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I am a long-term MM survivor and MM cancer coach. The article linked and excerpted below from the Huffington Post caught my eye so I thought I would write about it. While I don’t agree with everything on the list (and I did add number 6 to the list), if you’ve experienced a multiple myeloma diagnosis, you will benefit from this information.
It is a list of knowledge-based, non-conventional therapies.
My MM experiences have been all over the place-good, bad and ugly. Further, by researching, blogging about and working with Multiple Myeloma diagnosis patients I have learned a lot about our supposedly inclurable, rare blood cancer.
Keep in mind that my experience has been odd:
To learn more about multiple myeloma diagnosis, scroll down the page, post a question or comment and I will reply to you ASAP.
1) Do not read the Internet–
I couldn’t DISAGREE more with this first item. Everything I have learned about my cancer was from the Internet. The 501c3 Nonprofit that I manage, PeopleBeatingCancer is Internet-based. Be careful though. The info on the Internet can be wrong. Or exaggerated.
2) Ask questions-
I agree with this one. The problem here is that I believe in asking questions using the Internet. Oh well…It has become a cliche but knowledge is power.
3) Understand that there are no short-term solutions–
I agree with this one. Sort of. It really depends on what your definition of short term is. I work with pre-MM patients (MGUS or SMM) whose m-spike drops a bit weeks after they begin curcumin supplementation. I work with full-blown MMers whose respond to induction chemo (RVd) after the first course of therapy.
4) Enjoy the days when you feel good
Not every day is going to suck as a cancer patient. Yes, many will, but if you have chemo once every three weeks, most likely that second week you will start to feel more normal. So do normal things when you feel better….
5) Use the cancer card
Be social. If you want to go out with your friends, drive yourself. And when you want leave because you aren’t having fun, no one will ever question why you are leaving. It’s okay to be a little selfish. The goal is to take care of yourself. Sometimes that means saying yes, and sometimes that means saying no…
6) Cancer is NOT a war.
I have never fought cancer. I am not beating cancer. My analogy of choice is that cancer is a chess match. Learn as much as you can by asking questions using the Internet. Then strategize. You may have to sacrifice some of your pieces to your MM but you CAN out-think your MM.