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Multiple Myeloma – Is my Oncologist Speaking a Foreign Language!?

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“Medical Speak” is more confusing than spells in a Harry Potter movie. Even when they use plain English, oncologists can confuse patients. Multiple Myeloma Cancer Coaching can help. 

Diagnostic terms, chemotherapy cocktails, stage at diagnosis… What is a newly diagnosed multiple myeloma (MM) patient to do??? What is the difference between a

  • remission
  • partial remission (PR)
  • very good partial remission (VGPR)
  • complete remission?

Is your understanding of a cure of your MM the same as your oncologists meaning of a MM cure?  Cancer Coaching from a long-term multiple myeloma survivor can help.

In defense of conventional oncology the language oncologists are taught in medical school and that they use daily makes their complicated world a little less complicated. Oncology considers a cure to be five years from the original diagnosis as much to be efficient as anything.

I have a large and growing number of people I work with simply send me their test results. Rather than having a person try to read his/her results in an effort to tell me how they are doing it is easier to simply include the document in an email to me.

I am both a multiple myeloma survivor and MM cancer coach. I work with myeloma patients, survivors and caregivers to understand their stage, test results, and prognosis,  so they can make better decisions based on their goals.

Have you been diagnosed with multiple myeloma? Do you find MM speak to be confusing? Please scroll down the page, post a question or comment and I will reply to you ASAP.

Thank you,

David Emerson

  • Cancer Survivor
  • Cancer Coach
  • Director PeopleBeatingCancer

Recommended Reading:

“This glossary defines commonly used myeloma-related terms.”

Cancer communication breakdown

“”They don’t understand the terminology, they don’t know what kind of tests they’re supposed to get or why,” she said. “They don’t understand what staging means or the types of cancers. It happens all the time. We have to interpret what the doctor has said so they can ask intelligent questions…”

You Have 11 Seconds to Tell Your Doc What’s Wrong

“Eleven seconds.

That’s how long you typically have to tell your doctor what’s wrong with you before he or she interrupts you and possibly sidetracks the conversation, a new study shows…

That’s just one thing her team discovered: The researchers also found that doctors were able to find out the patient’s primary reason for the visit only about one-third of the time.

The study authors noted that the medical interview is one of the key components of medicine. It helps to build a good doctor-patient relationship…

n the study, the researchers analyzed information from a random sample of 112 doctor-patient encounters from a study of 700 doctor-patient visits. The original study was done to test how well shared decision-making tools for treatments for chronic conditions worked. The patients visited doctors in Minnesota and Wisconsin.

Sixty-one visits were with primary care doctors and 51 were with specialists. Forty-five doctors were female senior clinicians. Sixty-four patients were female.

The average visit lasted 30 minutes, the findings showed. The patient’s agenda was only identified in 36 percent of the visits. When the patient agenda was identified, the average visit lasted 35 minutes.

Primary care docs seemed to best specialty care physicians by a wide margin — nearly half of primary care doctors found out the main reasons patients were visiting. But only 20 percent of specialty care doctors did so. However, Singh Ospina said because the study sample was small, this difference didn’t reach statistical significance.

She also pointed out that when you go to a specialist, you often go with a referral for a specific condition. For example if you go to an endocrinologist, you likely have gone with a referral for diabetes treatment, so the doctor already knows the main reason for your appointment…”

 

 

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23 comments
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Paul R Nangeroni says 4 years ago

Hello David,
I will meet with my oncologist tomorrow Feb 3 to discuss treatment for the 1st time, having been monitored for MGUS and SMM in recent years. This results from recent PET scan. I experience no symptoms. KRD will be dicussed. I’m otherwise healthy on NO meds. I’ll be 74 in April, and will plan to impliment some general aspects of Gerson therapy to compliment therapies in you program. I’m very motivated to avoid side effects. I’m retired US Army patient at NMMC BETHESDA in Maryland. I’m generaly active, and feel fine as a matter of routine. I’m inclined to not start conventional KRD treatment course right away. I’d appreciate any comments you have based on this limited informatio.
Than you very much.
Paul Nangeroni

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Faiza says 6 years ago

J’ai eux un cancer colorectal en 2013,mon médecin ma données 3mois durée de vie ,mais la volonté de dieu à voulu que je reste est combattre la maladie après une longue souffrances.merci

Reply
    David Emerson says 6 years ago

    Dear Faiza,

    My French is weak so I hope my translation is okay.

    “I have them colorectal cancer in 2013, my doctor my data 3month lifespan, but god willing to wanted me to stay is fight the disease after a long suffering.”

    It sounds as though you are well beyond the 3-month mark. Congratulations.

    David Emerson

    Reply
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