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What is the dosing you found is appropriate? Is there a brand or two you suggest, and are there any things to be aware of that lessen its effectiveness (as I look for a trustworthy brand)
ReplyJust started black seed oil,
BUT I ALSO HAVE SEZIURE, AFRIB..MULTIPLE MYELOMA CANCER. TWO STEM CELL TRANSPLANT..ALSO DOING ELDERBERRY SYRUP AND LOT OF GRINGER,ANY INFORMATION WILL BE APPRECIATED
Hi Lenora-
I am sorry to read of your health challenges. I created the MM Cancer Coaching course to inform MM patients such as yourself. See the link
below.
https://peoplebeatingcancer.org/better-than-a-miracle-myeloma-cure/
David Emerson
ReplyHi, my sister in law is 41 and has multiple myeloma. She was diagnosed 15 months ago and has had a tandem stem cell transplant (so 2 transplants in 3 months) and achieved remission but it only lasted 4 months. She has had a recent PET scan and blood tests to check the liver and kidneys but the doctor has told her it has likely progressed as she has rib fractures again and new bone pain in her shoulders. She struggles with fatigue and bone pain so I would be grateful for any advice before she has to start chemo again as that is the most likely outcome.
Thank you x
ReplyHi Jeanette-
I am sorry to learn off your sister’s MM challenges. Based on what you say in your post, your sister’s situation is complicated. My guess is that her diagnostic info is also complicated. I could do as much harm as good at this point.
Sorry I can’t offer any info.
David Emerson
ReplyI was just diagnosed with MM and while it is evident I will need full therapy I am looking for any holistic approach to aid in the healing and I saw black seed oil listed.
ReplyHi Penny-
I replied to you via your email address. Look in your spam folder if you have not yet received my email.
David Emerson
ReplyI have a smoldering myeloma that is heading for chemo please tell me about it with black seed oil and even aacc please
ReplyHello. I came across your site after looking into black seed & MM (a friend just today was telling me about this). My husband was diagnosed in 2018 and has relapsed twice. Currently on Carfil twice a month & Pomalyst every other day for 11 days. I was curious what treatment you’re currently on and if you are on XGEVA or ZOMETA & if not, is the black seed oil your treatment for that. My husband is not on neither of those bone strength meds, but has had them in the past. Also, you’ve been on black seed oil since your diagnoses and how much do you take? Thank you for your time, be well.
ReplyI have Amyloidosis which is similar to MM. Should I look into using black seed?
ReplyHi Chris-
Your primary issue, based on my experience, is what, if any, organs are involved? In other words, has your amyloidosis negatively affected your kidneys, heart, liver, etc?
Have you had diagnostic testing for creatinine, BUN or eGFR?
Have you been diagnosed with amyloidosis as well as multiple myeloma? I don’t mean to sound nosey. I’m just thinking through your question about black seed oil aka thymoquinone.
Let me know. Hang in there,
David Emerson
ReplyMy husband just got diagnosed with myeloma, he is receiving treatments for his cancer . I also want to use natural resources so how much black seed oil is safe to take .
ReplyHi Palma-
I am sorry to learn of your husband’s MM diagnosis. Black seed oil is also referred to as thymoquinone. The challenge with dosing is that each brand may provide a different amount of black seed oil IN the capsule so you have to go by the dose recommended on the bottle.
There are a number of evidence-based non-toxic therapies shown to kill MM. Nutrition, supplementation, lifestyle therapies and more.
Let me know if you have any questions.
Good luck.
David Emerson
ReplyIs it ok to take BSO when on Pomalidomide?
If so what dose would you recommend?
Hi Gemma- I am working on a more complete reply to your previous question regarding your mom’s situation. I will include a discussion about BDO in that reply.
Hang in there,
David Emerson
ReplyHi David, When I had my last Velcade treatment July !st, my bilirubin number went to 1.2 from .07 a week earlier, do i need to be concerned? I researched the info and found it has to do with Liver function, is the revlimid or Velcade causing the issue or is it one of the many issues that affect MM patients? Can the Black Seed Oil help with that also?
ReplyHi Tom- I will reply to you via an email to your email address-
David
ReplyGood day please could you recommend all the supplements I should take. I am on revlimid for maintenance after my stem cell transplant.
I asked my doctor if I could take supplements but she was not too keen.
I take 1500mg Vitimin D 3
600mmg calcium daily.
I am ordering the TQ and have made inquiry to my oncologist for his information that
i will use it.
You indicated in another comment response that you don’t use the product you provided link to. Do you have one you prefer that you have experience with?
I am grateful to have found your site. I have enrolled, but not yet set up the call i need to have with you. I am complicated a bit…diagnosed IIIB in Dec. 14, with tumor presented at C7/T1/T1 around esophogus and spine, leaving those vertebrae at “40-60% compromised. I wear a brace much of the time, always outside or in auto. I was exposed to agent orange in 69-70, and had no idea of the MM until diagnosed. No stem cell. Heavy chemo and radiation to get my Kapp lights down from 2550 to 5-600 band over 3 yrs.on weekly velcade and dex and revlimid. Hated that and went to Darzalex with great results down to 56, then back to 200 band. Broke arm last May, MM exploded to KL’s over 6000, renal failure. Dialysis for 6 mo. Settled down now to monthly Darz only, with Pomylist. Struggling to get RBC level up from the minimum, apparently from morrow damage. All that to give you a look ahead for our call that i look forward to soon.
Again, grateful to find your site, especially at this time
Could you please tell me the brand of the Black Cumin Seed Oil you are using?
I cannot find one that has 3% thymoquinone.
Respectfully
Sandy Jenkins
Hi Sandy-
This is not the brand of black seed oil that I take but reportedly it has 3% thymoquinone in it.
David Emerson
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