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I have recently been diagnosed with MM. I am a 75 y.o. female active playing Pickleball several hours 3x week. I have a tumor in the small intestines that has been causing partial obstruction sporadically…surgery scheduled later this month. A recent MRI reveals innumerable enhancing T2 hyperintense bone lesions throughout the imaged portion (abdominal study) skeleton compatible metastatic disease. My blood work also reveals a protein spike prior to the MRI. Being referred to oncology no treatments yet.
ReplyHi Marlene-
I am sorry to read of your MM challenges. Do you have a question or is there anything I can do?
David Emerson
ReplyI am taking 400 mg. a day now; of curcumin
Black seed oil is on my to get list now.
Hi Rick-
The curcumin studies talk about “a time and dose dependent manner.” I take this to mean the more the better. I take a maintenance dose of curcumin because I am in remission. I read of many with active pre-mm or full mm that take 2,4,6,8 GRAMS a day. Dosing is complicated by many different brands having different formulas with different levels of absorption.
Ask the people in Beating Pre-Myeloma what they take. I’m curious…
Thanks,
David Emerson
ReplyWhat brand and dosage of curcumin do. You recommend? Can you get curcumin alone or does it always come with turmeric?f
ReplyHi Eileen-
I will send you the supplementation guide. I have included a link to my info about curcumin- brand, dose, etc. Keep in mind that my daily dose is much less than those with active MM as I am in complete remission and intend to take curcumin for the rest of my life.
David
ReplyWhere can I get curcumin and what brand do you recommend. Also can you get Hyatt th curcumin alone or does it only come with tu meric? Also what dosage do you recommend mmage do you recommend
ReplyI don’t see a recommended supplement and dosing. I make my own Turmeric paste. Will that create the same positive results as taking just curcumin supplement? Thanks!
ReplyHi Ginny-
The challenge with curcumin dosing is that each formula (Dr.’s Best, LEF SuperBio, BCM 95, etc.) all provide different absorption rates. Everyone agrees that plain curcumin is difficult for the body to absorb. That is why everyone takes different brands of curcumin with enhanced bioavailability.
From what I read about turmeric paste aka golden paste, it affords much better absorption than basic curcumin but I have no idea how it compares to other curcumin formulas.
My personal opinion is to take several different supplements that studies have shown cause MM apoptosis (kill MM cells). This would be curcumin, resveratrol, green tea extract, and omega-3 fatty acids. I also recommend (and do myself) therapies such as whole body hyperthermia, exercise, anti-angiogenic nutrition, etc.
Lastly, I think this would be a great question for the online group Beating Pre-Myeloma. I would like to read what other pre-mm patients think, do.
David
ReplyI ready most of your guides but they don’t really sink in, till I have a question……..that is answered in them. I also have to find them……from the last time I studied any of them I apologize. I know I saved them a file. I would not pass your class if you were a class instructor. 😉
ReplyHI Kathryn- understanding MM is complicated. Take your time. The reason for both the MM CC program AND Beating Myeloma is because MM patients, survivors and caregivers are faced with so much. Keep asking any question. Thanks and hang in there.
ReplyI’m learning so much…I take Curcumin. Is there a preferred dosage or brand? I follow the bottle instructions
ReplyHi Nanz-
The supplements guide is one of the 16 guides you received in the MM CC program. I will not take it personally if you have not read the MM CC program so I can send you another supplements guide if you want me to:-).
David Emerson
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