Recently Diagnosed or Relapsed? Stop Looking For a Miracle Cure, and Use Evidence-Based Therapies To Enhance Your Treatment and Prolong Your Remission
Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.
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Stage 3 Myeloma- Chemo, Heavy Side Effects…
“MM is a blood cancer that combines potentially life-threatening symptoms and a series of life-threatening side effects. All at the same time.”
“Hi David. I am grateful to have found your site. I have enrolled in the MM CC Program, but not yet set up our consultation. I am complicated a bit…diagnosed stage 3 multiple myeloma in Dec. 14, with tumor presented at C7/T1/T1 around esophogus and spine, leaving those vertebrae at “40-60% compromised.” I wear a brace much of the time, always outside or in auto.
I am ordering the Thymoquinone (black seed oil) and have made inquiry to my oncologist for his information that i will use it.
You indicated in another comment response that you don’t use the product you provided link to. Do you have one you prefer that you have experience with?
I was exposed to agent orange in 69-70, and had no idea of the MM until diagnosed. No stem cell. Heavy chemo and radiation to get my Kapp lights down from 2550 to 5-600 band over 3 yrs.on weekly velcade and dex and revlimid.
Hated that and went to Darzalex with great results down to 56, then back to 200 band. Broke arm last May, MM exploded to KL’s over 6000, renal failure. Dialysis for 6 mo. Settled down now to monthly Darz only, with Pomylist. Struggling to get RBC level up from the minimum, apparently from bone marrow damage. All that to give you a look ahead for our call that i look forward to soon.
Again, grateful to find your site, especially at this time” Ted
Hi Ted,
I will excerpt your comments below in order to address specifics.
1) “I am ordering the Thymoquinone and have made inquiry to my oncologist for his information that i will use it.”
I will be interested in learning what your oncologist says about your use of an evidence-based but non-conventional therapy like thymoquinone. It is usual for conventional oncology to warn patients that supplementation may interfere with whatever conventional therapies they are taking. Keep in mind that I specifically linked a study showing how TQ enhanced the efficacy of chemo.
2) “You indicated in another comment response that you don’t use the product you provided link to. Do you have one you prefer that you have experience with?”
My research of TQ as an integrative MM therapy happened as a result of the study that I linked in the blog post. My awareness of TQ is recent. While I have written about several other integrative therapies (and take them), I don’t take TQ because I just learned about it. If you read either the supplementation or integrative cancer coaching guides, you will see that I take others like curcumin, resveratrol, green tea extract, omega-3, etc. but not TQ.
3)”I am grateful to have found your site. I have enrolled, but not yet set up the call i need to have with you.”
Thanks, great and take your time. Everything that we are discussing will help me understand your situation and will make for a more productive consultation.
4) “I am complicated a bit…diagnosed IIIB in Dec. 14, with tumor presented at C7/T1/T1 around esophogus and spine, leaving those vertebrae at “40-60% compromised. I wear a brace much of the time, always outside or in auto.”
It sounds as if your MM was advanced at diagnosis and your spine has a lot of bone involvement. If you haven’t already talk to your oncologist about kyphoblasty/vertebroplasty.
5) “I was exposed to agent orange in 69-70, and had no idea of the MM until diagnosed.”
Agent Orange exposure has been documented as increasing the risk of blood cancers. 9/11 first responders are also at increased risk of blood cancers. MM is an environmental cancer…
6) “No stem cell. Heavy chemo and radiation to get my Kapp lights down from 2550 to 5-600 band over 3 yrs.on weekly velcade and dex and revlimid”
The majority of newly diagnosed MM patients are advanced like you. You have managed to stablize your MM which is the important thing. Maintenance therapy has been shown to increase OS aka overall survival aka length of life. I agree with your choice not to have an ASCT.
7) “Hated that and went to Darzalex with great results down to 56, then back to 200 band. Broke arm last May, MM exploded to KL’s over 6000, renal failure. Dialysis for 6 mo. Settled down now to monthly Darz only, with Pomylist. Struggling to get RBC level up from the minimum, apparently from morrow damage.”
You have certainly struggled to manage your MM. Please take this next comment in the spirit it is intended…You are a great example of why I researched and wrote about TQ, how and why I think conventional MM oncology has MM therapy all wrong.
I look forward to our talk.
David Emerson
- MM Survivor
- MM Cancer Coach
- Director PeopleBeatingCancer
Recommended Reading:
What is Multiple Myeloma? Oncology has it backwards…
“What is multiple myeloma? In my experience the standard-of-care approach for multiple myeloma patients is misleading. Considering only FDA approved MM therapies represents short-term thinking. Newly diagnosed multiple myeloma patients are put at a huge disadvantage if they think short-term.In my experience, MM is a blood cancer that combines potentially life-threatening symptoms and a series of life-threatening side effects. All at the same time. Let me explain.
The most common MM symptoms are:
- Myelosuppression (Infection, pneumonia, etc,)
- Renal Insufficiency (kidney failure)
- Bone Disease (bone damage, fractures, leading to death)
- Heart Failure (heart damage leading to death)
- Blood Clots (DVT, hyper-viscosity)
The most common side effects/complications caused by MM therapies are:
- Myelosuppression (Infection, pneumonia, etc,)
- Renal Insufficiency (kidney failure)
- Bone Disease (bone damage, fractures, leading to death)
- Heart Failure (heart damage leading to death)
- Blood Clots (DVT, hyper-viscosity)
The most common causes of death for multiple myeloma survivors are:
- Myelosuppression (Infection, pneumonia, etc,)
- Renal Insufficiency (kidney failure)
- Bone Disease (bone damage, fractures, leading to death)
- Heart Failure (heart damage leading to death)
- Blood Clots (DVT, hyper-viscosity)
These common causes of death for MM survivors can also be symptoms of MM as well as side effects caused by MM therapies