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I have been living with an mgus diagnosis for about 10 years now. My IgM levels are starting to rise quite a bit in the last year or so. I am interested in doing whatever I can to stop this orogression to MM. Pls send me whatever info that might be helpful to me.
ReplyHi Joann-
I replied to you directly with information. If you do not have an email from me in your inbox, please check your spam folder.
David Emerson
ReplyA caution for curcumin is it is a blood thinner.
I had a fall..within a couple of minutes my pantleg was soaked in blood. After cleaning up my leg found only a pinprick wound on my knee that was source of bleeding. At doctor visit shortly after I asked about curcumin being a blood thinner..Answer was yes. Immediately taken off of it. Alarm should be given to not excide safe portions and stop taking it 2 weeks prior and post surgical procedures.
Also plaquenil is given credit by my oncologists for keeping my blood level tests stable in checks for MGUS.
A caution for curcumin is it is a blood thinner.
I had a fall..within a couple of minutes my pantleg was soaked in blood. After clening up my leg found only a pinprick would on my knee that was source of bleeding. At doctor visit shortly after I asked about curcumin being a blood thinner..Nasser was yes. Immediately talent off it. Alarme should be given to not excited safe portions and stop taking it 2 weeks prior and post survival procedures.
Also plaquenil is given credit by my oncologists for keeping my blood level tests stable in checks for MGUS.
Hi Patty-
I am sorry to read of your fall. Yes, curcumin thins the blood.
Thanks for your input.
David Emerson
ReplySorry for all the typos.
Also have SLE. Plaquenil has helped control that issue. I continue to use turmeric/curcumin in cooking. Kidneys are involved. Diagnosis with MGUS when my body crashed into Liver and kidney failure. Enlarged spleen ,anemic…had food répulsion. Hydratation, anti nausea meds …. rest and destressing brought me back. MGUS was given blame and lupus took a backstep. A miracle for me that 5 determined doctors worked together to make this discovery. The thought of having monoclonal antibodies from Covid19 vaccinations floating in my body frightens me especially since pneumonia and flu vacs triggered the near fatal systemic response
HI Judy-
Are you asking for something in particular?
David Emerson
ReplyHi Judy-
Studies of curcumin and monoclonal proteins (mm cells) talk about “time and dose dependent manner” meaning the more the better. Further, dose depends on the bioavailability of the brand of curcumin you are taking. I supplement with LEF Curcumin Elite, one capsule daily aka 450 mg. Many in online groups talk about 2,4,6,8 grams a day.
I wish I could be more specific.
David Emerson
ReplyHi David
I have been diagnosed with Mgus
My first blood test was in Feb 21 and my second in June 21
I have another booked for 6th Oct 21
I had slightly raised SFLC on my first blood test which prompted
the second (unfortunately I don’t know what the SFLC were on the first)
My second blood test showed a slight decrease which was 20’
Knowing that it should be 19.4 my count was only 0.6 above that
but I was still diagnosed as having Mgus
I am anxious to know what my count will be from next weeks test
In the meantime I would like to know anything that would help me from
this Mgus turning in MM. I would therefore be extremely grateful if you
could email all of the information you have to hopefully help stop this from
happening.
I am extremely impressed with your mindset on this and would like
to wish you continued success in how well you are keeping, hopefully
I will be able to replicate your success in achieving the same outcome
Thanking you in advance of your reply
Carol
ReplyDavid, I have just been diagnosed with multiple myeloma if could please let know what kind of diet or food I should be eating. I would appreciate your help. Judymorgan
ReplyHi Judy-
I will send you the MM CC program nutrition guide via email.
David Emerson
ReplyI want to purchase the materials you mentioned. MGUS since 2014
ReplyHi Cheryl-
I emailed you the information directly.
David Emerson
Reply[…] MGUS & SMM Reduce Risk of Progression to Multiple Myeloma […]
ReplyI hope you are still doing well. You are an inspiration to all you have advised, including me!
ReplyThanks for the kind words Kathryn- yes, I am still doing well. I hope you are doing well too.
David
ReplyAll patients should have a vitamin B12 deficiency or Pernicious Anaemia excluded as this can be an underlying cause.
ReplyAll patients should have a vitamin B12 deficiency or Pernicious Anemia excluded as this can be an underlying cause.
Replyl have MG US for 14 years. My husband had. Myeloma after my diagnosis and sadly died 10 years ago
ReplyHi Betty-
I am sorry for your loss as well as your MGUS diagnosis. You and your husband are a unique couple in the history of MM and pre-MM. If you write your story in an email I will publish it on PeopleBeatingCancer. A small tribute but a tribute…
Your call.
David Emerson
ReplyI’ve written you before – I was diagnosed with MGUS in 2013. Asked why this couldn’t be contolled and try to prevent MM. I was told nothing coukd be done until MM is diagnosed. Then the rough journey started!
ReplyHi Laura-
I should credit you with starting me on my pre-MM journey! I too was told that nothing could be done for my SBP. Are you still MGUS? What are you doing to manage your health?
thanks
David Emerson
Reply[…] MGUS & SMM Risk of Progression to Multiple Myeloma […]
Reply[…] MGUS & SMM Risk of Progression to Multiple Myeloma Multiple Myeloma Diagnosis and Staging Risk of Progression for Smoldering Multiple Myeloma is Reduced…at what cost? […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
ReplyHi,
I have been diagnosed with MGUS. it was found suing a routine blood work during a yearly checkup. I have no symptoms. Was referred to a hematologist that I saw this week. Blood was taken for additional testing but I don’t have the results yet. This will be a baseline and I go back in 6 months for another test. If there are no changes then it will be yearly testing based on what the doctor said.
I want to understand as much about this as possible and to do whatever I can to stay healthy.
ReplyHi Ivy-
I am sorry to read of your MGUS diagnosis. However please understand that this is a diagnosis of an asymptomatic “blood disorder” and not cancer. Yes, there is the risk of increasing to full blown MM. My experience however is that pre-MM patients can and do live in this state for years.
Getting a baseline reading is a good first step. Your hematologist should be able to give you your “m-spike” value. While there are other diagnostic readings for MGUS the m-spike is the main prognostic indicator.
Because your diagnosis is not cancer conventional oncology will not prescribe medications. Your oncologist will probably tell you to “watch and wait.” Which is fine, at this stage. However there are a number of evidence-based non-toxic therapies that studies has shown can reduce your risk of progressing to frank MM. Margaret of Margaret’s Corner has lived in a pre-MM stage for over 18 years- you can search for her blog.
Re your statement that you want to do “whatever I can to stay healthy,” the pre-MM program is designed for MGUS patients to eat, supplement and practice lifestyle therapies to do just this.
Let me know if you have any questions. Good luck,
David Emerson
ReplyHi Louis-
The normal range for Kappa FLC’s is 3.30-19.40 (mg/L). So a level of 38.14 is high. Do you know other blood levels such as your M-spike? Or albumin blood levels? Have you been diagnosed with multiple myeloma? Are you experiencing any symptoms such as
1) bone pain or damage
2) anemia (fatigue)
3) kidney damage
If so, not to worry. There is a long and growing list of conventional (FDA approved) therapies and a long and growing list of evidence-based, non-toxic, non-conventional therapies. You have many choices to manage your MM.
Let me know. Hang in there,
David Emerson
MM Survivor
MM Cancer Coach
Director PeopleBeatingCancer
[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
ReplyCan you give more info on the MGUS program? Is it on this website? If so where?
ReplyHi Anthony-
The webinar of the MGUS CC Program is in production. I will email you the Introduction that we give to viewers to follow along.
Have you been diagnosed with MGUS? If so, do you know your m-spike or kappa or lambda levels? Are you experiencing any side effects? I will email the Introduction to your gmail account now.
Thanks
David Emerson
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
Reply[…] Prognosis- Risk of Progression to Multiple Myeloma, “Comparatively Lower […]
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