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Multiple Myeloma an incurable disease, but I have spent the last 25 years in remission using a blend of conventional oncology and evidence-based nutrition, supplementation, and lifestyle therapies from peer-reviewed studies that your oncologist probably hasn't told you about.

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What is Multiple Myeloma? Oncology has it backwards…

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Having lived with and studied multiple myeloma since my diagnosis in 2/1994, I have learned that just about every aspect of how conventional oncology defines, researches and treats multiple myeloma is backwards…

What is multiple myeloma?  In my experience the standard-of-care approach for multiple myeloma patients is misleading. Considering only FDA approved MM therapies represents short-term thinking. Newly diagnosed multiple myeloma patients are put at a huge disadvantage if they think short-term.

In my experience, MM is a blood cancer that combines potentially life-threatening symptoms and a series of life-threatening side effects. All at the same time. Let me explain.

The most common MM symptoms are:

The most common side effects/complications caused by MM therapies are:

The most common causes of death for multiple myeloma survivors are:

These common causes of death for MM survivors can also be symptoms of MM as well as side effects caused by MM therapies. For example, a newly diagnosed MM patient may have lytic lesions (bone damage) upon his/her diagnosis. Because MM therapies can cause bone damage as well as the MM itself, the MM patient may struggle with bone damage, lytic lesions, fractures for his/her entire life as a patient/survivor.

MM patients and survivors can spend their entire lives as MM patients battling their cancer, their symptoms and their side effects.

Confusing all of this further is the idea that drug manufactures do not consistently,  accurately distinguish between MM symptoms and side effects of MM therapies.

A new study finds significant variation in how drug side effects are reported, potentially making some drugs seem safer or less safe than they really are.”

Therefore, I think the question

  • “What is multiple myeloma?” must provide the big picture, not short term thinking…
  • “What is multiple myeloma?” must include the term incurable cancer....
  • “What is multiple myeloma?” must include evidence-based integrative and complementary therapies…

To be fair, conventional MM oncology has gotten good at stabilizing newly diagnosed multiple myeloma patients. I agree that it is critical for all newly diagnosed MM patients to become stable.

My point is that conventional MM oncology pushes patients too hard. Conventional MM oncology pushes for “deep responses” when research shows that more chemotherapy leads to more toxicity which leads to more side effects. The greater the number and severity of side effects, the closer the patient is to death.

The solution in my experience is as follows. 

Newly diagnosed MM patients and their oncologists must think long-term. By this I mean that we all must focus on the symptoms caused by MM as well as the side effects caused by MM therapy. Only by balancing the damage caused by both cancer and therapy will the patient be able to achieve the longest quantity of life as well as the quality of life.

The sooner that MM patients wrap their brains around the fact that none of the conventional, FDA approved therapies will cure their MM, the sooner they can begin learning about evidence-based therapies that can:

The Mayo Clinic’s  answer to the question “What is multiple myeloma?” is:

Multiple myeloma is a cancer that forms in a type of white blood cell called a plasma cell. Plasma cells help you fight infections by making antibodies that recognize and attack germs.

Multiple myeloma causes cancer cells to accumulate in the bone marrow, where they crowd out healthy blood cells. Rather than produce helpful antibodies, the cancer cells produce abnormal proteins that can cause complications.

Treatment for multiple myeloma isn’t always necessary for people who aren’t experiencing any signs or symptoms. For people with multiple myeloma who require treatment, a number of treatments are available to help control the disease.”

My disagreement with conventional oncology begins after a person’s MM diagnosis. I disagree with the standard-of-care MM therapy plan, average life expectancy, side effects, etc.- Just about every aspect of MM care beyond a basic definition of MM as well as common MM symptoms.

Nowhere does the Mayo Clinic tell the reader that conventional oncology can’t cure multiple myeloma. This fact becomes central to you when you become relapsed/refractory…

MM Symptoms-    MM Symptoms are what you experience BEFORE a diagnosis of MM-

  • CRABCalcium, Renal failure, Anemia, Bone lesions-
  • Kidney Involvement.  Myeloma cells produce harmful proteins that can cause kidney damage and even failure.
  • Fatigue. As myeloma cells replace normal red and white blood cells, your body has to work harder to absorb oxygen and you tire more easily.
  • Bone Involvement. Myeloma can prevent your body from making new bone cells, causing problems like bone pain, weakened bones, and broken bones.

MM Diagnosis- diagnostic testing- stage I,II, III-

Blood, urine and imaging studies tell MM patients how advanced their MM is. Looking into your blood and bones to determine what problems, what damage, your MM is causing,  is essential. Has MM affected your bones, kidney function, brain, blood, etc.? Your therapy plan, both conventional and non-conventional therapies, depend on what, where, when, why, etc.

MM Chemotherapy-

The two most important things to remember about conventional MM chemotherapy is

  1. the list of FDA approved chemo regimens is long and growing and
  2. MM patients and survivors must undergo chemotherapy from time to time… but all MM survivors relapse. All MM becomes resistant to conventional chemotherapy eventually. Take a less is more approach…

My belief is that conventional oncology relies on chemotherapy far too much to treat MM patients and survivors. This aggressive chemotherapy treatment leads to treating the health problems caused by the toxic therapies. Multiple myeloma leads to symptoms which lead to side effects which lead to death.

To learn about evidence-based, non-toxic, non-conventional therapies designed to balance conventional MM therapies, scroll down the page, post a question or comment and I will reply to you ASAP.

I look forward to hearing from you.

David Emerson

  • MM Survivor
  • MM Coach
  • Director PeopleBeatingCancer

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