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I feel somewhat lost in the arena of working with a myeloma specialist. I have a local oncologist who I see regularly and who communicates all my records and discussions with my myeloma specialist. I did 12 weeks of induction therapy with negligible side effects, opted out of ASCT and collection, tried a bit more induction therapy at local oncologist’s request with strong side effects, such that we agree the Velcade will be discontinued. Local oncologist and MM specialist agree on a 10mg Revlimid for maintenance which current plans have me starting soon. (Any plans subject to change.) Even though my MM specialist is close (UT Southwestern), we have only met via online due to Covid. I know I need to have him, but I’m at a loss for why? When I politely asked him, he basically said that it would be for getting into clinical trials once all approved options are exhausted. OK, so that’s for later. Right now, our appointments seem very awkward to me. I plan to pursue alternative/integrative treatments. I like the MM specialist just fine…he offered the info (which I already knew) that ACST changes longevity 0%. He also told me of an MM patient of his who has survived 26 years having never had an ASCT. Your insight for dealing with MM specialist will be appreciated. I was diagnosed March, 2020, M spike 5.5 has plateaued around 1.3. Thanks!Reply
[…] Your Multiple Myeloma Oncologist- 5 Rules – Cancer Coaching 101 […]Reply
I will like to be in the group online and Facebook plz
My email email@example.com
David I signed up for the Silver Program and received my downloads yesterday, but lost them when my IT Company had an update and I had to reboot. Please have the program resent to my email so I can retrieve my program downloads.
Also I created a Facebook account for the Silver Program. How do I access it, or am I waiting for an email from you with instructions on how to log on to the group members?
I think the assistant director mentioned to me today that she re-sent the guides to you. I will confirm with her. As for the FB group I will send an “invitation” for you to join the group now. I will send it to rdwarriors.com account.
Thank you for becoming a MM CC client.
[…] Multiple Myeloma Oncologist- 5 Rules […]Reply