“A substantial proportion of adult survivors of (AYA cancer survivors) experienced financial hardship. Vulnerable sociodemographic status and late effects were associated with hardship.” The
Continue readingI’ve never said the phrase A Cure Is Not Enough out loud. It sounds like the title of some sort of weird movie. I feel selfish for even thinking it. I am a long-term survivor of an incurable blood
Continue reading“”Cure is no longer a sufficient goal in pediatric cancer care,” the researchers wrote. “As the vast majority of these patients survive, attention must be paid to their long-term
Continue readingFour?! Only four cancer issues? I didn’t say only 4, I’m saying these are the 4 most important cancer issues to an adolescent and young adult cancer patient. Looking back over my cancer experiences
Continue readingAs many as two-thirds of childhood cancer survivors develop a long-term complication from the surgery, chemotherapy or radiation used in cancer treatment…” It shouldn’t be surprising
Continue reading‘Many studies have shown that childhood and adolescent cancer survivors are at increased risk for chronic medical problems and emotional late effects as they age…’ Surviving Acute Myelogenous
Continue readingAcute Myelogenous Leukemia – “Except I kept getting worse and then somehow a mono diagnosis turned into an acute myelogenous leukemia one instead.” When I was nineteen and nearing the
Continue readingBetween co-payments, out-of-network costs, the out-of-pocket costs of my AYA cancer care have already amounted to tens of thousands of dollars… Patients don’t know what they don’t know.
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