further, anti-angiogenic nutrition and supplementation has been shown to be cytotoxic (kill) to MM.
My point also, is that alternative therapies, at this point in your relapse, may not be enought to fight your MM. I’ve worked with patients with pre-MM (MGUS or SMM) who can maintain low levels of MM with curcumin, diet, etc. but the amount of MM in their bodies is much less than yours.
Questions-
Are you dealing with any side effects of your chemo from 2012-13? Peripheral neuropathy? Kidney or bone damage?
How are you feeling overall?
Let me know. Hang in there Joe.
David Emerson
ReplyI don’t know about remission. I have never done conventional oncology: chemo,
radiation, or surgery. When diagnosed in 2012 they called it smoldering. I
think they call that if it is under a certain %. I have looked at the drugs
that my oncologist is recommending. I think 1 is Revlimid. This is supposed to
be for the immune system, but I don’t know how that can help the immune
system with the potential side-effects. There wasn’t a remission; the % of MM
stayed at a low amount until it started to increase over the last year.
I don’t know if my oncologist will go with low-dose chemo and I know nothing
about it, so would need someone with me that could suppervise; I don;t really
trust the system. I fear chemo more than death.
Can you recommend any natural treatments? I am doing the Hoxsey tonic,
homeopathics and some cannabis, mostly to help me relax.
am feeling tired and short of breath when my hemoglobin drops. Don’t have a
lot of motivation to do much. I am gettin blood transfusions which help pick me
up. My muscles in my back were sore for a few weeks. I decided to take a
medical leave from work. I saw one of my oncologist’s associates who told me
that my kidneys were OK. My bones seem OK.
Joe Shuttleworth
ReplyHi Joe-
Based on your comments below, I believe that your MM is at an advanced enough stage that you must undergo at least some conventional chemotherapy. If you are nervous about is I can provide guidance regarding doses, types of chemotherapy, etc. Natural treatments for your MM, at this stage, won’t be enough to reduce your symptoms.
Please go to see an oncologist ASAP. Thanks.
David Emerson
I was diagnosed wtih Myeloma, Dec 2012. The last year it has escalated, My oncologist says that the bone marrow is 70-80% cancer, done 6 months ago. I don’t want conventional treatments. I don’t have a lot of money since I started a medical leave. I have tried a few alternative medicines but not working so far. Would appreciate advice
Reply[…] Multiple Myeloma Overall Survival Statistics […]
Reply[…] Multiple Myeloma Overall Survival Statistics […]
Reply[…] Multiple Myeloma Overall Survival Statistics […]
Reply[…] Multiple Myeloma Overall Survival Statistics […]
Reply[…] Multiple Myeloma Overall Survival Statistics […]
ReplyHi David my sister was diagnosed with MM last week. How can I get In touch with you?
ReplyHi Nesa-
I’m sorry to read of your sister’s MM diagnosis. Keep in mind that while MM is considered to be incurable by conventional oncology this blood cancer is very treatable with a long and growing list of both conventional (FDA approved) and evidence-based, non-conventional treatments.
I am both a MM survivor and MM cancer coach. What would you like to discuss?
David Emerson
ReplyDid you undergo a stem cell transplant? Did or are you on maintenance therapy?
ReplyHi Mike-
I underwent an autologous stem cell transplant in 12/95. I achieved remission soon after and relapsed later that year. I have not had conventional chemo since then. I consider the evidence-based, non-toxic therapies I undergo daily, weekly to be my maintenance therapy.
David Emerson
ReplyHello David,
I just watched your Webinar and was very impressed and thankful to you for the work you have been doing and are still doing. I am considering purchasing one of your packages. My problem is that I do so much research and look for posts for my blog now that I am trying to save some time for some of the things that I enjoyed doing before I was diagnosed.
Please have a look at my blog: http://www.facebook.com/richard.hurwitz and let me know if it is ok if I post some of your material, particularly relating to matters of special interest to the elderly patients of Myeloma. Thank you.
ReplyHi Richard-
I am sorry to learn of your MM diagnosis but you are turning a sow’s ear into a silk purse with your FB page. Yes, feel free to post any of my MM blog posts on your FB page. The mission of PBC is to demystify cancer. Education is key.
Good luck-
David Emerson
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