Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Hi David, I hope you are keeping well. We have conversed a bit in the past. I am also non-secretory. I’ve now been post stem cell transplant for approx 2.5 years. So far so good, all is well and in remission.
My doctor is sort of pushing for maintenance chemo, lenalidemide (revlimid) . He led me to believe that if I do eventually relapse and require another go round of stem cell they would be much more favorable to this if I was already showing willingness “to western medicine” (his words) by taking the maintenance.
I am not sure I would put myself through this process again but don’t want to slam the door on it either. I asked if there was any chance of building a resistance to the maintenance chemo and he said it wouldn’t matter as the treatment would be a different type of chemo anyways.
My concern is I didn’t tolerate the mix of chemo they gave me last time and I may end up back on stem cell.
My biggest question would be if you were in my shoes would you take the maintenance or not?
I’ve shied away from maintenance therapy until now. I lead a pretty decent lifestyle, take nutridyn curcumin, lots of vitamin/supplements. I’m not the greatest about avoiding sugar that would be my only really bad thing and I know it’s a biggie.
I’m kind of stuck here. I appreciate your opinion. Thanks very much, Kathy-
“And, since “[t]here were no new safety concerns,” the results “support the frontline use of daratumumab plus lenalidomide and dexamethasone” for patients with MM who are ineligible for transplantation…”
First and foremost, I have to go on record as saying that a clinical trial for MM that is testing a triplet chemo regimen is usual aka unheard of. I say this because conventional oncology is continuously adding toxicity to the NDMM (newly diagnosed MM) playbook. Toxicity is added to the playbook even for those people who are not eligible for an autologous stem cell transplant (ASCT). So doublet regimens become triplet regimens, triplet regimens become quadruplet regimens, etc. etc.
And with each additional chemotherapy that is added to the induction combo, comes additional short, long-term and late stage side effects aka adverse effects…
So let’s get specific:
Don’t forget that I am sketching out ten plus years of easy therapy plans above. Who knows what will come along over the next ten years…
As and aside, two of the greatest MM specialists, Robert Kyle and S. Vincent Rajkumar were both quoted as raving about this triplet therapy. Those two M.D.’s add real credibility to this finding as far as I’m concerned…”