Learn how you can stall the development of full-blown Multiple Myeloma with evidence-based nutritional and supplementation therapies.
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Hi David, I would like to know is this the way of things regarding pain, I was diagnosed with MGUS in 2012 for the last 2 years I have been experiencing bouts of neuropathic nerve pain. First starting in my shoulder blades then into arms, hands and now on the one side of face, legs and feet.
Sometimes the pains feels like a aching, lightening pain, quick and sharp, especially in the palms of my hands and face. I was told that i have neuralgia and fybromalgia as well as raised SHBG levels I’m also allergic to many verity of foods which I have had for many years. I’ve now requested a follow up for my bloods to be done, hopefully my MGUS has not progressed further.
You have been diagnosed with several possibly overlapping issues many/all of which may be contributing to your pain. I will address as many possibilities as I can.
Re nerve pain and MGUS. As you know, MGUS is supposed to be asymptomatic aka you are supposed to have any nerve pain. However pain as a possible MGUS symptom is well documented. Further, nerve pain is well documented for fibromyalgia as well. Also as you probably know, conventional oncology considers MGUS to be a “blood disorder” and therefore can offer no therapies.
My experience is for pre-MM patients (single plasmacytoma, MGUS and SMM) to pursue evidence-based, non-toxic therapies. Several of the therapies I take as a long-term MM survivor overlap with supplements that I have read about helping fibromyagia- an example would be vitamin D3- I take this for bone health and balance and I will link a study below about fibromyalgia.
Please consider the pre- MM cancer coaching program. The information provided will has been shown to reduce your risk of progressing to MM and I have worked with MGUS patients who tell me that they have slowly reduced their m-spike.
To learn more about these therapies and about Pre-Myeloma conditions management, please watch the short video below:
Let me know if you have any questions. Hang in there,