Recently Diagnosed or Relapsed? Stop Looking For a Miracle Cure, and Use Evidence-Based Therapies To Enhance Your Treatment and Prolong Your Remission
Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Kidney Failure, Bone Damage-Newly Diagnosed Myeloma
“Between 50 and 80 percent of people with multiple myeloma (MM) will have Bence Jones protein in their urine…”
Hi David- I was diagnosed a year ago with multiple myeloma stage 3 due to kidney failure. I’m on dialysis three times a week. The light chains from the MM has clogged the filters in my kidneys.
I have a lot of bone lesions showing on the MRI. I’ve had chemotherapy with stem cell collection and chemo with an autologous stem cell transplant.
My stem cell transplant resulted in only a partial remission. I then received a stem cell booster (8 million stem cells without chemo).
I’m now on once a week Darzalex drip and Thalidomide once a day. I’m interested in your information. Looking forward to hearing more about your success with your mm treatment plans. Thank you. Tom
Hi Tom,
I will excerpt your comments below in order to reply fully-
1) ” I was diagnosed a year ago with mm do to kidney failure. I’m on dialysis three times a week. The light chains from the mm has clogged the filters in my kidneys. I have a lot of bone lesions showing on the mri.”
I will assume that you want to get off the dialysis machine.
I will list conventional therapies below that can cause further kidney damage. You don’t mention if your dialysis is conventional or high-cut off. The research about the difference between the two for kidney damage is unclear. I thought I should mention it to you to discuss with your nephrologist.
- High-Cut off dialysis-
- Velcade-based chemotherapy regimen-https://pubmed.ncbi.nlm.nih.gov/20061695/
- Denosumab for bone involvement https://haematologica.org/article/view/8444
2) “ I have a lot of bone lesions showing on the MRI.”
Hypercalcemia has been shown to clog kidney function. Your oncologist may prescribe bone treatment to reduce your blood calcium levels. Bisphosponate therapies have been shown to cause kidney damage. While denosumab is much more expensive than, say, zometa, it should not cause more kidney damage.
You don’t mention in your post if your MRI was with or without “contrast.” Certain contrast agents (gadolinium) have been shown to cause both kidney damage as well as MM.
3) “I’ve had chemo therapy with stem cell collection and chemo with stem cell transplant. My stem cell transplant was a failure do to my numbers never recovered as they should have.”
The research is clear about Velcade (Bortezomib) helping MM patients with kidney damage but I should research the other chemo regimens that you had to see if they affected your kidney function either way if you are interested.
4) “ I’m interested in your information. Looking forward to hearing more about your success with your mm treatment plans”
The nutritional and supplement-based therapies to heal kidney damage is not FDA approved and will not be discussed with you by your oncologist. Supplements such as curcumin, vitamin D3, and several others have been shown to fight MM as well as heal kidney health and heal bones for that matter.
I look at MM differently than convention oncology does. I think MM patients should look beyond conventional therapies if conventional therapies are not effective.
I’m telling you this to be transparent. Let me know if you have any questions.
Hang in there,
David Emerson
MM Survivor
MM Cancer Coach
Director PeopleBeatingCancer
Recommended Reading-
- Long-Term Multiple Myeloma Survivor- If I Knew Then What I Know Now
- Multiple Myeloma Diet for Kidney Involvement
- Multiple Myeloma, Zoledronic Acid, Renal Dysfunction, Bone Disease
Diagnosis W/ Multiple Myeloma W/ Serious Kidney Involvement-
“Progression to ESRD was rare, but CKD was common, and longer follow-up may uncover a greater burden of slowly progressive CKD in patients with treated LCPT.”
Multiple Myeloma Diagnosis- Healing Bence-Jones Protein Kidney Damage
“Between 50 and 80 percent of people with multiple myeloma (MM) will have Bence Jones protein in their urine…”
You’ve received a multiple myeloma diagnosis. You’re scared because you’ve been told that MM is incurable, because you’ve never heard of this type of cancer before and because of something called Bence-Jones proteins, is/are damaging your kidney health…
Complicating your fear is talk of diagnostic tests- symptoms, staging, blood, urine, bone imaging- and on and on. Unless you are a medical professional yourself, you probably find the diagnostic testing jargon to be confusing and possibly frustrating.
My experience as a MM survivor is to start at the end and work your way forward.
Kidney failure is the second most common COD (cause of death). You have years of MM survivorship ahead of you. You want to do everything possible to protect or even improve your kidney health…”
Multiple Myeloma Survivor- Relapse w/ Kidney Involvement-
“Integrative medicine is a combination of medical treatments for cancer and complementary therapies to cope with the symptoms and side effects…
Hi David, I find your article so refreshing! My mom was diagnosed with Multiple Myeloma in 2017. She went through the usual “standard-of-care” regimens- revlimid, velcade, dexamethasone (RVD) and she had tons of side effects!
There were times that she wanted to give up. But the chemo worked for her and she persevered. After a year, being the determined person she is, she asked to stop the treatment, totally. Thanks to God, mom did fine.
Her blood diagnostic was all good until recently – May 2020. Her oncologist said that her MM had relapsed, and is affecting her kidneys. She has refused chemo totally this time and she is looking for natural remedy.
Perhaps vegetables and fruits full of antioxidants and good for her kidneys…”